thanks for sharing that Deb,sounds like the many that we are and the few that understand. I always say, tomorrow will be better. and it will! someday. had myself ready to go to church this evening but @ 5 I had to off the clothes,,,back to short pants and a T-shirt, clothing was burning my legs and feet so bad i couldn't stand it. but tomorrow will be better!
--- On Wed, 5/25/11, Deb Monteleone <[email protected]> wrote: From: Deb Monteleone <[email protected]> Subject: RE: [TMIC] Bladder/Spasms To: "'john snodgrass'" <[email protected]>, "TMIC" <[email protected]> Date: Wednesday, May 25, 2011, 8:57 PM Hi John, I have same thing, I also thought feeling pain in both legs and feet meant I was getting better. It’s been around 2 years now and the pain is still there and unbearable at times, even with all the medications. I am never comfortable except when I first wake up and stay still, if I move a toe or two, the pain starts in for the rest of the day. I have a Roho cushion at home and work, those are the only chairs that don’t kill me. So, it is not enjoyable going out to eat or events, from the moment I get there I just want to go home. I was diagnosed with TM caused by MS and it sucks. It basically took any and all enjoyment from my life. I keep hoping one day it will get better, every now and then the pain changes and I say Ok this is it. Not yet. Now the spasticity is feeling left out and decided to get worse. Some days I just don’t know what to do. Make it a great day,Deb From: john snodgrass [mailto:[email protected]] Sent: Monday, May 23, 2011 10:14 AM To: transverse myelitis Subject: RE: [TMIC] Bladder/Spasms sad part about my nerves coming alive is that it turned numbness into pain. pain that i cannot seam to manage. --- On Mon, 5/23/11, Patricia Cooley <[email protected]> wrote: From: Patricia Cooley <[email protected]> Subject: RE: [TMIC] Bladder/Spasms To: "'Janice Nichols'" <[email protected]>, "'TMIC-LIST'" <[email protected]> Date: Monday, May 23, 2011, 9:53 AMJanice I don’t have leg spasms but if I am sitting or it has been a while since I made a trip to the bathroom, I get a pain in the area just above the pubic bone. That tells me it has been sometime since I went potty. The pain also wakes me at night so again I go. I have noticed that when I am going the pain slowly goes away, and by the time I have emptied my bladder the pain is gone. That has been happening for about the past year, and my urologist is aware of it and is not concerned. I believe that maybe some nerves are now coming alive, and least I hope so. Patti From: Janice Nichols [mailto:[email protected]] Sent: Sunday, May 22, 2011 5:21 PM To: TMIC-LIST Subject: [TMIC] Bladder/Spasms Got a quick question - Have any of you noticed that when you are sitting for a while and your legs start spasming, if you go to the bathroom, it settles down? I don’t knowif it is my imagination or if that is something to this. Haven’t heard from anyone for a while – everything okay? Take care, Janice
