My response as a member:

I might have exams in July and there is very less time for me to read.
So I might not be able to participate in visits until August.

Except for the meetings I cannot attend any other events.

Reg. the Thalessemic test, I will request our members to let us know
their interest to be checked. I wish to propose it in our meeting with
other groups. Meanwhile all of you talk with your friends and prepare
a list of interested people. Once we will get a required number we
will block a date (probably a weekend) and let ourselves tested.

By the way, interested members who are willing to be eye donors and
organ donors, do it asap. 

Thank you.


--- In [email protected], "Lakshmi Prasanthi
Uppalapati" <[EMAIL PROTECTED]> wrote:
>
> Hello Friends,
> 
> Good Morning/Evening.
> 
> This is the MOM of May.
> 
> Participants: Prasanthi Uppalapati, T. Murali Mohan, Chandrasekhar_B,
> Jagadish Kotagiri, Srinivas, Krishna, Sravan Kumar Patnaik
> 7 members.
> 
> Ratan ji, Doctor Syam Sundar ji, Sowmya, Jairam, new members Anitha and
> Kalpana couldn't attend due to various important reasons.
> 
> We spoke on the 4 topics in the agenda and two more.
> 
> 1. Thalessemia Disease and our support to TSCS:
> 
> Donating Money
> 
> We can donate money from our monthly contributions.
> 
> (While typing this I got an idea of why not raise funds specifically for
> this disease as we do for Sireesha or Raju's case)
> 
> Awareness
> 
> Before we try to create awareness, we, members, mainly the unmarried
ones,
> get ourselves tested. The test costs Rs. 500 but if all of us can
fix a date
> and go at a time it would be between 300 to 400 rs. per person.
> 
> Visit TSCS in our free time and counsel the parents who bring their
children
> for treatment. (As Thalessemia is an inherited disease, there might be
> potential carriers in those families and it is highly required that
all of
> them be tested and take necessary precautions not to give birth to
one more
> Thalessemia Major kid).
> 
> Every member take the responsibility, talk to the HR and try to
arrange a
> session in the company premises for the employees so that Dr. Suman
Jain can
> explain to them reg. the disease.
> 
> Last but not the least, forward the details of Thalessemia to
friends and
> then explain/educate them reg. the disease and encourage them to
undergo the
> test and if they are interested, make them participate in our efforts to
> create awareness.
> 
> Blood Donation
> 
> First of all prepare a donors' list from the interested members of our
> group. Give the list to Dr. Suman Jain and also take the list of all
> registered kids and their addresses. Pass the kids' details to the
> respective group people and vice versa. Later on the kid's parents
should
> keep in touch with us when they need blood. That is how we can become a
> permanent/regular donor and can adopt a kid.
> 
> Also encourage Red Cross to give the donors' list on group basis and let
> them explain about Thalessemia whenever and wherever they conduct a
blood
> donation camp. Also encourage them to let the patient know who is
the donor
> and the donor about the patient so that every donor can feel happy
to see
> the beneficiary.
> 
> 2. Reg. Sireesha's case:
> 
> I happened to visit CARE hospital on Sunday to meet grandpa (Sri KVB
Sastry)
> and as I went there I tried to meet Dr. Nageswara Rao or Dr.
Gopichand or
> Mr. Srinivas who is the assistant of Dr. Gopichand. As it is sunday,
they
> are not there and one Mr. Pavan in the reception let me speak with Mr.
> Srinivas on phone. What he told me was Sireesha's case has been given
> priority and Snehalatha garu (Hrudaya Foundation Chief) is taking
every care
> and we will be getting the date soon. I didn't get any chance to
talk more
> clearly.
> 
> During discussion what the members felt was that if doctors are ready to
> operate and the funding is ready and when operation is compulsory
(at any
> time, even after 1 year or 2 years), it is better to get the girl
operated
> to avoid any unnecessary hassles.
> 
> Date of Operation:
> Krishna garu told that Dr. Gopichand is the chief and he is the
person who
> does the surgery and so his word is final and on 10th of this month
we will
> be knowing the date of the operation.
> 
> With Rotary Club:
> Rotary Club has agreed to bear the complete operational expenses.
Why they
