NeurontinRobert, I can see why you would be confused too. Is he having you take Lyrica AND the Neurontin together? Hmmm I am not familiar with the AMPYRA. I know that some people have had problems with the side effects of the Cymbalta too. Keep us all posted on how things go with you. Is there a reason he is trying these changes? Have you had more problems with pain etc.?
Wow, 9 TM'rs together. That IS quite amazing. I have only met a few in a one on one. Not too many around here to get together at one time. Not a lot that I am aware of anyway. We seem to be quite spread out here in Canada. At least people who have subscribed to the TM site anyway. Have a good day. It is going to be nice and warm here again (FINALLY) today. Supposed to be in the mid-20's Celcius. That is somewhere in the 70's Farenheit. It has been lovely the last few days too. This old TM body moves so much easier in this warmer weather. The muscles surely don't tighten up as much and they loosen up easier. Heather in Calgary ----- Original Message ----- From: Robert Pall To: Pieter and Heather ; [email protected] Sent: Monday, May 17, 2010 8:24 AM Subject: RE: [TMIC] Neurontin Heather...I am just so confused.....I am starting to believe that the best combinatuion I have used up to now has been Lyrica and 4- Aminopyridine (now AMPYRA). Dr Kerr was going to put me back on these 2 but he first wanted to see how Cymbalta instead of Aminopyridine agreed with me...to cut to the chase I found the Cymbalta was helping but the side effects were offsetting. I figure I will try the neurontin which i believe I took 8-10 years ago...who can remember?.....If I see no help with the banding I intend to try the combination of Lyrica and Ampyra....for me Lyrica has been the most effective drug I take ttat for me has no side effects! To be continued! By the way we had our 4th New Jersey TM Support group meeting yesterday with 9 TM'rs attending some with parents or spouses.We spent 3 hours discussing what TM has done to our lives, the meds we take and the Doctors we see...and what we think of them.....as always a special and emotional meeting. It is so rare to put this many people together who understand eachother and are able to relate. As always I recommended them going to our website and subscribing. All the best! Rob in New Jersey ------------------------------------------------------------------------------ From: Pieter and Heather [mailto:[email protected]] Sent: Monday, May 17, 2010 10:11 AM To: Robert Pall; [email protected] Subject: Re: [TMIC] Neurontin Robert That seems a bit odd. Lyrica and Neurontin are about the same. Usually when you are taken off Neurontin you are put on Lyrica (which has only been on the market for about the last 3 years). Patti in Michigan takes Lyrica and Cymbalta. They work well for her. I know she was previously on Neurontin and Cymbalta. I would think that taking Lyrica and Neurontin are the overkill ones. A lot of people who were taking Neurontin changed to Lyrica when it came out and most have found more relief from the Lyrica. I was one who tried to switch however the side effects for me with the the Lyrica were badly swollen legs, ankles and I had to go back to the Neurontin. Apparently according to my neuro that the swelling of the legs and ankles using Lyrica occurs in only about 7%. I found that the 10 days I was on the Lyrica helped with the pain more than the Neurontin but the swelling in my lower limbs was not good. I have been on Neurontin since day one back in Sept 2003. Heather in Calgary ----- Original Message ----- From: Robert Pall To: [email protected] Sent: Monday, May 17, 2010 6:42 AM Subject: [TMIC] Neurontin I went last week to a new Neuro recommended to me by Dr. Kerr. Besides having me take new MRI's including the brain (never had this one before) he is taking me off Cymbalta and starting me up on Neurontin ( 100 mg per day). He saw no reason to be taking Cymbalta as I am already taking Lyrica and according to the new Dr. both Cymbalta and Lyrica do the same thing and taking both of them is not effective it is just overkill. I wonder if any of the other members who are taking both Lyrica and Cymbalta were ever told this.and what should I expect from the neurontin? I am hoping it will help the banding. What negative side effects have any of you suffered with the neurontin? Thx Rob in New Jersey
