My you be ever blessed, Kevin. Thank you as always for sharing. I'm so glad to read that AT LAST you have a good aide. I remember some of the issues you had with help.
I was similarly told that I would get more help if I went on Medicaid. And I was advised to get Medicaid buy-in which would cost an outrageous amount of money -- i don't remember the amount but at the time it was more than a mont's food and mortgage. YEs it would help me a lot to have an aide more than once a week for two hours… I asked for more time but was refused --- I don't have enough for the full rate -- $25/hour. I appreciate your calming tone. Thank you! I'll just cry tonight and be better in the morning. That all be well, Akua On Apr 2, 2012, at 12:28 PM, Kevin Wolfthal wrote: Akua, I live in a big city. Even though there are some organizations that help the disabled, it seems the big push from social workers and even nurses, is that I should go on medicaid in order to get the most services. My Parents, (gone now), and I, worked hard for many years to have a little security and comfort. Going on Medicaid means divesting all of ones assets but for the bare minimum, and having the state own your soul. No thank you! So I own my own condo that I inherited, but I live in a building that offers the bare minimum of access, and the workers are hostile to me. I struggle to make ends meet on SSDI. I even received an anonymous handwritten threatening message a few months ago, which I have discussed with the police. Nothing they can do right now. My saving grace is my aide who cooks, cleans and shops for me 4 days a week. I would move to a more accessible and friendly place if I was not so physically depleted and could afford it. You are not alone in having to make the best of a difficult situation. There is no guarantee of sensitivity even from other disabled folks, though we hope that those in similar circumstances have more understanding, it's not always the case. This group has given more support than most I've found, but misunderstandings happen, as in most relationships. Hoping you find answers and help for your needs. Kevin [email protected] wrote: > What hurts, Bernie, is the *Victim-blaming* implicit in the question " why do > you stay" > and whole passive agressive "if you don't like it just go somewhere else" > it *pushes a button* in me, of other causes and other efforts > where, when one protests ill treatment, one is told > > *to pack up and go* > > And the sad, bad part is EVEN IF I WANTED TO I CAn't > > but the worst part is, i*f i could, i would but if i could, then i wouldn't* > *want or have to...* > * > * > *if i could marshall the resources to move, i could marshall the resources* > *to make it better, to fix it…* > * > * > but that doesn't even get to the why should i be the one to leave my home > that i worked so hard to get and give up my little yard and the trees i > planted > and all my tools and equipment? > * > * > * > * > * > *
