Hi Jill, It's been years! Good to hear from you. Now I have one more member to add to my list. I am updating my address book on AOL and need your last name, phone number and address, if you don't mind. I promise I won't share your info with anyone. I only want it in case I want to send you a card or call you sometime. I am having fun with TMIC, but it's a lot of work and tough to handle all by myself. If you can think of topics to discuss I will surely appreciate it if you will let me know. You describe autonomic disreflexia exactly. Whenever it happens to me, I have to take an Oxycodone or Valium right away. Otherwise, I do take the pain medicine, but never Valium. In fact, right now I don't have any in the house. But, your talking about it makes me scared again. It's a very frightening experience. Maybe that will be our next topic. By the way, I have been sending all of my mail with a copy to the TMIC list. Is that what I'm supposed to do? Plus, I'm saving all of the mail on my computer, but have no way of backing it up. If my computer should die, I will lose everything. Anyway, it is good to talk to you again. I've missed you. Love, Jude Michigan Dance like no one's watching, Sing like on one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and SMILE...(unknown) In a message dated 1/23/2013 8:26:44 P.M. Eastern Standard Time, [email protected] writes:
Hi Jude, I'm glad to see you back. I looked up the definition to autonomicdisreflexia and it is exactly what I was trying to describe to my doctors what happened to me that dreaded night 4 years ago. I was wondering how you were diagnosed? I have lesions at T4 and T10. I felt like I was having a panic attack, stroke, and going blind and having a heart attack all at the same time and burning up and taking my clothes off and driving with the windows down.(this happened on my way home from work) I am always soooo worried that it's going to happen again, and yes back then I said I blamed it on the cold and shivering on my way home. Super cold Chicago January night. Glad to see you're back, and that's nice of you to help out the group. Jill From: "[email protected]" <[email protected]> To: [email protected] Cc: [email protected] Sent: Wednesday, January 23, 2013 6:37 PM Subject: Re: [TMIC] Re: Subscribe Kim, So glad to see you. I have to wear leg warmers and socks. I get too cold too easily. Once I get chilled it takes a ton of blankets for me to get warmed up again and it takes hours. It also bothers me to get too warm...then I'm likely to have an attack of autonomicdisreflexia. Almost had one the other evening, but I took an Oxycodone and it never developed. Jude In a message dated 1/23/2013 7:29:27 P.M. Eastern Standard Time, [email protected] writes: Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: "[email protected]" <[email protected]> To: [email protected] Cc: [email protected] Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my ========= off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, [email protected] writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why,,,, if i knew,,it would still hurt. From: Robert Pall <[email protected]> To: [email protected]; [email protected] Cc: [email protected] Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.....that being said no doctor can say what caused any of us to have TM....I myself decided it was stress....everyone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -----Original Message----- From: Heyjude48458 <[email protected]> To: i.whiddett <[email protected]> Cc: tmic-list <[email protected]> Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
