They also use immunoglobulins and pasmapheresis in TM patients when steroids don't work. No proof that they work yet, same as steroids, just it works for some and not for others, and some doctors are willing to give it a try when nothing else works. I prefer the doc who gives things a try myself.
From: [email protected] To: [email protected]; [email protected]; [email protected]; [email protected] Subject: RE: [TMIC] we have a female child family member with TM symptoms Date: Wed, 11 Jan 2012 11:35:49 -0800 According to the buzz.com list of auto-immune diseases: Guillain-Barré Syndrome: It is an autoimmune disorder which affects the peripheral nervous system. It is normally initiated by some acute infection. The characteristic of this disease is the weakness which starts with the lower limbs and rapidly grows in the ascending order. In this disorder, failure of the respiratory system is of the highest concern, hence, the treatment mostly starts with the intubation of the patient. Once the patient is stable, the treatment mostly includes of immunoglobulins or plasmapheresis. From: Emily [mailto:[email protected]] Sent: Wednesday, January 11, 2012 10:41 AM To: [email protected]; [email protected]; [email protected] Subject: RE: [TMIC] we have a female child family member with TM symptoms With that many people in the same family….maybe all of you should be tested for Gillian B??? From: [email protected] [mailto:[email protected]] Sent: Wednesday, January 11, 2012 1:22 PM To: [email protected]; [email protected] Subject: Re: [TMIC] we have a female child family member with TM symptoms She is in my prayers. Jane/Splendora Tx In a message dated 1/11/2012 12:15:15 P.M. Central Standard Time, [email protected] writes: Mary woke up yesterday morning and could not raise up (sit up) or walk. She is at children's hospital. The onset sounds like TM. Mary is my mom's great niece and my 3rd cousin. I have not been able to talk with family members and found out through word of mouth. Mary's uncle, my 2nd cousin, was struck with similar event about the same time that I was hit with TM. But Adam was diagnosed with Gillian B. (can't spell that word and won't try). So we are concerned about the issue but I am concerned about the doctor's getting it right.
