Good Morning, Srinivas. So you people have got an idea on the disease and the necessity for the publicity of the cause and our help to them.
Regarding talking with the parents, it has a greater significance. As Thalessemia is a hereditary disease, there are chances that their blood relatives are either carriers or minors. So it is must that they should get tested and if they are married their spouses too. They should take every care to not to give birth to a Thalessemic Major kid. We need to educate those parents of the necessity and importance of their blood relatives to undergo a test. Thank you. --- In [email protected], srinu vas <[EMAIL PROTECTED]> wrote: > > Hi, > Jairam and myself visited the Thalassemia society on Saturday. > We were very much impressed with Dr.Suman Jains work in sustaining the society without much government support. > Details on the Society:There are 537 cases brought to their notice till date. > The society does a free blood transfusion(hve a tie up with Red cross), and also provides free medical advice from the doctor for all the required patients.The test for recognising a Thalassemia carrier (or not) takes Rs 500 (it may be reduced if we go in bulk).They are very much interested to spread the message regarding the disease and its prevention.That is the reason they wanted volunteers.They also collect donations. > Our observations:We thought we need to do our bit for this cause.We have assured her that we(MAD) will first get themselves tested before going on a teaching spree :).We also assured her that we wld bring this to the notice of our companies so that the message spreads and everyone undergoes the test. > But , we didnt yet understand the need to explain the patients parents or relatives who come there.Since they have already got to know abt this , we are not much sure of the help required in that front. > > Hope we can talk on this in our meeting. > Thanks and have a nice day. > Srinivas > > > > > --------------------------------- > Jiyo cricket on Yahoo! India cricket > Yahoo! Messenger Mobile Stay in touch with your buddies all the time. >
