That's the rub-- insurance would have paid for it--- if the physician(s) prescribed it-- if there were a history/protocol for a course of treatment.

EG Stroke patients got more therapy than i did-- I had the equivalent of a spinal stroke.





IF;

You could pay for it all!

Dalton Garis
Office: +971-2-607-5070/-5297
Fax: +971-2-607-2500
Mobile: +971-50-668-5760
In New York: 718-271-2738

From: Akua [mailto:[email protected]]
Sent: Saturday, June 19, 2010 9:06 PM
To: [email protected]
Subject: [TMIC] What's in a name (Diagnosis)

Here in the U.S., if I had MS, i would have had REAL help: therapy, infrastructure, assistance, a drug course, transportation, LOTS AND LOTS of things that I did not get and do not have.

As soon as they deteremined that what I had was NOT MS -- this was at Strong Hospital-- A whole level of attention and assistance was dropped like a hot potato. They didn't know about TM but they knew about MS. So basically nothing happened for me. I was warehoused for months and fought for every little bit that was done, which in retrospect was shockingly little eg. no water therapy, very little exercise, my leg machines discontinued....

So diagnosis is critical to treatment in my experience.

Akua


Hi Dalton,



I don't disagree with what you are saying, however it depends upon how far down the line you are. I think we all need that diagnosis, we need to know what has gone wrong, we need a label. It takes a long time to accept what's done is done···when we have got there you're right, the label/diagnosis becomes irrelevant. Until we get there , well there's some comfort in a label . After all, without that label /diagnosis none of us would be here sharing our experiences on the web.



Steve (one of 300 of the population of the uk diagnosed in a year, we are a rare breed my gp has never seen a tm before)





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