Thanks to you and everyone for the great feedback on the meds. I guess everyone's myelitis (myelopathy) is different and so we each experience these drugs differently. Have any of you have IV steroids at any time? My neurologist is recommending this approach for the inflammation as a next step. Steroids make me very hyper and irritated (thoughts of suicide are probably associated), as if the pain isn't enough to bear. So I am hesitating. Do you have any related experiences? My neurologist is recommending 500 CC for 4 days running). Best to all, Jill
________________________________ From: "[email protected]" <[email protected]> To: Neil McNeil <[email protected]>; Janice Nichols <[email protected]>; [email protected]; [email protected]; Jill Posner <[email protected]> Sent: Sat, April 17, 2010 9:54:10 PM Subject: Re: [TMIC] TMIC Neurontin--does it exhaust you? Jil, That much neurontin also exhausted me, but I took fewer naps as time went on.. It never eliminated TM pain, however, it helped some. My biggest complaint about Neurontin is the time it took to work and how fast it wore off. My Neuro said that was a common complaint and suggested I try Lyrica. I researched Lyrica for a year before letting my him write a prescription. My biggest fear was his insistence that I could switch from neurontin to Lyrica overnight. I finally made the switch exactly that way - overnight - with no side effects. I didn't swell up like a toad nor did I turn into one. Lyrica works within fifteen minutes of taking the pill and lasts much longer. I took 75mg every 12 hours for a year, then upped to 75mg every 8 hours for about 9 months. I then asked for an increase to 100mg every 8 hours and have been on this dosage for over a year. I understand being afraid of Lyrica, because I was petrified of it myself. Now I have to share the benefits I received. It works for some, but not for others. Patti - Michigan ---- Jill Posner <[email protected]> wrote: > I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me > feeling like a zombie and doesn't really eliminate the pain. Lyrica is in > the same family so I didn't think it made sense to wind down and up again. > And it seems to have more side effects. I don't care to be as bloated as a > toad. Are there other options? Jill
