She takes the lyrica dos t work for her at all but thank u for the information
Sent from my iPhone On Jun 1, 2011, at 11:50 AM, Dalton Garis <[email protected]> wrote: > You bet, and you bet. > > The higher the lesion the more dangerous it is since it effects everything > below, with the thoracic affection upper torso, limbs, breathing, swallowing, > etc. > > And Lyrica for the burning. Worked fantastically on me. > > Dalton > > > From: Tracy Lea Bell <[email protected]> > Date: Wed, 1 Jun 2011 10:35:23 -0500 > To: "[email protected]" <[email protected]> > Cc: jeff bernier <[email protected]>, tmic <[email protected]> > Subject: Re: [TMIC] the run around > Resent-From: <[email protected]> > Resent-Date: Wed, 1 Jun 2011 08:36:24 -0700 > > Quick question to anyone that may know my mom's lesion is on t12 is there a > difference on the location on your spine as far as tm goes? This may be a > dumb question. Also has anyone found anything that works for the severe > burning she has on her feet? All of the medication she is on gives her no > relief. > > Sent from my iPhone > > On Jun 1, 2011, at 10:02 AM, "[email protected]" <[email protected]> wrote: > >> Hi, >> You're right,it is a circus. >> I got tm on 8/13/95. MRI showed lesion from T4-T5. Started out paralyzed >> from T4 to toes. Now numb in that area,with a few areas of hypersensitivity >> on left side. I have bladder/bowel problems,spasms,numbness and tingling. I >> walk with a walker. >> A year or so after dx. I had a flare-up and had another MRI. The original >> lesion was gone. My dx remains tm. I've never had an LP. >> Are your docs planning another LP? Why do they say there is not any sign >> of demyl from the spinal fluid? Isn't that what made them think (along with >> the spot on the brain) it was MS? I'm confused! >> Cheryl in Easthampton,MA >> >> --- On Wed, 6/1/11, jeff bernier <[email protected]> wrote: >> >> From: jeff bernier <[email protected]> >> Subject: [TMIC] the run around >> To: [email protected], [email protected] >> Date: Wednesday, June 1, 2011, 10:24 AM >> >> >> hello,i havnt posted on here in years,recognise most of you and see alot of >> new names,just thought i would throw this out there and see what you all >> think. >> in feb 2000,i fell through a staircase fighting a fire and landed on my >> heels,i had a shockwave go up my spine and went over on my head.had no >> sighns of numbness or the pins and needles untill 3 weeks later,it got so >> bad i started falling on my face and became so weak the wheelchair was the >> only other option,i was given all the ms test and came up neg,but they found >> lesions on my c spine and were extremely quick to call what i had transverse >> myelitis ( inflamation of the spinal chord ).through the course of 5 years,i >> went through all the crap that comes with ms,everything from >> spasms,bladderdisfunct,sexual problems etc etc and experienced every range >> of emotion there is.in 2005 i was dx with ms after a positive lp and a small >> lesion on the brain,the lesions on the c spine were gone and i thought i was >> finally going to get some answers.well in jan i had a repeat mri done and >> found the spot on the brain is still there,but was told the spinal fluid >> they took in 2005 showed no sighns of demyl and they changed my dx back to >> tm.now how frustrating is that? 11 years,22 doctors,3 major hospital centers >> and 15 therapy centers later to be put back to square 1 with still no >> answers.what a circus. >> >> DIPLOMACY DOES NOT >> WORK WHEN DEALING WITH >> NUT'S HELL BENT ON >> DESTROYING US. >> >
