Emily and John,

You're both in my prayers!!  Keep a positive attitude and we 
will too!
janh


----- Forwarded Message ----
From: Emily <[email protected]>
To: [email protected]
Sent: Thu, November 18, 2010 8:32:35 PM
Subject: [TMIC] My Husband's Update


 
I sent this update to our family and friends and wanted to share it with all of 
you:
 
Dear Family & Friends:
 
Here is the latest on John:
 
Yesterday's spinal tap failed.  John's body doesn't give up spinal fluid very 
easily.  This isn't the first time that it has happened.  As generous as John 
is, he is a tad stingy when it comes to spinal fluid!!  So the spinal tap has 
been put off for now and the lymph node biopsy is what will give the doctors 
the 
information they need to make an accurate diagnosis.
 
He had surgery today to remove a lymph node under his arm so they can send it 
to 
pathology to identify if he indeed has lymphoma and what type.  He has a little 
soreness under his arm but no pain.  He was getting ready to rest when I left 
this evening.  The doctor discussed the possibility of him going home tonight 
but John didn't feel that he is comfortable yet in his mobility so they are 
keeping him until physical therapy can get in to check his mobility and decide 
if coming home is an option right now.
 
They treat lymphoma of this non-Hodgkin's type with chemotherapy and steroids.  
The brain and spinal cord is a protected area and just putting chemo into his 
blood will not address the lesions that are in his spinal cord/column.  They 
need to get the chemo into the spinal fluid.  His resistance regarding the 
previous spinal taps dictates that they have to get it in there in another 
way.  
In the head there are 4 reservoirs that have spinal fluid in them....they are 
like little cups.  They will have to drill a hole into John's skull to put in a 
nickel size port (button like device) under the skin so they can get the chemo 
into the spinal fluid.  Then treatment can begin and each time he needs chemo 
they will put in the port in his head.  They will also have to get the chemo in 
his blood as well.  Of course this all hinges on the outcome of the pathology 
report on the lymph node.  John is very pleased with Doctor Henry and trusts 
him 
and feels confident that this is the right thing to do if necessary.  We are 
hoping that lymphoma is the cause of his Transverse Myletis because if it is at 
least there is a way to stop the lesions from getting any worse and causing 
more 
damage.
 
He had his first dose of steroids late this afternoon and the steroids usually 
help John rather quickly so hopefully tomorrow he will start feeling stronger.  
I will send another email out to the group as news becomes available.  Until 
then please continue to keep John in your daily prayers.  If your place of 
worship will allow you to put John on their prayer list, please do so, as this 
means so much to the both of us.
 
Love to all,
 
Emily

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