Granted...the Facebook groups aren't for everyone...but a large majority of 
people are actively seeking out the groups now....
In the  TM Folks group, the majority of the info posted, is TM related...and of 
course, there is the occasional post that takes a different turn off subject.
Personally, I like off subject posts on occasion.....it's kind of nice to hear 
about something non TM related once in awhile. It takes my mind off of the TM 
and gives me something new to think about...
I don't like dwelling on TM 24/7 so when there is something new that's posted, 
it's kind of refreshing.

As far as a person's mailbox getting filled up....that doesn't happen anymore. 
Facebook changed that. You now have to sign up to get daily posts in your 
mailbox....
Prior to that, you could set the parameters to not receive the posts to your 
mailbox.

The way the groups are set up now....Facebook is a great way to network with 
others in your own area and also to go into the chat room and chat real time.

It's all personal preference....and Facebook works for me...



________________________________
 From: Robert Pall <[email protected]>
To: [email protected]; [email protected] 
Sent: Thursday, May 17, 2012 7:11 PM
Subject: Re: [TMIC] Is anyone here?
 

I have been on the Facebook TM rooms and found much too much chatting and not 
enough TM info. My mailbox was constantly filled with just chit chat. I hated 
when this happened in our group and I still do. I like to hear how people are 
doing but I do not want qan hour by hour dialogue. Sorry but the facebook group 
does not work for me!
Rob in New Jersey
 


-----Original Message-----
From: kevin weilacher <[email protected]>
To: Bernie Pelow <[email protected]>; rn11974 <[email protected]>; TMIC 
<[email protected]>
Sent: Thu, May 17, 2012 5:31 pm
Subject: Re: [TMIC] Is anyone here?


Actually,
The best Facebook group is the Transverse Myelitis Folks group...  
https://www.facebook.com/groups/TMFolk/
That is where you'll find the most activity and the majority of the old timers 
that were on this group....
It is a closed group meaning that only people that are members of that group 
can see what it being posted, that way we can chat about some of the more 
personal things regarding TM and not worry about the rest of your Facebook 
friends reading about it...
and also, the group welcomes family members and caregivers with open arms...
If they are interested in being active in someones dealings with TM, then they 
are welcome to join in and see for themselves what we are going through.
I hope to see some of you
 there..
Kevin



________________________________
 From: Bernie Pelow <[email protected]>
To: "[email protected]" <[email protected]>; TMIC <[email protected]> 
Sent: Thursday, May 17, 2012 9:56 AM
Subject: Re: [TMIC] Is anyone here?
 

There is a specific group on Facebook called "People Living with Transverse 
Myelitis" that you can join. it's like this, but you can chat with people live 
without emails, and also share as we do here. I just got the invite on 
Facebook, or you can join and search "People Living with Transverse Myelitis" 
and click 'join' and it takes about a minute to be accepted. Looks interesting 
to me, and can't wait to chat with folks one on one without waiting hours or 
days for a reply. Might want to check it out.
peace,
Bernie in Texas

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