Without Baclofen the spasms don’t go away. I can be up until 4:30am with spasms. But, like I said, I have learned to take Baclofen during the day too, to really work at night. Janice
From: Dalton Garis Sent: Monday, November 28, 2011 10:44 AM To: [email protected] ; 'Susan Kleinz' ; [email protected] Cc: 'tmic' Subject: Re: [TMIC] quiet ot I only get spasms when I fall asleep. Then I get these really big ones that twitch the whole body. Really explosive! But they go away on their own. Dalton From: Emily <[email protected]> Reply-To: <[email protected]> Date: Mon, 28 Nov 2011 11:39:29 -0500 To: 'Susan Kleinz' <[email protected]>, <[email protected]> Cc: 'tmic' <[email protected]> Subject: RE: [TMIC] quiet ot Resent-From: <[email protected]> Resent-Date: Mon, 28 Nov 2011 08:42:14 -0800 Has anyone used Clonopin (not sure of spelling)? If so, did it help with the spasms? ------------------------------------------------------------------------------ From: Susan Kleinz [mailto:[email protected]] Sent: Monday, November 28, 2011 11:34 AM To: [email protected] Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two lesions are at T-7, so I do not have the brain thing going on. My first episode, I did have slurred speech...as there is a 3rd lesion in my brain that doesn't seem to be activated now. I would take any drug that would help me. Ritalin included. I'm on Baclofen, Neurontin, Zoloft and Savella. I should be smiling all day long! I am grateful to this website. I joined the TM Association and received a bunch of good literature. Also ordered The Official Patient's Source Book on TM. I am amazed that my neurologist didn't recommend these resources. Nor did I know how rare this illness is... My husband says I'm one in a million. Susan K., Phoenix, AZ On Nov 28, 2011, at 7:10 AM, [email protected] wrote: I hope everyone is ok. It has been very quiet on this site since before Thanksgiving or maybe I amkicked off again. Missing you. Jane/Splendora Tx
