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> On Apr 27, 2017, at 7:12 PM, Julie Dawson <[email protected]> wrote: > > Oh None, I just read your e-mail and am heartbroken on your behalf. I had > breast cancer last year but this horror is so far beyond the scope of human > suffering even with the medications I took to find remission that I cannot > conceive of it. I grieve for you. If you want to write me off list my e-mail > is: > [email protected] > My phone number is: > 901 526 0463 > Prayerfully, > Julie > Live simply, > Love generously, > Care deeply, > Speak kindly > And leave the rest to God! > Please join me on > www.gamesgaloreandmore.com > where through learning, friendship, activities, and growth, together we can > build a site to be proud of. > > > ----- Original Message ----- From: "zoe fiogkos" <[email protected]> > To: <[email protected]> > Sent: April 27, 2017 11:35 AM > Subject: prayers and reason for unsubscribing soon > > >> Hi my fellow elf's and Mrs. Clause. Hope you are all doing ok. Unfortunately >> I have no choice, I have to unsubscribe from all the email groups I belong >> to. I haven't been able to check email and be online for a long time and it >> seems I will be out of things for much longer. When I turned on my laptop >> this morning I had over fifteen thousand emails waiting for me. Given my >> situation I just can't keep up anymore. I pray that one day I recover and >> are able to join my favourite groups again. My family is against me telling >> people what's wrong but I feel in writing this email I'm also helping myself >> to come to grips with my illness. I will remain subscribed a few more days >> so that I may read your thoughts in hopes that your words might help me to >> continue to fight this awful illness. >> Again I'm sorry for the off topic post and I hope the moderators can find it >> in their hearts to forgive me, and if one day I recover I hope they will >> remember me and let me back in to my favourite mailing groups. >> Before I tell you all my story, I would like to thank each and every one of >> you for either your help on various topics, or your individual private help >> through the phone or private email, or your messages of getting to know me, >> or your words of encouragement when it came to the mac, jaws, NVDA, windows >> 10, household tips, cooking instructions, prayers, and harmless chit chat. >> If I offended anyone in anyway, or gave anyone a hard time please forgive >> me. >> Here's my unbelievable story. >> Last August I was doing a lot of gardening mostly weeding to be honest. I >> was on my hands and knees from morning to night pulling weeds and keeping my >> property clean. I am grateful to the good Lord for blessing me to have such >> a lovely property but it's old and no one ever took care of the garden. The >> result is weeds on top of my weeds. Chemicals are forbidden here in Canada, >> and I haven't been able to find an affordable solution, so I'm left with >> fighting weeds on a daily bases. I am a sun lover and adore summer, last >> summer was the first time in my life that I couldn't wait for summer to be >> over. I was exhausted and I have nothing to remember for my 2016 summer >> except pulling weeds all most every day for the whole entire spring, summer, >> and fall. >> In August I noticed 2 mosquito bites on my elbow and 2 on my inner left >> thigh. The bites were very itchy just like normal mosquito bites, so I >> didn't think anything of it. I also noticed my nails were black underneath. >> I thought it was dirt from the garden, to spite that I was showering every >> single day and cleaning my nails, the next morning they would be filthy >> again. Again I thought it strange but I justified it in my head as to much >> gardening. In August my husband and I visited a few local restaurants and >> spent two nights in a motel in north Ontario for a weekend away. >> I wanted to try my hand at building a small business doing something I love >> so I decided to start making my own bracelets and selling them online. I >> have always loved costume jewellery and to spite my vision problems, I have >> been taught that there is nothing I can't do. My mother always said "try and >> if you fail, oh well, life goes on. Try different things until you find >> something you are good at and you love doing." So I talked to my mom and >> husband and they both backed me as they always do. My mother who adores me >> spent over six thousand dollars to buy my supplies, and encouraged me on a >> daily bases. My husband turned half of my computer room into a work space >> with special lighting, magnifying contraptions, shelving, etc. My husband >> and mom bought me bins with dividers and I spent months sorting beads and >> other supplies by color, size, and type. I got help from someone on one of >> these mailing lists and he helped me to create labels to label all these >> bins. Everything was going great, or so I thought. >> I spent hours teaching myself how to make these beautiful bracelets, I >> finally got the hang of it after much trial and error and I was ready to go. >> I registered on etsy.com and opened up a Facebook small business page. I >> bought more supplies to host a launching party with food, drinks, and gifts >> for my guests to introduce them to my creations and my new business. While >> all this was happening, I noticed in October that the mosquito bites were >> not going away. They had become scabby and even more itchier. >> I showed my mom and she justified it just like