Re: [TMIC] Anyone Remember Jude?Sounds like a great idea - as long as the "little brother" can handle it. Would you be playing ball in a wheelchair since you can not stand for long? How is your balance when standing? You know, there are a lot of other things to do besides physical activity. Keep those in mind too. Movies, plays, museums-as you have stated. I hope this works out for you - with the right kid, it sounds great! Janice
From: Dalton Garis Sent: Tuesday, June 15, 2010 7:28 PM To: 'Janice Nichols' ; 'Jude Hoops' ; [email protected] Cc: [email protected] Subject: RE: [TMIC] Anyone Remember Jude? Well, Janice; I am in New York now to see what these doctors might sort out. As far as getting MS first, then TM: the MS occurred first, alright; and then, months later, TM. But now I think the TM is hitching a ride on the MS and broadening its effect. So now I have MS symptoms on both sides, in addition, or as part of, TM. I still get spasticity attacks lasting from a few minutes to a few hours. When I 'recover' I am groggy and my speech is slurred and slow. They seem to be related to emotional activity since, if I get excited either with positive or negative feelings, then, within seconds, I get the fits. I stiffen up from head to toe, becoming like a pine board, sliding off the chair and onto the floor. I had another attack today after realizing I had a way to increase my SSA payments. And then, I stiffened up, slid onto the floor losing control of arms and legs. My dear wife got me up and into bed. God bless her! She just handles it all with out any panic or anything, smiling as if this is a normal part of the morning in any kitchen in the world. There is no medical intervention for this. It just goes away on its own after a while. I am really discovering what it is like being disabled. I can walk to the car or into the bank or a little farther, but that's it. No standing and waiting for busses; no going up and down the stairs for the subways; so, if I want to go somewhere I am dependent on others to think of it and offer it. Frankly, my family isn't there yet. But in all fairness, they work really hard to make a living for themselves and their dependents and have little off-time for anything. I am now exploring becoming a 'Big Brother,' to be some boy's guide and companion sort of, for some hours of the week or month. I can play catch and we can go to Yankee or Mets games together, since I can't go anywhere alone. Even if I could go, if I have a fit and am alone then I am in trouble. I am hoping for a teenager as the 'little,' as they're called. We'll see. With a teen I could take him to museums, parks, ball games, lots of places in this wonderful City. And if I had a fit he could support me and get me to a bench or something. He might learn some things and I would be enabled to get out of my place for a while. Dalton Garis New York -------------------------------------------------------------------------------- From: Janice Nichols [mailto:[email protected]] Sent: Sunday, May 30, 2010 12:48 PM To: Dalton Garis; Jude Hoops; [email protected] Subject: Re: [TMIC] Anyone Remember Jude? Dalton, Welcome to the club. I have never heard of anyone getting MS first and then TM second. Usually it is the other way around. Doc told me that TM is sort of a cousin to MS. It is all autoimmune. Tell us more about yourself - your family, age, support group, how TM left you in terms of damage, etc. Sure glad to have you with us (except for the reason, of course). Janice From: Dalton Garis Sent: Saturday, May 29, 2010 5:45 AM To: Jude Hoops ; [email protected] Subject: Re: [TMIC] Anyone Remember Jude? Jude; I am meeting you for the first time. I live in Abu Dhabi, United Arab Emirates. Diagnosed with 'demyelinating disease' in early January, had second attack 6 weeks later, confirming that it was MS. Then in April I got TM and have been dealing with that ever since. I read your emails with empathy. I pray for you all and hope things become more positive in your lives, especially in your financial lives. Contact me directly any time at this email, or on Facebook Best regards, Dalton Garis On 26/5/10 3:05 PM, "Jude Hoops" <[email protected]> wrote: Hello Friends-Old and New, I have missed you all so much! As like most of you, I have been battling TM and other illnesses like MS, with all of the problems that go with it. It is no fun...and that's not what kind of email this is intended to be. Sorry I still have no picture to post, but promise to look for a decent one tomorrow. I know I have one or two decent ones laying around.
