Regina, Would you mind sending us the link? Is _www.Foix-Alajounine.com_ (http://www.Foix-Alajounine.com) correct? In a message dated 1/25/2013 5:50:07 P.M. Eastern Standard Time, [email protected] writes:
Okay Rick, TM can be caused by a spinal cord problem. Google Foix-Alajounine for details. Foix-Alajounine or AVM in the spinal cord will cause TM if not fixed. Mine was not fixed, I didn't even know that this congestion was happening in my spinal cord until after I was diagnosed with TM and treated for it. Much later, when I felt that I was getting worse, I insisted on an MRI until I got one and sure enough, it showed an AVM in the spinal cord. I was told to have surgery ASAP to avoid a spinal stroke. I was operated for it in 2007. This young neurologist I saw a year ago explained it all to me after checking my hospital records. The problem is that you can have this AVM for many years and not know it. It hurt me to think that if I had had it taken care of earlier, TM would be something I'd never heard of. Luckily (if you can call it lucky) I was already on social security when all this was going on, had just retired. Putting up with this disease and having to struggle with insurance and finances shouldn't happen to any of us. I wish you well. --- On Fri, 1/25/13, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: Re: [TMIC] Re: reviving the list To: [email protected] Cc: [email protected] Date: Friday, January 25, 2013, 2:05 PM Hi Rick, I too was too late to file for Social Security Disability. I hadn't worked for two years when I was hurt, and it wasn't an accident that caused it, so I had no recourse. I just recently talked to an attorney again and she said the same thing. I wish Jimmy Carter was still the President. At least he was taking care of our welfare. Your friend, Jude In a message dated 1/25/2013 5:00:04 P.M. Eastern Standard Time, [email protected] writes: One neurologist suggested that maybe the tm was before that injury to the cord. Dr. Kerr wouldn't go along with that diaganosis and kept his first diagnosis that the injury developed into transvere myelitis. I reserched the tm archives to find many cases of spinal cord injuries that turned into tm. So its not exclusivly the imutm.ned system that helps tm develope. So research your drs. findings because there may be other reasons that you developed tm. Those findings gave me what I needed to claim Workers Comp. benefits which before that I had no claim to Workers Comp. Insurance. Wc fianally settled with me out of court. In retrospect I could have claimed Socil Security Dis. Ins. I found this out later after 11 years passed my hospitazation insurance canceded on me. Now here I set with no insurance what so ever. These may be things that newbies need to know when trying to understand SS laws. SS only goes back on your work history for 10 years. I didn't know this until it was 11 years later then I was to late. So be careful in your financial interest and planning your future. Your Tn buddy Rick From: "[email protected]" <[email protected]> To: [email protected] Cc: [email protected] Sent: Friday, January 25, 2013 3:32 PM Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, [email protected] writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, [email protected] writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in
