Date: Wed, 8 Sep 2010 16:54:35 -0700 From: [email protected] Subject: tmic-digest Digest V2010 #429 To: [email protected] --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 429 Today's Topics: [TMIC] Neurologist visit [ "Rev. Craig Crossman" <revcrossman@ ] Re: [TMIC] Neurologist visit [ john snodgrass <[email protected]> ] Re: [TMIC] Neurologist visit [ Alton Ryder <[email protected]> ] [TMIC] Neurologist visit [ Jan Hargrove <[email protected] ] [TMIC] Neurologist visit [ Jan Hargrove <[email protected] ] --Forwarded Message Attachment-- Date: Wed, 8 Sep 2010 15:29:01 -0500 From: [email protected] To: [email protected] Subject: [TMIC] Neurologist visit Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 [email protected] www.firstbaptistcolby.org --Forwarded Message Attachment-- Date: Wed, 8 Sep 2010 14:09:10 -0700 From: [email protected] To: [email protected] CC: [email protected] Subject: Re: [TMIC] Neurologist visit I have been taking gabapentin 400mg for the last 2 years 3 times a day. some people say that they can take 1 and it knocks them out. i have never experienced that. perhaps because of the extreem pain. I also take hydrocodone,baclofen, and lorazepam. From: Rev. Craig Crossman <[email protected]> To: [email protected] Sent: Wed, September 8, 2010 4:29:01 PM Subject: [TMIC] Neurologist visit My name is Vicki and I have TM sudden onset within 15 minutes I was paralyzed from the waist down. I take gabapentin 1600mg. 3x a day and I have a pain pump with Morphine and Marcaine in the pump. I still have so much neuropathy pain in my legs it just klls me. I am also on hydro's. Seems like we have to live in pain for the rest of our lives. I live in Spokane WA. Finally had my first appointment with new neurologist. The good news (according to her) is that while my TM will be with me the rest of my life, it will not get progressively worse because she says TM is not a degenerative disease. The TM can keep you from being as active as you should be so over time many people with TM lose a lot of strength and function. That has happened to me. The bad news is that I do have a type of neuropathy which will get progressively worse and there is really nothing to be done with it except control the symptoms. Bottom line according to her? I will probably not live until I am 90, and as time goes by I will have less and less neural control over my extremities. So my neurologist has started me on some meds she says I should have been on all along but I should also stay on the ones I am on currently. The mixture of all these different drugs might be interesting. Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. The drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. BTW, she said she was already aware of, and read up on, TM. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 [email protected] www.firstbaptistcolby.org --Forwarded Message Attachment-- Date: Wed, 8 Sep 2010 18:20:03 -0500 From: [email protected] To: [email protected] CC: [email protected] Subject: Re: [TMIC] Neurologist visit I take gabapentin, but it was ineffective. Alton On Sep 8, 2010, at 3:29 PM, Rev. Craig Crossman wrote: he drugs I currently take are hydrocodone, Tramadol, and Amitriptyline. She has added gabapentin 300mg and Ropinirole 0.5mg. If anyone has anything they think I should know about these last two meds, I would appreciate it. --Forwarded Message Attachment-- Date: Wed, 8 Sep 2010 15:36:36 -0700 From: [email protected] To: [email protected]; [email protected] Subject: [TMIC] Neurologist visit So glad you found a good neurologist!! **Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. **P.S. Is there any way we could know which Colby, KS? --Forwarded Message Attachment-- Date: Wed, 8 Sep 2010 15:41:39 -0700 From: [email protected] To: [email protected]; [email protected] Subject: [TMIC] Neurologist visit EEK! Part of message was deleted by the computer or maybe the typist........ Question should have read: P.S.Is there any way we could know which Sunday to show up at the Baptist Church in Colby, KS So glad you found a good neurologist!! **Who knows, some Sunday morning I may show up in the pulpit wearing a pink tutu and a glittery tiara. **P.S. Is there any way we could know which Colby, KS?
