Bridget, glad you are doing to see a someone about the bladder retention. I had a urology specialist and it did really help. Still have problems, but can empty my bladder completely on my own. Problems are at night when I make a lot of urine and don’t feel it enough to wake up and go to the bathroom. I seem to go in cycles of heavy flow of urine at night and then a short while of being fairly dry when I wake up in the morning. Go to bed with lots of protection. I know that I will probably not ever be much better with this problem, but at least I do not have to cath any more.
Janice From: [email protected] Sent: Monday, November 12, 2012 2:49 PM To: Jde Cc: tmic Subject: Re: [TMIC] Looking for input. solving a problem urinating > Is it just as easy as regular cathing? Yes, the same. > Do you have to deal with leaking and how do you deal with it? If you had asked me yesterday I'd have said the only sign of leaking was a wetness at the hole. But yesterday I was rudely reminded of a vulnerability all indwelling caths share: if you pull the cath by accident you injure the bladder, and the bladder reacts with both sphincter and detrusor spasms. And a bit of blood in the bag. The detrusor wins, and a gush of wetness follows. Alton, with a month of unanswered mail ----- Original Message ----- From: Jde <[email protected]> To: [email protected] Sent: Fri, 28 Sep 2012 17:20:46 -0000 (UTC) Subject: Re: [TMIC] Looking for input. solving a problem urinating Hi Alton, I don't know if you remember me, but I used to be on TMIC site several years ago and then go tired of all of the arguements and signed off for a while. Anyway, I am back and am interested in suprapubic catheters. One of my doctors is really pushing me to get it done and Urologist does not want me to. I'm not sure what to do. How are you doing after having gotten it done? Is it just as easy as regular cathing? Do you have to deal with leaking and how do you deal with it? Thanks, Jude Hoops Practice Random Acts of Kindness -----Original Message----- From: a-ryder <[email protected]> To: Bridget Skinner <[email protected]> Cc: Janice Nichols <[email protected]>; john snodgrass <[email protected]>; Elizabeth Clark <[email protected]>; Janet Dunn <[email protected]>; tmic-list <[email protected]> Sent: Sun, Sep 9, 2012 11:12 am Subject: Re: [TMIC] Looking for input. solving a problem urinating > Also, I have a problem urinating. I have to push really hard no matter how > bad I have to go. Bridget, the bladder problem has an easy solution - a catheter, either intermittent or indwelling (also called a Foley catheter.) I had a spinal infarction on 1997 that, amongst other blessings, left me with the same the same bladder symptom - the detrusormuscles insisted on voiding while the bladder sphincter refused to allow it. I was caught in the middle of the conflict. The solution was to use a catheter, a soft tube with a closed end and a hole in the side just before the end. Inserted into the urethra through the sphincter to the bladder, it drained the bladder. After a few months of using this “straight cath.” I switched to a Foley, a cath with a ballon on the end that could be inflated with water once it was in the bladder; the ballon kept the cath from being expelled. I used a Foley from 1998 until fifteen weeks ago when I had a suprapubic cath installed. Pros and cons: Intermittent: pro: you can do it forever con: the bother (compared to the alternatives) of finding a urinal Indwelling: pro: you need empty accumulated urine only twice a day con: you wear a bag on your leg (day) and connect to a large bag at night con: the cath must be changed at least once a month con: years of use can damage the urethra if you are not careful Suprapubic: pro: you need empty accumulated urine only twice a day con: you wear a bag on your leg (day) and connect to a large bag at night con: the cath must be changed at least once a month con: you now have a tube coming out your belly Alton ----- Original Message ----- From: Bridget Skinner <[email protected]> To: Janice Nichols <[email protected]> Cc: john snodgrass <[email protected]>, Elizabeth Clark <[email protected]>, Janet Dunn <[email protected]>, [email protected] Sent: Sat, 08 Sep 2012 22:49:36 -0000 (UTC) Subject: Re: [TMIC] Looking for input. I wanted to let you know as promised that i FINALLY got insurance in place and I saw my neurologist. I have something called myoclonus and am being treated for the jerking. The twitching in my fingers is because of my brain knowing how to type fast and my spine is keeping it to do so. I understand what he told me but it is difficult to explain. But, the jerking and the twitching are different. The inflammation from the TM did a number on my spine but at least the jerking isn't as scary knowing it can, and is, being treated. I feel relieved and hope the medication works. I have a referral to see someone about my bladder retention issues also.Thank you for your support.
