Thank you, Jude.  Your post is my first Christmas present of the year.  We have 
all been missing you and praying that you will be up to posting again very 
soon.  I miss Pam so much like you.  In fact, I have saved; many of the jokes 
she sent shorting before her death.  I go back and read them whenever I need a 
lift.  While doing so, I can almost hear her laugh

 

Like you a lot of our everyday living falls on my husband.  I am able to get 
around the house o.k., and I am able to do things like the laundry, cooking, 
some cleaning, but all the rest falls  on my husband.  We are both lucky to 
have such wonderful men in our lives.

 

I will be looking forward to hearing from you more often.  I hope you have a 
very Merry Christmas!

 

Patti  Wisconsin

 

From: Jude Hoops [mailto:[email protected]] 
Sent: Tuesday, November 30, 2010 2:11 AM
To: [email protected]
Subject: [TMIC] 

 

Hello Group,

 

This is Judy Hoops (Jude) and it has been quite a while since I have written to 
the site.  No reason why, except that maybe I needed a break from all of the 
talk of the “blusey” side of the disease.  I try to maintain a positive 
attitude, but since the death of my best TM friend, Pam Montz, I needed a long 
break before I could once more become an active participant of the group like I 
used to be.

 

For new members, I have had TM for somewhat more than eight years, can’t recall 
due to memory dysfunction, and other related symptoms of TM, for one being a 
difficulty in typing, where I used to be a whiz...maybe just a matter of 
continuing to do it on a regular basis.  I am paralyzed from T3 (breast level 
with the use of my arms, Thank God.)  I have horrible continuous pain from T3 
on the Spinal Column to the tips of my toes.  I am not able to walk, use a 
wheelchair to get around and spend a lot of time in bed just because of 
laziness.

 

We have no children and do not have a large social group and no family to speak 
of.  My husband wanted property so we moved out of our living area where we had 
resided forever, to a small, and I mean “small” village where we have 5 acres 
and a nice two story home, which we bought before I became ill.  Now, the house 
makes no sense whatsoever and I am able to use only a small portion of it; my 
bedroom, which used to be the den, the kitchen/dining area and living room.  I 
have spent so long in my bedroom that I have forgotten what the rest of the 
house looks like.  It’s either that or the memory difficulties which I just two 
days ago began taking meds to, hopefully, reverse the dysfunction.

 

OK, that’s all I can muster for my first time back.  What’s going on with all 
of my old friends?  Let me know.

I love you all,

Jude

 

Anyway, I make use of the three rooms, but my husband does all of the cooking 
and eats in my room with me, and he takes care of all of the remaining 
household chores that I cannot do because of the constant intense pain I 
experience 24/7.  I have pain meds, but hate to take them because they turn me 
into a “zombie” and it affects most of my “normal” human existence, as it is.  
Most of you know what I mean, the rest of you will catch on the longer you have 
TM and continue to read these excerpts.  

 

       

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