That happens to me also. Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 12:17 PM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
another strange thing i have experienced is i would feel something wet
like on my leg or somewhere and think ,,what the heck,,then i would do what
comes naturally,put my hand there, and it would be dry where it felt wet.
even felt sweat going down my side when nothing would be there.
good ole nerves.
gotta love em.
--- On Wed, 11/10/10, Carol E <[email protected]> wrote:
From: Carol E <[email protected]>
Subject: RE: [TMIC] hello out there
To: [email protected], [email protected]
Date: Wednesday, November 10, 2010, 12:45 PM
With the exception of my face, I don't have any problems staying dry at
night. I very seldom get up during the night to go to the bathroom...maybe
once a month I have to get up. When I get up in the morning, I don't usually
have the urge and can't go even if I try. Then after 2 cups of coffee, my mind
decides it's time. Sometimes it's a quick process and other times it takes
forever, even though I feel like I am bursting.
Carol
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
------------------------------------------------------------------------
From: [email protected]
To: [email protected]; [email protected]
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600
Carol, how are you at staying dry during the nite? I have a real
problem with that and always have to wear protection and sometimes that doesn't
always work. Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and
have a real wetting problem and then I can go for a couple of weeks and stay
fairly dry. We can't
seem to pin down the reason for this. I am beginning to think on
the days that I don't take a nap (45min to hour) that I sleep too hard and
don't feel the urge until it
is too late. Time will tell. It is the pits!
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis
Subject: RE: [TMIC] hello out there
Carol E,
your sunday to present condition sounds almost exactly like mine.
heavy sigh.
--- On Wed, 11/10/10, Carol E <[email protected]> wrote:
From: Carol E <[email protected]>
Subject: RE: [TMIC] hello out there
To: [email protected], [email protected]
Date: Wednesday, November 10, 2010, 11:06 AM
I also have the residuals as Linda mentioned...burning,
banding, weakness, bladder control. Sometimes I can void normally (pre TM) and
other times I have to sit on the pot for 5 minutes to void. I feel like I am
about to burst, but nothing comes out. I wiggle and wiggle and finally a slow
trickle that takes maybe another 3 minutes. I would say about half the time I
void normally and half of the time, I don't.
This week, my back is killing me. It started Saturday with a
burning & itching sensation and then Sunday immense pain began about 3 inches
lower, about waist level and lower. My hips hurt and painful when I stand and
bear weight. I was taking Aleve for my discomfort and this week I graduated to
Vicodin and Flexeril. I'm not sure, but I think my pain is from spinal
stenosis and bulging disks instead of the TM. I have scheduled my 2nd Lumbar
Epidural for next week, if I still need it. Would have gone this week, but I
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.
What a zoo!
Carol
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
----------------------------------------------------------------
From: [email protected]
To: [email protected]; [email protected];
[email protected]
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700
This is what I have been told also. My lesions can still be
seen but they are inactive (C4,5,6). I was told they are like a scar. However,
I've seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding,
weakness - it's just that some days are better than others. It's going on 9
years for me. Hope you get to feeling better!
Linda in Eagle, ID
----- Original Message -----
From: Carol E
To: [email protected] ; [email protected]
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there
Hi Dalton and all,
I was 1st diagnosed with TM June 2005. I had lesions from
T7-T10. Every time I have new MRI's, I am always told that I have no new
lesions, but they can still see the old ones which are inactive. So I would
say the lesions do not go away, they are there like a scar.
Carol in Addison, IL
--------------------------------------------------------------
Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: [email protected]
To: [email protected]; [email protected];
[email protected]
Hey, Janice!
We missed you. And I missed you. Glad to have you back with
us.
I have a question for everyone. A recent set of MRIs showed
that my spine in the thoracic was clear with no lesions or swellings. It has
been one year since the diagnosis for TM.
Do these lesions clear up later on, or did somebody make a
mistake somewhere? Because my everyday symptoms are still weakness and pain
from fingers to just above the elbow, and from toes to above the knees with
banding and burning in the torso and back. And if I exercise at all, the next
day I am in for day-long spasms that leave me housebound and often unable to
get around without assistance of my dear part-time maid and helper.
Could someone get back to me on this?
Thanks a lot.
Dalton
--------------------------------------------------------------
From: Janice Nichols <[email protected]>
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis <[email protected]>, Barbara Alma
<[email protected]>, <[email protected]>
Subject: Re: [TMIC] hello out there
I do too, Dalton. You have a different set of problems
that I have not heard in other TM'ers. Sure wish you would get you act
together - scares me!!!
Seriously, I hope that is the last day you will have like
that.
Janice
From: Dalton Garis <mailto:[email protected]>
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma <mailto:[email protected]> ;
[email protected]
Subject: Re: [TMIC] hello out there
Actually;
I had a day-long attack of spasms yesterday which left me
unable to control either my hands and arms, legs, torso or speech. Every time
I tried to talk I would cramp up. And Elvis was definitely being channeled in
my body. Thank heavens I had the assistance of a very nice and strong maid who
visits me once a week. It was her day to visit and she stayed with me and
helped me to the bathroom and into and out of chairs. It was hard to sit down
because I couldn’t make my body bend and I’d just slide off. But we got it
under control. She had to help me drink and eat. I would grab the coffee cup
handle and then could not make my hand let go.
In the mean time I was so grateful for her assistance and
that the Lord was taking care of me that I was also as high as a kite and
proposing marriage to chairs and such.
Today was the beginning of the work week here (Abu Dhabi) and
I did alright. But the lecture kept going off on these tangents making it hard
for my class to take useful notes. It was because my mental state was still
flying around the cosmos.
What is going on here? OK, I have TM in my upper spine; but
what is this mental derangement stuff? I sure wish the drs could find out what
is wrong with me.
Dalton
--------------------------------------------------------------
From: Barbara Alma <[email protected]>
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: <[email protected]>
Subject: [TMIC] hello out there
Resent-From: <[email protected]>
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700
Well, I guess since nobody has written in that all must be
going well for everyone. It's very good to hear this. I do think that it is a
good idea to keep this list going though in case there are any newbies who may
need us and don't think there is anyone here to listen to them.
If a couple of days pass without any messages, let's send in
a message or two.
Hugs, Barbara A in Auburn CA