> requested again is if we can give any amount (how
> much less it might be), they can spend it on another child among a
long list
> of waiting children like Sireesha.
> 
> Member's opinion: Explain Rotary that as we are bearing the pre and post
> operation expenses, we cannot give any money towards operation
expenses. (If
> Bangalore or US members or any member have any objection, you please
mail to
> the group)
> 
> 
> 3. Reg. the decision to deal with new cases:
> 
> If we are sure about the genuinity of a case, first announce the
case to the
> group and ask if anyone are interested to donate on project basis (other
> than the monthly contributors). We should follow the same procedure
for any
> number of cases that might come up.  Announce a date and seek response
> within that period.
> 
> From the monthly amount of the group, announce some money that we are
> willing to give to a particular case. If any member have any
objection, they
> can mail within the stipulated time.
> 
> Reg, giving money only for establishing genuinity or only giving
medicinal
> expenses and not to bear operation costs, we opined that there
cannot be any
> thumb rule and based on the issues on hand, we have to take the
decision.
> For some cases, if the patient is not a kid, money might not
generate. For
> some cases, we cannot bear the full amount.
> 
> So it would be good if we can say to the patient's family that we
can give
> certain amount of money and we will give it at the time of operation
or else
> we will buy the medicines.
> 
> 4. Reg. the monthly donations:
> 
> We need not block the money but let the members send their contributions
> every month.
> 
> It would be great if we can proceed in a different way other than making
> proportions every month and waiting for particular areas to spend
the money.
> 
> What are we going to do with the money?
> 
> We will first ask the monthly contributors about their area of
interest to
> spend the money.
> a) Any case (Go by group's decision. No objection whatsoever)
> b) Interested in particular domain (Education - orphan kids, servant
maid's
> kids, economically poor kids, higher education, Medical Help - Kids,
Youth,
> Aged ones, Old Age Homes)
> 
> Based on the members' response, we will get an idea of how much
money is for
> particular areas and how much money is based solely on group's
decision. So
> we will spend that amount only for medical help and NGO help.
> 
> Whatever be the reason, we do not let the money pile up in the bank
(except
> for the amounts specially designated for particular cases and specific
> causes)
> 
> Identifying NGOs
> 
> Based on members' association with them and group's acceptance. We
trust our
> members but at the same time, we will be cautious too and take a second
> opinion from the remaining group.
> 
> For example,  I suggested Ashray Akruti and Thalessemic Society. We
> shouldn't donate money as I suggested and as I have good rapport
with them.
> Instead we, (some of our members), visit the NGO for two to three times.
> (need not be the same members again and again) and if we are all
convinced
> of their working, then only we can donate to particular NGO.
> 
> I WANT TO MAKE SURE ONE POINT HERE AND IT IS BETTER IF ALL OF US
KEEP THIS
> IN MIND. NO MEMBER (HOW GREAT THEIR SERVICE MIGHT BE) IS MORE THAN
THE GROUP
> AND EVERYONE SHOULD ABIDE BY THE GROUP'S DECISION. THERE IS NO
OBLIGATION TO
> ANYONE FOR WHATSOEVER BE THE REASON.
> 
> WE ARE NOT GOING TO RELY ON ONE PERSON. THIS GROUP IS MADE OF
MEMBERS NOT
> INDIVIDUALS.
> 
> On Field Activity
> 
> So far our wok didn't include/involve much of on field activity.
> 
> We can visit orphanages, old age homes and also can teach in schools.
> 
> Anyone who are interested and can spare some time during weekends,
mail your
> availability, no. of hours you can work and at what time and any
areas of
> preference (both work wise and place wise).
> 
> Miscellaneous
> 
> Received monthly donation of May from Jairam (500 rs) and bi-monthly
> donation(May-June) from Chandrasekhar_B (500 rs).
> 
> Decided to change the meeting time to morning instead of evening. It
would
> be 10 am in the morning.
> 
> Thank you.
> 
> --
> with regards,
> PRASANTHI.
> ----
> When you want something, the whole universe conspires in helping you to
> achieve it.
>










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