No more than Dr.s know about TM I believe that any research they are doing anywhere is good. and no more than they know and all that is available to us from what they have found I reckon any guess is good. I'm just glad that the function dictates rule works for us as we share what has made a difference
A scary thought and yet perhaps a thankful Thought Dalton is I fear most people that were attacked as hard and high on the spine as you were cannot tell us of any differences that have worked. Thankful in that you can spring back and fourth in your episodes and vent frustrations and share experience. --- On Sat, 4/16/11, Dalton Garis <[email protected]> wrote: From: Dalton Garis <[email protected]> Subject: Re: [TMIC] Stem Cell Research To: "Susan Ebling" <[email protected]>, "James Berg" <[email protected]> Cc: "john snodgrass" <[email protected]>, "transverse myelitis" <[email protected]> Date: Saturday, April 16, 2011, 11:13 PM So: If the sheath grew back, would you still see damage to the cns via an mri? Or would it show that things looked "clear"? I have had tough time with attacks of contractions, first across the back, then across the front. And pain and weakness in both arms and legs, pain and buzzing to just above the elbows and knees, and banding and numbness in crotch, no stamina, so forth. I also get confused and can't line up things as before. Dr sauid "anomalies" in brainstem, on the pons. Any ideas??? Dalton From: Susan Ebling <[email protected]> Date: Sat, 16 Apr 2011 19:31:06 -0500 To: James Berg <[email protected]> Cc: john snodgrass <[email protected]>, transverse myelitis <[email protected]> Subject: Re: [TMIC] Stem Cell Research Resent-From: <[email protected]> Resent-Date: Sat, 16 Apr 2011 17:31:39 -0700 James I am sorry to hear that TM took that much from you. I have a very strong right leg and a spasming, crazy, "buzzing" left leg. I am told I am "lucky". . . but I have a serious 'hitch in my get along'! (not to mention the other affects of TM). take care Susan On Sat, Apr 16, 2011 at 6:30 PM, James Berg <[email protected]> wrote: How much mobilitiy do you have? The prliminary research done on rats, took them from being unable to walk to total repair. I know that is the goal of the Shepherd research- Myself, I have no legs at all, nada--plenty of spasms, painful vibrating or buzzing and a very stiff belly band. MRI shows no improvement, nor any enlargemnt of the lesion. On Sat, Apr 16, 2011 at 11:58 AM, john snodgrass <[email protected]> wrote: what did i get a miracle or just sheath regrowth? My Neuro told me that the mri showed last year that the sheith had grown back. i asked why did i still have these problems? he said it is the damaged nerves inside. he said if the sheith were still damaged then i would have worse problems because of no insulation surrounding that area of the cns. whatever the deal,i am thankful that the problems are not worse! bad enough as it is,,,,,,, so if this new research can lead to helping others with cns problems,,i wish them God speed! seen a video,,a lot of people need it everyday ! --- On Sat, 4/16/11, Susan Ebling <[email protected]> wrote: From: Susan Ebling <[email protected]> Subject: Re: [TMIC] Stem Cell Research To: "James Berg" <[email protected]> Cc: "transverse myelitis" <[email protected]> Date: Saturday, April 16, 2011, 3:40 PM encouraging news. thanks for the update On Sat, Apr 16, 2011 at 2:36 PM, James Berg <[email protected]> wrote: Checking with Shepherd Center in Atlanta who started a Research project in October to regrow the mylin sheath with stem cell injection, I was pleased to see that there are now 5 organizations doing the same research in order to verify results--verifying results is very important to get the FDA to approve a procedure--assuming they all get positive results (am I wishing for too much?) this would speed up the approval and get it on the market so much sooner. Of course the cost will probably be beyond most of our abilities to pay Results to be announced Oct. 2012. -- Susan L. Ebling -- Susan L. Ebling
