been there ; still there although taking 300 mg of quinne-odan helps somewhat. i wake up with my toes curled upwards. the pain is awesome. I then rub a535 on my feet and the pain subsides and my toes become normal. I am usually up for an hour or so I can get into bed. that is repeated about 4 or 5 times during the night haven't had a full 6 to 8 hours sleep straight about 6 years. p.s you should see my collection of books I have.
Date: Wed, 11 Aug 2010 08:32:38 -0700 From: [email protected] Subject: tmic-digest Digest V2010 #361 To: [email protected] --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 361 Today's Topics: Re: [TMIC] Fact Sheet on TM [ CANDIS KALLEY <cakal...@embarqmail. ] [TMIC] arghhh!!!!!!! [ john snodgrass <[email protected]> ] Re: [TMIC] August Birthdays [ "L T CHERPESKI" <[email protected]> ] Re: [TMIC] arghhh!!!!!!! [ randy rankin <[email protected]> ] RE: [TMIC] arghhh!!!!!!! [ "Janet Dunn" <[email protected]> ] --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 07:53:34 -0400 From: [email protected] To: [email protected] Subject: Re: [TMIC] Fact Sheet on TM Todd, I have my info on an Excel spreadsheet. I then did a sort on med column then dr. column which then put all the med names in alpha order by the doctor. Then each dr. can see at a glance who is prescribing what. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Todd Tarno" <[email protected]> To: "CANDIS KALLEY" <[email protected]> Sent: Monday, August 9, 2010 4:04:08 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM Thanks Candy, This is a wonderful ideal, since I do have more than one doctor. You just had to ADD another column to my medication list. LOL Thanks for the info. Todd --- On Sat, 8/7/10, CANDIS KALLEY <[email protected]> wrote: From: CANDIS KALLEY <[email protected]> Subject: Re: [TMIC] Fact Sheet on TM To: "Todd Tarno" <[email protected]> Date: Saturday, August 7, 2010, 4:08 PM I also have a column of which dr. prescribed the med. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Todd Tarno" <[email protected]> To: "TMIC" <[email protected]> Sent: Saturday, August 7, 2010 2:50:05 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM My medication speadsheet has the following: Medication, Date Started, Dose, Times of Day w/time of the day M, D, & N ( Morning, Dinner & Night), Type of Med. I believe this will cover everthing. lol Todd in CC, TX --- On Sat, 8/7/10, CANDIS KALLEY <[email protected]> wrote: From: CANDIS KALLEY <[email protected]> Subject: Re: [TMIC] Fact Sheet on TM To: "tmic-list" <[email protected]> Date: Saturday, August 7, 2010, 10:40 AM Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for "current" meds. This way, I print the list before the visit and just say "See attached". Much Much easier! Candy K. ----- Original Message ----- From: "Patricia Cooley" <[email protected]> To: "Rev. Craig Crossman" <[email protected]>, [email protected] Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:[email protected]] Sent: Friday, August 06, 2010 3:08 PM To: [email protected] Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 [email protected] www.firstbaptistcolby.org --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 20:13:59 -0700 From: [email protected] To: [email protected] Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good. --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 21:56:50 -0600 From: [email protected] To: [email protected]; [email protected] Subject: Re: [TMIC] August Birthdays HAPPY BIRTHDAY AUGUST KIDS! (Great time of the year to be born!) ----- Original Message ----- From: Barbara H. To: TMIC Sent: Saturday, July 31, 2010 10:22 PM Subject: [TMIC] August Birthdays Happy Birthday to the August kids! Please send any additions or corrections to [email protected]. 8/1 Peachi ([email protected]) 8/1 Cindy McLeroy ([email protected]) 8- 1 Stacy Firth ([email protected] ) 8-3 Larry Throne ([email protected] ) 8-10 Sean Indiveri ([email protected]) 8-11 Raylene Gökeri ([email protected] 8-11 Michelle Maricic ([email protected]) 11th August 1950 Dalida S. Ortiz de Garcia ([email protected]) 8-16- [email protected] 08/17 Sandra (Harth) Brassil ([email protected]) 8-17 Kim ([email protected]) 08/18 Corinne "Cookie" Knox ([email protected]) 8-19 Saroj ([email protected]) 8-21 Barbara H. ([email protected]) 8/22 - Debi ([email protected]) 8-23 Cole ([email protected]) 8-29 Lisa Baker (Judy's daughter) ([email protected] 8-29 Kathleen ([email protected] ) 8/30 Lynn Pouliot ([email protected]) 8- 31 Robin in Ontario(Brampton)([email protected] ) --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 21:48:20 -0700 From: [email protected] To: [email protected]; [email protected] Subject: Re: [TMIC] arghhh!!!!!!! Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From: john snodgrass <[email protected]> To: transverse myelitis <[email protected]> Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good. --Forwarded Message Attachment-- Date: Tue, 10 Aug 2010 23:44:06 -0700 From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: RE: [TMIC] arghhh!!!!!!! Hey John, Randy, I’ve been there too. Besides Percodan and Baclofen, I also use a good healthy dose of Magnesium Citrate. About 400 – 500 mgs – it is a natural muscle relaxant. And it helps with the sleep issue. Gotta love TM. Gotta. NOT! Janet From: randy rankin [mailto:[email protected]] Sent: August 10, 2010 9:48 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] arghhh!!!!!!! Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From: john snodgrass <[email protected]> To: transverse myelitis <[email protected]> Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!!!!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good.
