I'm unable to walk or use any function below T10. On occasion, I can move my legs a tiny bit, but not enough to support myself. For a period, I was actually able to stand, but that's now gone. My arms (especially my left) are affected by a cerical lesion, not much, thank God), but that's from MS and has nothing to do with my TM. Laura
http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 4:22 PM, Janice Nichols <[email protected]>wrote: > Do you mind my asking what are you able to do? Were your arms > affected and how did it leave you with walking/not walking? > Janice > > *From:* Laura Beaudin <[email protected]> > *Sent:* Thursday, June 10, 2010 11:43 AM > *To:* Janice Nichols <[email protected]> ; [email protected] > *Subject:* Re: [TMIC] > > All my docs and therapists are on the Spinal Cord Injury Unit of our rehab > hospital...definitely qualified. It sucks, but sometimes the best efforts > don't work. I was on this unit as an inpatient for 6 weeks last summer, they > were not able to get much back so the time ended up being spent on how to > adjust to changes and become independent in spite of it. > > Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, > not caused by an accident). > > Laura > > http://practical-homeschooling.org > www.laurascoolstuff.com > > > > On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols <[email protected]>wrote: > >> I am getting definite improvement with PT. My pain management doc >> recommended a PT guy that specializes with damaged spines (like us). He >> knows >> what he is doing. We are taking it very slow because of the severe back >> arthritis I have and the myelitis. I also do my exercises at home in >> between sessions. >> Can you get a PT especially recommended by your doc because of our special >> problem? The hamstring problem is definitely from myelitis. >> Janice >> *From:* Laura Beaudin <[email protected]> >> *Sent:* Thursday, June 10, 2010 11:14 AM >> *To:* Janice Nichols <[email protected]> >> *Subject:* Re: [TMIC] >> >> Ditto...more bruising would be normal (and often is) if you have decreased >> sensation. As for hamstrings, mine are shortening and despite PT, I can't >> get them flexible again. >> Laura >> >> http://practical-homeschooling.org >> www.laurascoolstuff.com >> >> >> >> On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols <[email protected]>wrote: >> >>> Also the baclofen! Good luck and keep in touch in New >>> York. Are you going to live there now? >>> Janice >>> >>> *From:* Dalton Garis <[email protected]> >>> *Sent:* Wednesday, June 09, 2010 11:44 PM >>> *To:* Janice Nichols <[email protected]> ; [email protected] ; Leslie >>> Garis <[email protected]> ; Garis, Brooks (Darien, >>> CT)<[email protected]> >>> *Subject:* Re: [TMIC] >>> >>> I haven’t; >>> >>> But I was in very heavy labor employment before returning to get a PhD at >>> aged 35, with lots of broken bones, back fusions, hardware, the works. So, >>> I wouldn’t notice anyway. >>> >>> As to the hamstring, also, no. For me the spasticity and convulsive >>> attacks when I try to speak during stressful situations is absolutely the >>> biggest problem. And no one’s heard of that. But I read about this being a >>> well documented effect of TM, that is, spasticity in some form, on the Johns >>> Hopkins website. I also have uncooperative legs and hands a lot of the >>> time. >>> >>> But I can’t keep my left foot up while walking now, so I wear western >>> boots with big heels. They allow me to walk without the need for a foot >>> brace. >>> >>> Here’s hoping I don’t get spastic in the airport or on the plane so it >>> doesn’t get me grounded or thrown off the plane today on my flight back to >>> NYC!!! Hey, just increase the Lyrica, right? >>> >>> Dalton >>> Abu Dhabi/New York >>> >>> >>> >>> On 10/6/10 8:23 AM, "Janice Nichols" <[email protected]> wrote: >>> >>> Got a couple of questions: >>> >>> 1. Have you noticed more bruising on affected areas of TM than you had >>> before TM? >>> >>> 2. Have any of you had problems with your hamstring since TM? >>> >>> Janice >>> >>> >> >
