Shelley, I was interested to read that you are on combo Inteferon & Gleevec. I just went through my 6 mos. bmb/bma, Cytogenetic Remissions, No phillies observed, FISH was .4% but my myloid blast only dropped from 3% to 2%. He is going to give it another 4 mos. then do another bmb/bma, if the results do not read the way he wants he would like for me to go on combo Inteferon & Gleevec. I would be very interested in hearing your story. I work and am also the primary 'medical' coverage through my work so being able to work is very important, as well as, quality of life is also very important to me. What prompted your onc to try the combo? How have you done? What side effects? What is the goal your hoping to acheive with the combo treatments? Wishes for many health days to come. Brenda dx 5/04 Gleevec 6/04 Cytogenetic Remission 12/04
--- In CML@yahoogroups.com, Shelley Orenstein <[EMAIL PROTECTED]> wrote: > I have been neglectful for quit some time. I haven't written to either list. > > Let me first congratulate everyone on there anniversaries and birthdays. > Dane and Gregg, I am so sorry that Gleevec has stopped working for you both, but I am glad that you both have a 10/10 match to proceed with your BMT's. > > Giora, I am glad that your son has turned up after the Tsunami. That was a terrible tragedy. > > Anjana and Roy, glad you had a great vacation and are back in Singapore. > > I am doing well. My last PCR was undetectable again. This makes it 2 years. I am still on the combo of INF and Gleevec. I am doing fairly well with it except for the pain with the Neupogen. I am waiting for Dr. Mauro to get back to me on the future of this combo. My Gleevec rash is quite annoying at the present time. I am now taking Atarax for the itching. I have been scratching so hard that I am black and blue. I have had sinus, ear, and eye infections, but they have all been treated. I'm just not sure if the ear infection is gone. I am just tired of seeing doctors. > > My husband is doing well. My 3 children are well and thriving. My youngest is still waiting to gt a positive response to medical school. The middle one is out in the submarine for 2 months and still doesn't know that he has been accepted into college for the fall semester when he gets out of the Navy. My eldest one is studying hard for Chief Petty Officer in the Navy. He is taking the test 2 years earlier on recommendations from his superiors. > > That's about it in sunny Florida. The weather is warm and very little rain. > > Shelley > > > > Shelley > > > > --------------------------------- > Do you Yahoo!? > All your favorites on one personal page – Try My Yahoo! ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
