Hi Cheryl,
I also am not looking forward to the early darkness. I don't know if I
have 'SAD', but it affects me that way.
I am also appalled by the fact that the physical therapists and nurses
currently treating me have little to
no understanding of what TM is and how it affects me. My current PT
often says that my difficulty
in doing the exercises is "mental". Grrrrrrr...
I agree, nobody really "gets it' but us, the exceptional caregiver, and
a few rare doctors.
Thank the Lord for you all.
Kevin
[email protected] wrote:
Hi,
It's been 15 yrs for me,and I still mourn for the losses. Not
all the time,but it is especially sad for me around this time of
year. Good old seasonal affective disorder;It gets dark earlier.
Plus,this week has been rainy and gloomy,so that has me down.
The hardest part for me is that unless you have tm,you don't
"get it". The unrelenting tiredness,burning
pain,numbness,tingling,tightness,etc. My sister once said she
"couldn't stand to have the numbness all the time." I said there
isn't a choice,it's reality,and you learn to accept it.
I thank God for the TMIC;I'd be adrift in a sea of loneliness
without all of you.
Cheryl in rainy (again) Easthampton,MA
--- On *Wed, 10/6/10, [email protected]
/<[email protected]>/* wrote:
From: [email protected] <[email protected]>
Subject: [TMIC] 10-06-04, the 6th anniversary TM came into my
life.
To: "TMIC" <[email protected]>
Date: Wednesday, October 6, 2010, 3:10 AM
10-06-04, today is the 6^th anniversary TM (Transverse
Myelits) came into my life. I live in Atlanta and was on a
business trip to Dallas . I would have never thought that
waking up; putting my feet on the ground one Wednesday morning
would have changed my life so much. I would like to say is
thank you to my husband Brian, my rock that keeps me grounded.
I could not have made it thru this without him by my side and
support. To God for bringing Brian into my life 24 years ago,
and to friends and family and my extended TM family that have
stuck by me regardless of what this spinal cord disease has
thrown at me.
There are days that it seems like it’s been forever and I can
not remember walking, running, riding a bike, ect and days
that it seems like I just woke up and realized life as I knew
it would never be the same. I still have days I mourn for the
loss of the life style I had but at the same time blessed at
how much appreciation for life has been given me. I know I am
blessed that this disease did leave me one good leg that I can
use a walker for short distances around the house, but need a
wheel chair for distance/public use. By reading so many TM
stories on this site I do not feel as alone with the pain,
frustration, and just plain old bad days as I read other
stories and puts my issues back in perspective.
Thanks again to my TM family for always being there and
sometimes that extra kick in the rear when the pity party starts!
So a journey in life began, but the adventure continues
Love and bless you all
Kim/Atlanta
TM T-10
