sivaji i dont no doctors in nims..but i no da doctors outside... once i talk with them and i intimate to u ......abt da disease
On Thu, Mar 25, 2010 at 8:37 PM, CHALLA SIVAJI <[email protected]>wrote: > > [Attachment(s) <#127992242e21cdab_TopText> from CHALLA SIVAJI included > below] > > Name: Jahnavi > Age : 14 years > Education: 9th class, Atkinson school, Vijayawada. > > She is a good kuchipudi classical dancer. She performed in Limca Book of > records. > > Disease: *Acute Intermittent Porphria* ( this is very rare disease related > to neurology) > > Present Treatment at: NIMS, Hyderabad. > > Father: Vujjuri KanneswaraRao Contact Number : 9246485439 > > Occupation: Automobile shop owner. (sold it for girl treatment) > > Mother: Sridevi Occupation:HouseWife > > Relatives in contact: Hari Krishna ( KanneswaraRao's sister husband) > > Contact Number: 9849233649. > > News Source: Eenadu news paper (24/03/2010) > > Link: > http://www.eenadu.net/archives/archive-24-3-2010/story.asp?qry1=26&reccount=27 > > Bank details as follows:* * > * > * > > *Name: N. HARI KRISHNA* > > *Bank: ICICI Bank* > > *A/c No: 007501006488* > > *Branch: SR Nagar* > > * > * > Case Details: > > By looking at the newspaper our TMAD members P.Chandana along with > Sathya krishna called the girl uncle(Hari Krishna). He sent us a few > documents i am attaching them along with this mail. > > Today evening i went to NIMS and spoke to the girl father.He gave me > the fallowing details. > > "The girl health was very fine till 12th February. On that day night she > got fits! and was admitted at Mythri hospital Chandanagar, Hyderabad.[ A few > days back the girl came to hyderabad for a kuchipudi show]. > > The doctor treated at Mythi hospital is Mr.Rathna Kishore (Neurologist). > At first he couldn't identify the disease. As there was no improvement in > her health condition the girl was shifted to same Mythri hospital > Mehadipatnam branch. On total for Mythri hospital they spent 5lac rupees. > She was there till 2nd March and lost her voice. Finally the doctor > suggested NIMS. On 3rd March she was admitted at NIMS. On 9th March NIMS > doctor Professor Meena (Neurologist) decided that the disease is Acute > Intermittent Porphria. > > To cure the disease the girl needs to be given the drugs "*Normosang". *They > got it from France as it is not available in India. It cost is 2400 Euros > ( Rs. 5,00,000/-)!. Now the doctors are saying one more dose has to be > given. After joining in NIMS they have been spending around 3lacs > for medicines, per day medicine cost is 20,000 rupees. For other charges to > the hospital they still have to pay 1.75lacs. > > Very unfortunately two times once at Mythri and another time at NIMS the > girl was given wrong injections by junior doctors because of which the girl > health completely spoiled. So finally the doctors realizes and kept special > boards at her room mentioning what are the medicines not to be given to the > girl. > > By looking at the newspaper a few persons called her father and deposited > Rs.20,000/-. > > *Note: *All the above case details are told by girl father to me. I didn't > get the chance to meet the doctor.(Prof.Meena* Neurologist).* > > When i told the case details to our tmad member B V N Anil kumar, he asked > me 3 very important questions for which i don't have answers(for the time > being). > > Q1) What is the permanent cure for this disease ? > Q2) Who has the technology to cure this (in India or outside India) ? > Q3) Are there any NGO's/hospitals that have worked on this case ? > > At least for the first 2 questions we should have answers. > > *If any of us can find some reference of NIMS hospital doctors, then we > can meet Dr.Meena(Neurologist) and can know the details about permanent > cure for the disease. * > * > * > Thanks > Sivaji. > (9908637414) > > ------------------------------ > The INTERNET now has a personality. YOURS! See your Yahoo! > Homepage<http://in.rd.yahoo.com/tagline_yyi_1/*http://in.yahoo.com/> > . > > >