I had done in my mind. Due to >> my type two diabetes they were taking a long time to heal as many things do >> when you have diabetes. >> At the beginning of November as some of you already know, I started to have >> problems with my right eye. Long story short for those who don't know, I >> suffer from a cornea disease. My cornea was trying to break. This had >> happened before but this time it was persistent and my doctor had to try >> different medications to stop the cornea from breaking. While I was battling >> this cornea problem I noticed my right arm becoming very itchy and the two >> mosquito bites had now become 10. I was so worried about my eye that I put >> this arm problem aside until I solve this cornea issue. I thought I was >> having an allergic reaction to something. >> By the beginning of December my whole entire arm from the elbow down was >> covered in scabby itchy pimples. I thought oh my God what's going on? I >> changed my soap, detergent, and started to watch what I was eating. Due to >> the cornea problem and the Christmas holidays I didn't get to my family >> doctor until January. >> By January both my arms were covered in these strange itchy things. The >> doctor looked at my arms and fingers and said oh don't worry it's nothing, >> you have scabies. >> Pardon my language but I answered what the hell is scabies? >> She said it's a bug sometimes humans get. Usually from sex but since your >> husband doesn't have it and you didn't cheat on him you got it from the >> motel you stayed at, or from a shopping mall, or someone hugged you who has >> it. She continued on to say it will be gone in a few weeks. She said it's >> contagious but since you will be treating yourself in the next week don't >> worry about it. >> She gave me a lotion with pesticide in it and told me to apply it to my >> whole body from the knec down before bedtime and shower after 12 hours in >> the morning. She said do not apply to face and scalp because scabies don't >> go there and it's not safe. >> She said repeat this process one week later. During this week of treatment >> vacuum the house every day and wash linens and all clothing warn every day. >> >> So off I went astonished at what I had heard. Where the heck did I get >> something like this. Oh well I thought it will soon be over, or so I >> believed. >> On my way to the pharmacy to pick up the lotion full of embarrassment I kept >> on thinking about the doctor's words when she said to me, "zoe I know you >> are a clean person and your house is clean but this illness has nothing to >> do with cleanliness, rich, or pour. Anyone can contract this disease. >> She continued on to say because you are type 2 diabetic your immune system >> is compromised and so it's easier for you to catch something like this. The >> scabby pimples on your arms, are the bugs laying eggs and leaving their >> pheacies behind. The body has an allergic reaction to those things. I cried >> all the way to the pharmacy. I went home and began the treatment as the >> doctor had described. My husband and I slept in separate bedrooms and I kept >> away from my mom just encase. >> I put my bracelet business on hold thinking it's only a few weeks. I >> laundered every day running my clothing through the dryer three times to >> make sure I kill everything that could be on my clothing. >> I got depressed but my family reminded me of everything the doctor told me >> and I was consoled and thought to myself what am I crying about this will be >> over soon. >> Boy was I wrong. >> One week later when I was finished the treatment I was still itchy and the >> scabs were still there. I called the doctor and she confirmed what I had >> read online that the body would slowly extract the pheacies and eggs and >> eventually the itchiness would go away, it would take about six weeks for >> everything to return to normal. By the way by mid-January I could no longer >> sleep, the itchiness would keep me up all night itching, burning and crying >> from pain and sleeplessness. >> During January I attended the funeral of a beloved older man who had passed >> away suddenly and I had visited his widow and also I visited a 96 year old >> woman who I have known since I was born, who is like a grandma to me, not to >> mention the hospital visits for my cornea, the Christmas parties and >> services in my church. I thought my God I hope no one caught this from me >> and at the thought I was devastated. My family consoled me saying Zoe you >> didn't know what it was, it's not your fault. >> During the six week period after the treatment I decided to take precautions >> just encase. I stopped going to church, visiting people, I didn't allow >> anyone to come over, I didn't do daily things like banking, grocery >> shopping, etc. I continued to vacuum every day, cleaned the house >> diligently, and of course laundry every single day. My husband and I stayed >> away from each other accept for the occasional peck on the lips quickly. >> I was miserable but this would soon be over. >> I began to make Easter plans, my bracelet launching party, plans, and >> planned for my step daughters visit in the summer to meet our new >> granddaughter. >> Things were not as the doctor or I thought. >> At the end of the six week mark, I was itchier than ever. The pimples had >> spread to other parts of my body and they were scabbier than ever. I made a >> doctor's appointment again and off I went. >> She looked at my body and said "these are scabies I'm absolutely 100% sure, >> but