from what I understand,TM is when you actually have the inflamatin of the myelin. so we dont actually have TM now but suffering from the damage that TM has done. it is just easier to say when talking to someone when they ask whats wrong,i have TM. some suffer reoccurance but it is not likely. my last MRI showed that the myelin that had demyelinated had healed. no swelling,no missing myelin. like insulation around a damaged wires. I asked a Dr why I jerked sometimes and sometimes rather violently and she said all the activity with the brain attempting to send signals that was mistranslated,so much energy was built up like static and it would release in the jerk. i reckon that means i am a jerk? I have read other definitions but that sounded more apealing and easy to explaine to those that might feel uneasy about my jerking. just tell em it's the Elvis complex.
--- On Tue, 11/9/10, Janice Nichols <[email protected]> wrote: From: Janice Nichols <[email protected]> Subject: Re: [TMIC] hello out there To: "Dalton Garis" <[email protected]>, "Laura Beaudin" <[email protected]> Cc: "Barbara Alma" <[email protected]>, [email protected] Date: Tuesday, November 9, 2010, 8:34 PM Dalton, maybe you should start bugging your doctors again and see what else they could come up with. How can you have TM with no demyelination? Janice From: Dalton Garis Sent: Sunday, November 07, 2010 10:56 AM To: Laura Beaudin Cc: Barbara Alma ; [email protected] Subject: Re: [TMIC] hello out there Well; I was MRI-d this summer and they found no evidence of demyelination (but couldn’t rule out inflammation, of course). I have also been tested for epilepsy and they didn’t find any, but found pseudo-epilepsy—whatever that is. They did find “brainstem anomalies” in the MRI and the brainstem is the switching authority for the brain-body coordination. Then everyone lost interest. And that is as far as it has gone. I have a dr who keeps me in Lyrica prescriptions; but has no further interest in the case. Dalton From: Laura Beaudin <[email protected]> Date: Sun, 7 Nov 2010 09:47:05 -0700 To: Dalton Garis <[email protected]> Cc: Barbara Alma <[email protected]>, <[email protected]> Subject: Re: [TMIC] hello out there Dalton, Have you been properly screened for MS? Laura www.laurabeaudin.com <http://www.laurabeaudin.com> --NOT just another blog! http://practical-homeschooling.org On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis <[email protected]> wrote: Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs, torso or speech. Every time I tried to talk I would cramp up. And Elvis was definitely being channeled in my body. Thank heavens I had the assistance of a very nice and strong maid who visits me once a week. It was her day to visit and she stayed with me and helped me to the bathroom and into and out of chairs. It was hard to sit down because I couldn’t make my body bend and I’d just slide off. But we got it under control. She had to help me drink and eat. I would grab the coffee cup handle and then could not make my hand let go. In the mean time I was so grateful for her assistance and that the Lord was taking care of me that I was also as high as a kite and proposing marriage to chairs and such. Today was the beginning of the work week here (Abu Dhabi) and I did alright. But the lecture kept going off on these tangents making it hard for my class to take useful notes. It was because my mental state was still flying around the cosmos. What is going on here? OK, I have TM in my upper spine; but what is this mental derangement stuff? I sure wish the drs could find out what is wrong with me. Dalton From: Barbara Alma <[email protected] <http://[email protected]> > Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) To: <[email protected] <http://[email protected]> > Subject: [TMIC] hello out there Resent-From: <[email protected] <http://[email protected]> > Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
