I think that is pretty accurate for all of us.    By mid day, we poop out.     
I get my “have to” stuff done in the morning, then rest.
Janice

From: Butcher, Bernie (S&FS) 
Sent: Tuesday, December 07, 2010 10:36 AM
To: CANDIS KALLEY ; tmic-list 
Subject: RE: [TMIC] Meds

My Neuro suggested I do anything to save strength. Take showers at night, get 
an electric wheelchair

Which I did, and I feel OK until about 3 PM, then I fall apart, every day. I 
try to plan activities early in the day, but it’s hard, for example: If I’m 
gong to a wedding, it’s always late in the day.

On weekends, it’s a nap at 3, Saturday and Sunday.

 

BERNARD BUTCHER

Honeywell Engineering

516-577-5868


--------------------------------------------------------------------------------

From: CANDIS KALLEY [mailto:[email protected]] 
Sent: Tuesday, December 07, 2010 10:32 AM
To: tmic-list
Subject: Re: [TMIC] Meds

 



I tried the Amantadine 100 mgm AM & PM with not affect.  I've given up on 
trying to fight the fatigue! 

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

----- Original Message -----
From: "Linda Egli" <[email protected]>
To: [email protected]
Sent: Tuesday, December 7, 2010 10:19:41 AM
Subject: Re: [TMIC] Meds

Provigil was the first drug I was given for severe fatigue in 1994 (when I was 
first dx) & it did nothing but keep me awake about 20 hours a day.  I take 
Amantadine 100 mgm AM & PM, & it has been the only thing that helps.  If I am 
having one of my "not so good days" nothing helps. 

Linda E. 

East Texas

 


--------------------------------------------------------------------------------

From: CANDIS KALLEY <[email protected]>
To: tmic-list <[email protected]>
Sent: Tue, December 7, 2010 6:28:11 AM
Subject: Re: [TMIC] Meds

I have tried provigil with no affect!  I have yet to find ANYTHING to help with 
the fatique!  If anyone knows of anything to help with fatique I'd also like to 
know!
I've tried the vitamins and suppliments that helped BEFORE TM with no help with 
the fatique!  The TM fatique is horrible!  

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

----- Original Message -----
From: [email protected]
To: "TMIC" <[email protected]>
Sent: Tuesday, December 7, 2010 12:01:58 AM
Subject: [TMIC] Meds

Hello -                          I am taking baclofen and topamax from nero dr. 
Other dr suggested provigil. Ins does not cover & very costly! Anyone on this - 
that could tell me if it helps with fatigue or your experience with it.      
Thanks. 
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