if the medication didn't work, I don't know what else I can do for you, >> so I will send you to a specialist, a dermatologist." >> In the next week after that disappointing appointment I began to feel bugs >> walking in my hair, nose, and ears. My sleep was next to nothing and it >> started to show. My hair was down to my waist and I sat in the garage and >> cut it all off while my mother watched me and cried. >> My husband went to the drug store and got me extra strength Benadryl to help >> with the itchiness and sleep. I began to take one every night to knock me >> out. I started to research my problem online. >> What I read was not encouraging at all. >> I began to read horror stories of people who had scabies and couldn't get >> rid of them because these bugs have become resistant to the medications >> offered by doctors. Further I read stories of people who were diagnosed with >> delusional paratosis and some were even locked up in looney bins. I thought >> to myself, well don't believe everything you read on the internet. Since >> general medicine couldn't help me and I had gotten the call from the >> doctor's office that my dermatologist's appointment would not take place >> until April 10th, I decided to try some home remedies to get rid of them. >> Here the hell began. >> I read that diluted bleach in water would kill them. Not true, I smelled >> like chlorine and about 5 bugs fell off me. >> I read that 12 days of white vinegar on the body would kill them. I also >> went to a natural pharmacy and they told me to shower with castile soap >> every day and let the soap dry on me. When my body absorbed the castile soap >> then I should slather neem oil all over my body. >> Neem oil smells like rotten peanuts and or diarrhea in my opinion. Every >> night for the next 12 days I got in the shower, lathered the soap on me, >> waited half an hour for it to dry, lathered neem oil on me from head to tow, >> wore tight clothing to bed, (tights, socks, turtle neck, full flannel >> sheets, and a thick winter blanket), in the morning I showered with extra >> strength neem and rosemary soap. After the shower I applied coconut oil to >> my whole body and then applied vinegar 3 times a day to my whole entire >> body. This was my life for the next 12 days. >> Result, every day I would find 20 to 30 dead bugs on my body, so I thought >> great it's working. At the end of the 12 days my skin was badly burned from >> the vinegar. >> Now I had hardly any hair and a burnt body and face. >> I began to suffer greatly. My body was stinging and hurting and the bugs >> were not gone. >> I tried lice shampoo even though I read online that it doesn't work for >> scabies. They were right it didn't work. I would pick them out with a lice >> comb every day until my scalp was so badly scratched I couldn't take it >> anymore. I tried hydrogen peroxide, it did kill many but didn't get rid of >> them. >> >> I researched more online and found a study based in Australia that said that >> in a study done the only thing that killed resistant scabies was clove oil. >> They are in the process of developing medicine for scabies with its base >> being clove oil. >> I started reading up on people who had used clove oil and most swore that >> they got rid of them. There were a few people who said it didn't work for >> them. I went to the natural place and bought bottles of clove oil. >> I diluted clove oil with coconut oil so that it doesn't burn me and began to >> apply to my whole body every day. >> At night I still used the neem oil. >> Didn't work, I further burned my body and the bugs were still there. >> Starting to panic because I felt the bug activity getting worse, I took a >> bottle of castile soap and mixed it with neem oil and began to shower with >> that. Every time I applied this to my head and body I felt the bugs jumping >> for fear or joy, who knows with the dam things. >> I began to leave this on me and waited for 20 minutes before I washed off. >> They would fall in the tub dead. I thought great something is finally >> working. >> After 2 weeks of this, the bugs were still not gone even though 40 50 bugs >> would fall in the shower every day, sometimes even twice a day. >> During all of this I read that the only thing that will get rid of them is >> an old remedy of sulphur soap. I searched high and low in Toronto but no one >> seemed to have it. Finally I found it on amazon and ordered it along with >> sulphur cream and sulphur ointment. >> Finally these things came and a new routine began. >> Every morning I would shower with the castile neem oil mixture, I would >> leave it on for 20 minutes and rinse off, then I would lather on the sulphur >> soap, leave it on for 20 minutes and rinse off. I would get out of the >> shower and lather on the coconut oil. Thousands of bugs would come out of my >> skin. My mom and husband would wear gloves and pick them off my skin and >> dispose of them safely. At night I would lather the neem oil all over me and >> slather on sulphur ointment on my head and sulphur cream on my face. >> This continued for about 10 days. >> The bug population on my skin diminished every day, but at the end of 10 >> days my skin was blistering and drying so bad I began to have horrible pain. >> Every time I got in the shower I screamed of pain. I could again not sleep >> from the pain. >> However the pimples were now nothing but faded scars, so I thought great >> this is working so I said to myself clench your teeth and bear it if it >> means these things