AOL EmailDeb, You are obviously doing all you can to rid yourself of as much pain as possible. I am really hoping and praying this works for you. Good luck, kiddo! Janice
From: Deb Monteleone Sent: Sunday, May 05, 2013 7:50 PM To: [email protected] ; [email protected] Subject: RE: [TMIC] Re: Pain Medication Jude, Michigan Hi Jude, Sorry took so long to reply. I have not read my emails for 2 ½ weeks or so. I went for three trials by having the medicine injected into my spinal fluid before actually implanting the pump. I am going this Thursday to meet with the surgeon. First trial was Prialt (snail venom), this did help somewhat, I was able to stand and sit longer without as much pain and my pants were not electrocuting my thighs, not sure about lower legs. Second was Baclofen, also helped somewhat. I actually helped with some of the sharper pains which surprised me, but I didn’t like how I felt on it and I couldn’t sit up as long. Third was morphine which seemed to be helping but then my face got itchy and they ended up giving me a Benadryl shot so I just got groggy and lay down mostly. My general doctor told me she also had same reaction to Morphine during her C-section. Both of us have had intravenous morphine in the hospital with no reaction. She said they used a ????(started with a D) morphine which caused the reaction. Never knew there were different morphine’s. All of these tests involved me staying at the facility on an uncomfortable portable stretcher/bed for 6 hours. It was to allow them to monitor my reactions as the medicine peaks at around 4 hours after injection. I was not clear on what direction to go but the pain Doctor was happy with results. He is highly regarded in his field so I’m going to go with what he suggests. I am going forward with the Prialt which needs to be titrated slowly, so not sure how long it is supposed to be before I feel full results. He also might end up putting a very small amount of Morphine (?). Thursday I will hopefully have a date for the implant surgery. After that the pain doctor is who I would continue to see for refills, checkups, etc. I just hope it helps. Good luck with your trials. Make it a great day, Deb From: [email protected] [mailto:[email protected]] Sent: Thursday, May 02, 2013 8:26 PM To: [email protected] Subject: [TMIC] Re: Pain Medication Jude, Michigan Hi All, I'm trying this color combination for a change. I went to the Dr. for the third time today for the trial on the pain pump and he used Fentanyl this time. Again, I had no results, absolutely nothing! I go back next Wed for the fourth time and he's going to use a larger dose of Fentanyl. I don't know what he's expecting to find, because I had no kind of pain relief at all. Does anyone have a suggestion on what kind of pain medication he should try? I'm at a loss. So far we've used Ocycodone and Dilaudid. What kind of experiences have you had with pain meds...the strong ones? Please let me know, I'm at my wit's end! Thank you and know that I think of you every day. Jude, TIAD Michigan
