I watched the movie last night with high hopes that able bodied viewers would see what it was really like to be in her situation. My son had an accident when he was 10 and is a C1 quad (this is 6 years ago). As I watched the actress who portrayed Brooke speak while on the vent I was amazed at the number of syllables she could get out and the quality of her voice and also the fact that she never had to wait for the vent to give her a breath before she could speak. Maybe this is how you all are, but my son is more like C.R. was....raspy, has to wait for the vent, can only get a few words out before the breath is gone.
I am a C2 quad, have a trach and vent dependent. I am able to speak fairly well and continuously when using a one-way valve, such as a Passy-Muir valve. One trick is not to completely exhale after each breath so you still have some air to talk between breaths. It takes some practice. My vent settings are: volume 900, bpm 11, flow 50.
Can anyone explain to me hoe this mouth retainer works that she used in college to move her chair?
see the web site
Newabilities Systems Inc.
http://www.newabilities.com/
Manufacturers of the UCS 1000 with the TongueTouch Keypad (TTK) - Controls a wheelchair, computer, and telephone.
(800)829-8889
Laurie
Jim Lubin
[EMAIL PROTECTED]
Bothell, WA, USA
http://makoa.org/jim
disAbility Resources: http://www.makoa.org
Transverse Myelitis Association: http://www.myelitis.org/HowToHelp
