I head up the New Jersey TM support group. The main benefit of a support group is comparing doctors and medicines that others are seeing or taking and perhaps get some new ideas regarding treatment. At our last 2 meetings we had as a guest speaker the head of physical therapy who gave us many ideas of simple things we could do in our own homes to exercise as well as hospital treatments that could prove beneficial.
I have had TM for over 15 years....and I have fought this condition every single day. I cannot walk very well....but I have learned that I can swim pretty good. I now swim one mile a day......and even if this is doing nothing for my TM it is at least giving me a great cardio workout. Finally I purchased a Golden Retriever......this 60lb dog forces me to walk at lease 1 hour every day.
Start living or start dying!
All the best!
Rob in NJ
-----Original Message-----
From: rn11974 <[email protected]>
To: Tracey L. Black <[email protected]>
Cc: tmic <[email protected]>
Sent: Thu, Jan 17, 2013 10:55 am
Subject: Re: [TMIC] neurologist
From: Tracey L. Black <[email protected]>
To: "[email protected]" <[email protected]>; tmic <[email protected]>
Sent: Thursday, January 17, 2013 10:20 AM
Subject: RE: [TMIC] neurologist
From: rn11974 <[email protected]>
To: Tracey L. Black <[email protected]>
Cc: tmic <[email protected]>
Sent: Thu, Jan 17, 2013 10:55 am
Subject: Re: [TMIC] neurologist
My neurologist saw me less than 24 hrs after my tm attack; he quickly diagnosed me, gave me IV steroids for 7 days, saw me every day in rehab. I saw him every 3 months for over a year. Then I spoke with PCP about baclofen, and never went back.
He was charging $300 per office visit to my insurance, plus my $15 co-pay.
From: Tracey L. Black <[email protected]>
To: "[email protected]" <[email protected]>; tmic <[email protected]>
Sent: Thursday, January 17, 2013 10:20 AM
Subject: RE: [TMIC] neurologist
I agree Cheryl. My daughter, Ashlee, hasn’t been to a neuro since she was at KKI in Baltimore in 2006 and even then, they didn’t do any testing or anything on her. He never really
even checked in on her while she was there for the 8 week program. Her PCP orders her Oxybutnin and if she gets a sinus infection or something along those lines, she goes to the PCP or Ready Care.
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
PO Box 3039, 132 Buford Avenue
Gettysburg, PA 17325
Phone: 717-334-6741, x 29
Fax: 717-334-3414
Office hours: 8:00 a.m. - 5:00 p.m.
My hours: 9:00 a.m. - 5:00 p.m.
P
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From: [email protected] [mailto:[email protected]]
Sent: Thursday, January 17, 2013 10:07 AM
To: tmic
Subject: [TMIC] neurologist
Sent: Thursday, January 17, 2013 10:07 AM
To: tmic
Subject: [TMIC] neurologist
I haven't seen a neurologist in over 15 years. What's the point? My PCP orders my baclofen.
Cheryl
