Granted...the Facebook groups aren't for everyone...but a large majority of people are actively seeking out the groups now.... In the TM Folks group, the majority of the info posted, is TM related...and of course, there is the occasional post that takes a different turn off subject. Personally, I like off subject posts on occasion.....it's kind of nice to hear about something non TM related once in awhile. It takes my mind off of the TM and gives me something new to think about... I don't like dwelling on TM 24/7 so when there is something new that's posted, it's kind of refreshing.
As far as a person's mailbox getting filled up....that doesn't happen anymore. Facebook changed that. You now have to sign up to get daily posts in your mailbox.... Prior to that, you could set the parameters to not receive the posts to your mailbox. The way the groups are set up now....Facebook is a great way to network with others in your own area and also to go into the chat room and chat real time. It's all personal preference....and Facebook works for me... ________________________________ From: Robert Pall <[email protected]> To: [email protected]; [email protected] Sent: Thursday, May 17, 2012 7:11 PM Subject: Re: [TMIC] Is anyone here? I have been on the Facebook TM rooms and found much too much chatting and not enough TM info. My mailbox was constantly filled with just chit chat. I hated when this happened in our group and I still do. I like to hear how people are doing but I do not want qan hour by hour dialogue. Sorry but the facebook group does not work for me! Rob in New Jersey -----Original Message----- From: kevin weilacher <[email protected]> To: Bernie Pelow <[email protected]>; rn11974 <[email protected]>; TMIC <[email protected]> Sent: Thu, May 17, 2012 5:31 pm Subject: Re: [TMIC] Is anyone here? Actually, The best Facebook group is the Transverse Myelitis Folks group... https://www.facebook.com/groups/TMFolk/ That is where you'll find the most activity and the majority of the old timers that were on this group.... It is a closed group meaning that only people that are members of that group can see what it being posted, that way we can chat about some of the more personal things regarding TM and not worry about the rest of your Facebook friends reading about it... and also, the group welcomes family members and caregivers with open arms... If they are interested in being active in someones dealings with TM, then they are welcome to join in and see for themselves what we are going through. I hope to see some of you there.. Kevin ________________________________ From: Bernie Pelow <[email protected]> To: "[email protected]" <[email protected]>; TMIC <[email protected]> Sent: Thursday, May 17, 2012 9:56 AM Subject: Re: [TMIC] Is anyone here? There is a specific group on Facebook called "People Living with Transverse Myelitis" that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search "People Living with Transverse Myelitis" and click 'join' and it takes about a minute to be accepted. Looks interesting to me, and can't wait to chat with folks one on one without waiting hours or days for a reply. Might want to check it out. peace, Bernie in Texas
