Hi, Roger Pratt here. I haed "seizures" for two years before I was diagnosed
with TM. Once I was diagnosed, they said that they were "spasms, muscle
tremors, results from pain, etc., etc." and that I really didn't have epilepsy,
which was good because I had been allergic to every seizure medication they had
given me. Now I also have Mononeuritis multiplex (which affects peripheral
nerves and causes nerves to die and muscle waisting) which they figured I got
about 6 months ago. My "spasms" have decreased and are not as violent. I hope
your seizures will decrease. Just for reference here are the medications I am
taking:
Heart Related
Tricor 145mg (at breakfast)
Zetia 10 mg (at breakfast)
Fish Oil 1000 mg (4Xdaily)
Transverse Myelitis Related
Amantadine 100mg (1 to 2Xdaily)
Cymbalta 60mg (at bedtime)
Zanaflex 4 mg (at bedtime)
Triavil (Perphenazine- Amitriptyline) 4/50mg (at
bedtime)
Tranxene 7.5mg (as needed)
Darvacet 100/650 (at bedtime or up to 2X daily)
Mononeuritis multiplex
Prednisone infusions (1 X a week)
Imuran 50mg – 200mg (daily)
Other
Iron, Multi-Vitamin, Calcium
Prevacid 30 mg (at breakfast)
Vitamin B-12 (by injection every two weeks)
Lisinopril 10 mg (at bedtime)
My best to you,
Roger in Kennewick, WA
--- Original Message -----
From: "Janice Nichols" <[email protected]>
To: "Dalton Garis" <[email protected]>, "j dunn" <[email protected]>,
[email protected], "Barbara Alma" <[email protected]>
Sent: Friday, September 10, 2010 8:18:15 PM
Subject: Re: [TMIC] Medications
Not to my knowledge. But, if it works on the spasms, that is part of your
problem taken care of.
Did you have seizures before TM?
Janice
From: Dalton Garis
Sent: Friday, September 10, 2010 12:22 PM
To: Janice Nichols ; [email protected] ; [email protected] ; Barbara Alma
Subject: Re: [TMIC] Medications
Does it work for seizures??
Dalton
From: Janice Nichols < [email protected] >
Date: Fri, 10 Sep 2010 10:20:03 -0500
To: Dalton Garis < [email protected] >, < [email protected] >, <
[email protected] >, Barbara Alma < [email protected] >
Subject: Re: [TMIC] Medications
Remember you can work up to the amount you need. If you start with the
zomby-business, cut back and see if that will work for you. Or, just take it
a little before bedtime. That is what I do.
Janice
From: Dalton Garis < mailto:[email protected] >
Sent: Friday, September 10, 2010 5:31 AM
To: Janice Nichols < mailto:[email protected] > ; [email protected] ;
[email protected] ; Barbara Alma < mailto:[email protected] >
Subject: Re: [TMIC] Medications
OK;
I’ll suggest it to my neuro. He has been steering me away from the heavy-duty
meds because I already take 40 mg of Prozac (have for 20 years) and he is
afraid it will zomby-ize me.
Dalton
From: Janice Nichols < [email protected] >
Date: Thu, 9 Sep 2010 22:22:34 -0500
To: < [email protected] >, < [email protected] >, Barbara Alma <
[email protected] >
Subject: Re: [TMIC] Medications
Resent-From: < [email protected] >
Resent-Date: Thu, 9 Sep 2010 20:22:23 -0700
There's that word again - spasms. I swear by baclofen. Had to change
the number taken and the times of the day when to take them, but once that
was figured out, I could sleep. Sorry to sound like a broken record and I
realize that we are all different too. Sure wish it would work on you guys
the
way it works for me.
Janice
From: Barbara Alma < mailto:[email protected] >
Sent: Thursday, September 09, 2010 10:16 PM
To: [email protected] ; [email protected]
Subject: Re: [TMIC] Medications
Hydrocodone: I personally do not get any relief from my nerve pain,
burning/freezing or hyper sensitivity. I take it for other pain, and I also
take it to sleep occassionally. Before anyone states that it isn't a sleep
aid, I know it, but it allows my other aches and pains to stop hurting enough
for me to go to sleep. It does not work on the really bad nights when my
nerves or spasms do not settle down though. I may as well have not even
bothered.
Hugs, Barbara A in Auburn CA
-----Original Message-----
From: Janet Dunn < [email protected] >
To: 'transverse myelitis' < [email protected] >
Sent: Thu, Sep 9, 2010 7:59 am
Subject: [TMIC] Medications
Hello to all
I find it very interesting the number of us that are on or have taken
hydrocodone, especially when it is “said” that opoids do not help with the pain
of TM
For me personally, I wouldn’t make it if I didn’t have a member or two of the
hydrocodone family in my drug repertoire. I take 20mg or 40mg of long acting
HCL in the morning, depending on the legs, and have perocdan as a filler for
the day. I also take Lyrica, Effexor, Wellbutrin and baclofen. Even today,
after 2 days of working 8 hours, and moving around and doing housework, I hurt.
I want to lay in bed. But . . . just like the rest of us . . . duty and life
are calling.
I really appreciate the medication information simply because I live so far
away from the nearest neurologist, and the wait time is up to a year, if we can
get in at all. Then we must travel either 400 miles out of province, or 850
miles to Vancouver. So the information on here is absolutely priceless.
However, you cannot have my MasterCard! ;)
Janet
From: john snodgrass [mailto:]
Sent: September 8, 2010 2:09 PM
To: Rev. Craig Crossman
Cc: transverse myelitis
Subject: Re: [TMIC] Neurologist visit
I have been taking gabapentin 400mg for the last 2 years 3 times a day. some
people say that they can take 1 and it knocks them out. i have never
experienced that. perhaps because of the extreem pain.
I also take hydrocodone,baclofen, and lorazepam.
=
