Hi Claude, Sorry that some of the variables don't have more logical scoring. The up to date HCP data dictionary with the following clarifications is available for download on the HCP wiki: https://wiki.humanconnectome.org/x/N4AvAw
SSAGA_Agoraphobia is scored 1 = No agorophobia experienced over lifetime; 2 = Yes, have experienced agoraphobia (fear of being in certain places or situations where they feel it would be difficult to leave easily) sometime over lifetime (non-diagnostic agoraphobia screen). About 30 subjects don't have a value for SSAGA_Agoraphobia in the DB. Looking at the raw SSAGA data, most of these subjects without a value should have a value of 1 -- we'll have to correct that in the DB. I can clarify more off list since this gets into the restricted data values for a few subjects. SSAGA_PanicDisorder is scored 0 = No, 1= Yes, positive for non-diagnostic panic disorder screen. SSAGA ChildhoodConduct is Number of of Childhood Conduct problems participant reported. 0=None; 1=1; 2=2, if male; 2=2 or more, if female; 3=3 or more, if male A breathalyzer was administered at the beginning of each subject visit day (most subjects came for 2 days, but some came for parts of 3 or 4 days) before scanning and behavioral tests and the measures are for any breathalyzer reading over 0.05 or 0.08 on any of the visit days. Best, Jenn Jennifer Elam, Ph.D. Scientific Outreach, Human Connectome Project Washington University School of Medicine Department of Neuroscience, Box 8108 660 South Euclid Avenue St. Louis, MO 63110 314-362-9387<tel:314-362-9387> e...@wustl.edu<mailto:e...@wustl.edu> www.humanconnectome.org<http://www.humanconnectome.org/> ________________________________ From: Claude Bajada <c.baj...@fz-juelich.de> Sent: Thursday, August 31, 2017 11:15:06 AM To: Elam, Jennifer Subject: Re: [HCP-Users] Question about restricted data Hi Jenn, Thanks for your quick reply. I want to run an analysis on a cohort that is as "normal" as possible and so I am screening out people who have had a history of drug use, psychiatric illness etc... for the most part, this is straightforwards, however, there are a few scores that I cannot figure out. For example, SSAGA_Agoraphobia is scored with most people having "1", some having "5" a few others have "0" is this a scale? are they categories? Is this a clinical diagnosis or just self report? SSAGA_PanicDisorder, on the other hand seems to be boolean. I cannot wrap my head around what each score represents. I found the HCP data dictionary but it does not quite give the answers to these questions (or if it does, I cannot seem to find them). Other scores which I cannot make out are: SSAGA_ChildhoodConduct Finally, regarding the Breathalyer data, am I correct in interpreting that this was a breathalyser done just before the scan? Sorry for the multiple questions! Regards, Claude On 31.08.2017 17:43, Elam, Jennifer wrote: Hi Claude, You can direct your questions to me. If we can stay sufficiently general about the scores I'll post the answer to the list for everyone's benefit. Best, Jenn Jennifer Elam, Ph.D. Scientific Outreach, Human Connectome Project Washington University School of Medicine Department of Neuroscience, Box 8108 660 South Euclid Avenue St. Louis, MO 63110 314-362-9387<tel:314-362-9387> e...@wustl.edu<mailto:e...@wustl.edu> www.humanconnectome.org<http://www.humanconnectome.org/> ________________________________ From: hcp-users-boun...@humanconnectome.org<mailto:hcp-users-boun...@humanconnectome.org> <hcp-users-boun...@humanconnectome.org><mailto:hcp-users-boun...@humanconnectome.org> on behalf of Claude Bajada <c.baj...@fz-juelich.de><mailto:c.baj...@fz-juelich.de> Sent: Thursday, August 31, 2017 10:12:31 AM To: hcp-users@humanconnectome.org<mailto:hcp-users@humanconnectome.org> Subject: [HCP-Users] Question about restricted data Dear all, I have a question about some scores on the restricted data. I don't think that I'd be divulging anything in particular but just to be safe, is there a restricted mailing list or a specific person I can send the question to in order to be sure not to break any terms? Regards, Claude ------------------------------------------------------------------------------------------------ ------------------------------------------------------------------------------------------------ Forschungszentrum Juelich GmbH 52425 Juelich Sitz der Gesellschaft: Juelich Eingetragen im Handelsregister des Amtsgerichts Dueren Nr. HR B 3498 Vorsitzender des Aufsichtsrats: MinDir Dr. Karl Eugen Huthmacher Geschaeftsfuehrung: Prof. Dr.-Ing. Wolfgang Marquardt (Vorsitzender), Karsten Beneke (stellv. Vorsitzender), Prof. Dr.-Ing. Harald Bolt, Prof. Dr. Sebastian M. 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