---------- Forwarded message ---------- From: <[email protected]> Date: Mon, Feb 21, 2011 at 7:08 AM Subject: RE: [SPAM] CCSVI and TM To: James Berg <[email protected]>
A number of physicians in the United States are currently providing endovascular treatment for patients with CCSVI. Of these, some have made their work public, while others prefer to remain private, accepting new patients primarily through word-of-mouth. Still more doctors are actively working to begin providing treatment, either by setting up private practices or waiting for approval from the Institutional Review Board of their organization. Nonetheless, for many wanting treatment, the options remain few and may require out-of-pocket medical expenses and travel. However, at this time, CCSVI Alliance is hesitant to publish a list of all known doctors providing treatment. First, some physicians simply do not want their names publicly listed. Second, we are uncertain whether any such list would legally or even tacitly imply that CCSVI Alliance vouches for and endorses these doctors when in fact we may or may not be familiar with their practice. Still, we understand the imperative to make treatment providers available to those seeking treatment, and we are actively exploring options for collaborating with treatment centers and treating physicians to post useful information for potential patients. Until we have our process in place, we suggest the following options: · See our *Discussing CCSVI with Doctors* document for tips on how to discuss CCSVI with various types of physicians. · Search for potential CCSVI treatment providers on the CCSVI section of ThisIsMS: http://www.thisisms.com/forum-40.html (Note again, however, that CCSVI Alliance does not endorse or vouch for physicians you may find) · Reach out to Interventional Radiologists via http://www.sirweb.org · Discuss treatment options with your physician team Regards, CCSVI Alliance -------- Original Message -------- Subject: [SPAM] CCSVI and TM From: James Berg <[email protected]> Date: Sun, February 20, 2011 6:48 pm To: [email protected] The results seen in CCSVI patient home videos is really exciting. Transverse Myelitis patients have been helped but the medical industry and the insurance people are blocking us from having the procedure. I have a friend who was all set to have the procedure done in albany but the insurance people stopped it at the last minute. My main reason for writing this is to findout if CCSVI is being done is Hawaii and by what Dr. I am convinced it will help me but I want to bypass the road blocks and just get it done. can you help me with this? Jim Berg Kapaa, Kauai Hawaii 96746 ALOHA 808-658-0356