would finally be gone. >> I also found online a sight called earth clinic and they said to drink 1 >> litre of distilled water mixed with 1/8 teaspoon of borox every day, 5 days >> on and 2 days off, also to supplement this by drinking half a teaspoon of >> natural baking soda mixed with half cup of distilled water morning and >> night. They explained how this destroys a fungus in their gut and doesn't >> allow them to digest properly and will help to get rid of them if they are >> in your blood. >> I also read that the world health organization says untreated people with >> scabies results in kidney failure, heart failure, and even death in some >> cases. >> Obviously with all of this information, pain, treatments, and isolation I >> began to cry from morning to night and started to suffer physically and >> emotionally. >> Bracelet business? What bracelet business. Friends? I couldn't see any >> friends. Email and computers? Non-existent. >> Easter was coming, for me the most important and biggest holiday of my faith >> and existence. I could not go to church, >> I could not see my goddaughter to give her gifts for Easter. I could not >> cook or make plans for Easter. I could not take communion. I began to spend >> my days when not treating in my garage sitting on a plastic chair covered >> with a plastic bag, swotting the bugs away and crying. With hardly any sleep >> it was taking its toll on me. I couldn't eat because I was afraid the bugs >> would fall into my food, I began to lose weight. >> Even though the pimples were gone, and thousands of dead bugs would come out >> of my body, even though my skin was now badly damaged the bugs persisted in >> my scalp and face. >> My husband wore a plastic bag over his body and with plastic gloves he >> shaved my head and plucked my eye brows. >> Now I was a worse looking freak then before. Bald, no eye brows, dermatitis, >> burnt skin, tired and it showed, and still with bugs. >> Finally April 10th came and I was so excited to go to the dermatologist and >> finally get some help. >> I wore a shower cap and gloves and went to the doctor making sure not to >> touch anyone or anything for fear of spreading this awful thing to any other >> human being. >> I told the doctor everything I have described to you guys, and then it >> happened my worst fears came true. He looked at my scalp with glasses and >> examined my skin and said, "you don't have scabies, there are no signs of >> crusted pimples, it's all in your head." I responded doctor don't you see >> the scars on my body, I have topically treated for so long that the pimples >> are gone, but the bugs are still there." He said "no they are not you have >> delusional paratosis." My husband popped up and said doctor I have seen the >> bugs coming out of her body, we find them dead in the tub and on her >> clothing. He answered you guys are nuts, and if there is bugs then prove it >> put them in a bottle and bring them to me, she has a bad case of dermatitis >> and she's nuts." >> I was shocked and couldn't believe my ears, everything I had read on the net >> was true. >> I went home and cried until my body could no longer produce any more tears. >> I contacted other scabie sufferers online and they told me it would be hard >> to find a doctor to help because they don't want to admit that the meds they >> give you don't work. Everyone told me that those who chose to take the >> bottled bugs to the doctor got no results. The doctors refused to examine >> the bugs or send them for analysis and many of them were forcibly locked up. >> My family and I had a long conversation and came to the conclusion that the >> only thing that could help me was the home remedies and we would not take >> the chance of me being locked up with a diagnosis of delusional paratosis. >> By this time I could no longer do the sulphur treatment on a daily bases for >> now I was greatly suffering. I lessoned the sulphur showers to 1 every three >> days and still my skin was suffering. >> I throughout my area rugs, laundry hampers, runners, old blankets, computer >> chairs, I spent no time in my house accept at night to go to bed on my >> covered bed with heavy duty plastic bags. I wore a shower cap and gloves at >> night, but the shower cap caused broozes on my head. Easter came and left, >> and I didn't bake like I do every year, I didn't cook, I didn't go to >> church, I didn't celebrate with my family, (even though they sent me lots of >> food and sweets), all I did was cry, swat bugs all day, and continued to >> treat myself in hopes that this one day would be gone. >> During all of this my mom who picked the bugs off me every day and cried at >> the sight of her only child suffering so much developed a lump in her >> breast, (which we are waiting for results). >> When she went to the doctor to have this lump checked out she told the >> secretary what's going on. The secretary who is in her fourth year of >> becoming a homeopath doctor suggested she try to help me. >> Her teacher could help me if I could afford to pay her. The Canadian >> government doesn't cover homeopathic medicine and I have no private >> insurance, so I'm stuck with a kind hearted student who is paying for my >> homeopath medicine and trying to help me. I know she's a student and I'm >> kind of her gini pig but at this point I have no choice. I stopped all home >> remedy treatments and I'm following her instructions. >> Tomorrow is one week since I started following her instructions. I have had >> one good night