Looking through the human services stuff, it seems a lot of stuff is geared towards "developmental disability", deafness, blindness, and homelessness. For people who become disabled, most of the resources are geared toward putting them back to work. Or helping them focus on being independent on their own. I'm not finding a lot of exceptions for folks who can't become independent with their disability. What makes the difference in a quad or para and a child who was born with CP? I'm not sure I get it. Does the governor have ombudsmen? This seems to be an oversight.
Date: Sat, 8 Oct 2011 09:30:25 -0400 From: [email protected] To: [email protected] CC: [email protected]; [email protected]; [email protected] Subject: RE: [TMIC] Pyrrhic Victory? I have those same thoughts when I read the things Akua goes thru day to day. I remember the first time I went grocery shopping after TM. My 76 year old (at the time) Mom took me and a 9 year old boy carried the bags from the car to the house. I would do your grocery shopping if I lived near you. Akua, have you contacted a local church? Most people don't know where to find an individual who needs a helping hand. See if you local paper would start a column of "people in need". Not financial, but physical labor needs. The paper might run it in their want ad columns free of charge to the person seeking help as a "charitable endavor." Patti - Michigan On Thu, Oct 6, 2011 at 8:38 PM, PAMELA S wrote: No kidding! Akua; if I lived close by I would vacuum your floor. I can do that now. Pam ___________________________________ Date: Thu, 6 Oct 2011 04:39:41 -0700 From: [email protected] Subject: Re: [TMIC] Pyrrhic Victory? To: [email protected]; [email protected] it is a sad thing that this is done in regulated areas as well as unregulated areas in our lives. this is the very mindset that has brought our country to the embarrassing financial situation we are in.waste,fraud,,greed greed greed. and we the people suffer loss of what would be good service because of it,and in the economical way we have to go we need service. service is costly but if it is a good service and done with dignity it doesn't matter what type of service,it adds quality to all our lives. the Christian bible has a book tagged "proverbs" and it is full of service suggestions that win every single time. Prosper and live long Akua,,I understand your struggle. Be it implied,imposed,self imposed,or whatever a struggle is a struggle and everyone doesn't look for the good of his fellow citizen. spread some honey out when ever you can,,,,,,it attracts worker bees. crap just attracts biting flies. God knows i have had the flies! ___________________________________ From: Akua <[email protected]> To: [email protected] Sent: Thursday, October 6, 2011 1:32 AM Subject: [TMIC] Pyrrhic Victory? I have an aide come once a week for two hours. I would like more time and more help as those two hours are spent grocery shopping, so I get no help around the house. But I can't afford more. The Home Health Care agency charges $25 an hour for her and I was fortunate to be granted a subsidy from United Way, so I only have to pay half. But that's still $25 a week additional for groceries. They had a nurse come every six months. This I never understood, as she either harassed my aide and made me lose part of the precious two hours as she asked inane questions, or she came and asked me to show her my "care plan." The last time the nurse was here in the spring, she insulted and threatened me. I swore she would not enter my house again and I wrote a letter about what occurred, but decided against sending it. Two weeks ago the nurse called me, and in her usual rude and cavalier way,left a message telling me told me she would be over the next day. I called and said would not be available. Then i called the agency and said that I did not want anymore dealings with this person and could they please find someone else to send. The head of the agency said they only had one person to do this. I said i didn't understand why this had to be done... why was a nurse necessary? I reminded her that i had used their services for 3 years now, that i was very happy with my aide, but was not going to voluntarily submit myself to insult and distress. The head went on to try to persuade me/dissuade me by telling me that their one other nurse covered another territory. To which i had nothing to say. This was their requirement and it made no sense to me. This week she called me and left a message saying call her. I really dislike messages that don't have information and when i returned the call-- 90 minutes later, she was to be out of the office for the next two days. I was directed to the second in command who said that i was going to be reclassified. Reclassified? I said i have one person, once a week, for two hours who goes shopping. Well i would be reclassified so that a nurse wouldn't have to come. I said nothing. Since getting TM i find it hard to follow illogic and agree with it. But on further reflection I think they got money that i didn't pay for having a nurse attributed to my account and perhaps United Way picked up the tab, to the tune of $75/hour and they were able to continue with this subtle fraud until I refused to have the nurse come harass me again. But that's 3 years of unnecessary nonservice and easy money for that firm. It's a dirty shame. I'm glad i didn't cave on this. Akua --
