I would think that the GPC Policy/Plan should be that the De-Identified data, stay de-identified and we would not re-identify the patients from a de-identified cohort.
Instead of re-identifying, we would actually re-run the same query that generates the de-identified cohort, using the identified data to survey/enroll them in a trial. Technically, if we did want to re-identify patients, we could keep the patient_mapping table around and use that to do so, but that could defeat the purpose of having a HIPAA Safe Harbor data set. Phillip From: Dan Connolly <dconno...@kumc.edu<mailto:dconno...@kumc.edu>> Date: Tuesday, March 4, 2014 1:02 PM To: Phillip Reeder <phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>>, "gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>" <gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>> Subject: RE: GPC De-Identification Plan The plan we submit is required to cover re-identification, too. For example, once a cohort is identified, I think we're supposed to be able to survey them or enroll them in a trial. That part can be written by somebody else if you prefer. -- Dan ________________________________ From: gpc-dev-boun...@listserv.kumc.edu<mailto:gpc-dev-boun...@listserv.kumc.edu> [gpc-dev-boun...@listserv.kumc.edu<mailto:gpc-dev-boun...@listserv.kumc.edu>] on behalf of Phillip Reeder [phillip.ree...@utsouthwestern.edu<mailto:phillip.ree...@utsouthwestern.edu>] Sent: Tuesday, March 04, 2014 12:57 PM To: Greater Plains Collaborative Software Development Subject: [Gpc-dev] GPC De-Identification Plan Attached is a draft de-identification plan. It's meant to be an overview of how we will be de-identifying our data. I expect that there will be a second document which will include the technical implementation of de-identification, once everyone is in agreement with general plan. The technical plan would include details like where and how we generate/store the date offset during ETL, how we populate the various ID mapping tables, etc. Phillip ________________________________ UT Southwestern Medical Center The future of medicine, today.
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