of sleep, I've hardly eaten anything in a week, The bug >> activity has gotten worse, and I'm severely suffering. >> Not to mention I have ten thousand dollars' worth of bracelet supplies >> sitting in a room collecting dust, while my pour 70 year old mother is >> trying to pay this debt off. My husband and I have maxed out our credit >> cards on neem oil, clove oil, plastic bags, plastic gloves, sulphur >> products, distilled water, vinegar, and anything else you can think of. We >> are barely making ends meet and we are afraid of losing our house and still >> looking and hoping for a cure. >> >> I don't know if this is going to work, I thought about killing myself but my >> faith in God is strong and that has kept me from taking action. I pray to >> the good Lord to take pity on me and grant me his mercies and compassions >> and heal me. >> I pray that he guides this young student to find a solution to my problem. >> Even as I write this email the bugs are attacking me. It has taken me all >> day to write this email because I'm fighting with the bugs. I have to stop >> every other word to get them out of my nose, ears, and swot them off my >> head. >> By the way I collected some bugs in a bottle and the young student looked at >> them with a microscope and confirmed that I'm not crazy and these are >> scabies. >> Please everyone forgive me for this very long email and pray for me. >> I don't know when I'll be back or even if I will ever be cured but I wanted >> everyone to know why I'm leaving my favourite mailing lists, and I will miss >> you all, I will miss reading your solutions to all problems related to the >> mac, PC, iPhone, etc. I will miss the delicious recipes amongst other >> things. >> I hope that if one day I am cured you will all accept me back and then I >> will let you know how I got cured if you're interested. >> Again my apologies to the list owners and moderators for the off topic post >> and long email. >> May all of you be well and most importantly healthy. Without health nothing >> is of importance. >> Tell your friends and families how much you love them because you never know >> what could happen to you. The worst horror movie or nightmare you have ever >> seen could come true like my case. >> Thanks to those who took the time to read such a long email. >> By the way one of the hardest things is not being able to hug your loved >> ones. My husband has cried like a child because he can't hug or kiss me. If >> these bugs don't kill me, and the emotional and physical pain doesn't kill >> me I will emerge stronger and with heck of a tale to tell those who want to >> listen. Be well all from an isolated, suffering, but hopeful human being >> somewhere in Toronto. >> >> Sincerely >> Zoe >> >> >> -- >> The following information is important for all members of the V iPhone list. >> >> If you have any questions or concerns about the running of this list, or if >> you feel that a member's post is inappropriate, please contact the owners or >> moderators directly rather than posting on the list itself. >> >> Your V iPhone list moderator is Mark Taylor. Mark can be reached at: >> [email protected]. Your list owner is Cara Quinn - you can reach Cara at >> [email protected] >> >> The archives for this list can be searched at: >> http://www.mail-archive.com/[email protected]/ >> --- You received this message because you are subscribed to the Google >> Groups "VIPhone" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To post to this group, send email to [email protected]. >> Visit this group at https://groups.google.com/group/viphone. >> For more options, visit https://groups.google.com/d/optout. > > -- > The following information is important for all members of the V iPhone list. > > If you have any questions or concerns about the running of this list, or if > you feel that a member's post is inappropriate, please contact the owners or > moderators directly rather than posting on the list itself. > > Your V iPhone list moderator is Mark Taylor. Mark can be reached at: > [email protected]. Your list owner is Cara Quinn - you can reach Cara at > [email protected] > > The archives for this list can be searched at: > http://www.mail-archive.com/[email protected]/ > --- You received this message because you are subscribed to the Google Groups > "VIPhone" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To post to this group, send email to [email protected]. > Visit this group at https://groups.google.com/group/viphone. > For more options, visit https Oh my Lord Zoe that sounds awful. My prayers > are with you hopefully you will get better soon sincerely > Dave://groups.google.com/d/optout. -- The following information is important for all members of the V iPhone list. If you have any questions or concerns about the running of this list, or if you feel that a member's post is inappropriate, please contact the owners or moderators directly rather than posting on the list itself. Your V iPhone list moderator is Mark Taylor. Mark can be reached at: [email protected]. Your list owner is Cara Quinn - you can reach Cara at [email protected] The archives for this list can be searched at: http://www.mail-archive.com/[email protected]/ --- You received this message because you are subscribed to the Google Groups "VIPhone" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To post to this group, send email to [email protected]. Visit this group at https://groups.google.com/group/viphone. For more options, visit https://groups.google.com/d/optout.
