it is quite odd when you look at the size of the directory we get compaired to the few people we have met in these groups.Im sure some dont know and some dont want to know.
--- On Tue, 8/30/11, kevin weilacher <[email protected]> wrote: From: kevin weilacher <[email protected]> Subject: Re: [TMIC] gone to facebook To: "Jeron Rampersad" <[email protected]>, "[email protected]" <[email protected]>, "[email protected]" <[email protected]>, "[email protected]" <[email protected]> Date: Tuesday, August 30, 2011, 10:06 AM Hello all, I'm still a member here too...and read every single post that comes from this group....and this group still has it's place in the TM Community...because for some, this is the type of correspondence that they are comfortable with...But....I started the TM Folks group on Facebook first of all, for those of us that were already on Facebook and wanted to connect that way....and second, is because the majority of the "newbies" that are younger and also the ones that are now coming on board.....generally look to Facebook for a group that is pertinent to them... I have had literally dozens of people that have had TM for a long time...and have never reached out to any of the TM communities before...for whatever reason.., and now they have decided to reach out and they have gone to Facebook to look for others... When I made the TM Folks group....I made it so that it is a "closed" group...meaning that none of the posts that are made in there, can be seen by anyone other than the other members....so that assures us some privacy and saves some of our dignity too....because some of the things that are talked about, are obviously, of a very personal nature. Other people within Facebook can search for 'Transverse Myelitis" and the group will appear,(except for the posts) but a person has to request to be allowed into the group, they can't just join... The one other thing that I like about the Facebook group...is that you can chat with others that are within the group.....if there are others, that are online and they are on your "friends" list...you have a private group chat box, and you can chat away..... The one drawback as Bobberino said...is that you do get inundated with emails...every time someone posts, an email gets sent out... but, that can be changed, by editing your settings in the group....It's a very easy thing to do... Anyway, the group is extremely active...there is always something going on, information being put out there...or whatever...I didn't mean this to be a "sales pitch" for the group...I just wanted to explain so that folks understand a little more about the Facebook group... As I said, this group here still has it's place....and hopefully always will...because there are those that just feel more comfortable with this type of format...and I'll continue to be a member for as long as this group stays around too... Mindy Edwards-King and Greg Sapp are my co-admins on there... Thanks all....and keep posting here... Kevin WeilacherN.E. Ohio (Canton) From: Jeron Rampersad <[email protected]> To: [email protected]; [email protected]; [email protected] Sent: Tuesday, August 30, 2011 7:51 AM Subject: RE: [TMIC] gone to facebook Hey guys, I too am on facebook, but to me this seems more appropriate. I get honest and open discussions from you guys and that's something I need to have. On facebook your privacy is not kept and sometimes things I'll say on here aren't things that i would share naturally with family or friends that don't understand TM and the life that I am forced to endure. Also, with my current situation, going through a messy divorce and traveling by myself for the last few months, I'd like to be as discreet about my life as possible. I can only find solace here and you guys give more value to my life than the people I'd always pray would understand instead of thinking of me as a burden. So, I'm always going to be right here.....where I found the most beautiful bunch of people on the planet. Jeron, from Planet Earth! Date: Tue, 30 Aug 2011 04:03:18 -0500 From: [email protected] To: [email protected]; [email protected] Subject: Re: [TMIC] gone to facebook Hi Linda et all, I'm still here with ya'll, but I do have the Facebook along with this. And I wouldn't dream of leaving this list either. This is where it all began, and it's like a warm blanket. I don't post much as it's always the same, day after day; nothing to report. But that has a good side I guess.... lol. Take care and God Bless! Peace, Bernie in burning Texas
