A lot of this sounds way too familiar for me. I would be thinking hip
bones/heads of your femur pressure points or less likely your ischeal (butt)
bone. You may want to have it checked out now because if it's started something
inside that's yet to show itself, there may be something that can be done
before more damage is caused.. Not trying to scare you but this all sounds way
too familiar… Jeff
On Friday, January 12, 2024 at 09:52:44 AM PST, Eric Olson
<whee...@wi.rr.com> wrote:
Wish I could help. You could just monitor it, but if it continues, I would
assume something is going on. I don't have any sweating issues so I can't
really relate.Regardless, sweating is probably not a good sign. Sorry I
couldn't be more helpful
On Thu, Jan 11, 2024 at 10:37 PM Michelle Harkness
<hotwheelsmiche...@gmail.com> wrote:
Hey Greg!
I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel or
UTI for me. Bowel and UTI are usually not constant though, they come and go
for sweats, like when I'm actually pooping. I also use a magic bullet every
other night and have been successful with it for 30 years! The pressure point
is the only one that will have the sweating immediately stop if I reposition.
I don't usually even have a breakdown of skin with the "bed sweats", it's
usually if my pillow between my knee and ankle points has shifted and I have
bone to bone contact, if my top leg has somehow fell forward over my bottom and
stayed there for a while, or if my heels are not on a pillow and are making
contact with the bed. I also use an alternating air pressure mattress, which
works fairly good, but not always the best.
Weirdly, I'm wondering if it could just be a bone pushing against you inside
that your body is not feeling comfortable with? Especially if you're not
seeing red marks anywhere. I will usually have faint red marks if any of the
above happen, which go away fairly quickly. With internal stuff, like my
galbladder and pancreas having an issue, they showed up in spasms, not sweats.
The only other time the sweats were weird, was when I went into labor with my
kiddo. The contractions mimicked my pooping contractions and made me sweat
with every one - I assume that's not an issue for you though. ;)
I would say to pay extra special attention to your positioning and see if
anything is pressing more firmly. I usually sweat opposite - so if I'm
sweating on the left, the right is most likely the problem and vice versa.
I'm really wondering if one of your kidney stones just decided to present
differently or get stuck somewhere else to provide your night sweats? That
could potentially be a pressure point your body doesn't like as well. My hubby
just had his first stone a few months ago and I legit thought he was dying! A
trip to the ER, lots of pain meds and a 5 mm stone later, he was okay! Not
gonna lie, I was not impressed with the stone - I always thought they were
bigger!
I swear there should be a whole special book on how our body gives us different
signs as quads!! Best of luck figuring things out and I hope it's sooner
rather than later!
Michelle
On Thu, Jan 11, 2024 at 10:13 PM Greg <mongrelti...@gmail.com> wrote:
Hi all.
I'm a C5 quad since a diving accident in August 1987 when I was 23. I just
turned 60, am(was) 5'10" and I weigh 182 lbs, down from 205 lbs this time last
year.
Amazingly enough I have used the same bowel program since leaving the hospital
in 1988. Every other night I lay on my left side then use a suppository (Magic
Bullet by Concepts in Confidence) the following morning. Most mornings my
program is finished in 2 hours, sometimes 2.5. Yes, I have been very lucky in
that regard. The following night I lay on my right side. In other words, I
empty my bowels every 48 hours. Also, I usually spend about 8 hours on my side
each night.
The last four nights I have started sweating profusely in the middle of the
night. The sweating is usually limited to my neck, shoulder, side, and arm but
only on the side that I'm not laying on. So when I'm laying on my left side, my
right side sweats, then the following night while laying on my right side, I
sweat on the left side. I have no sensation from the mid-shoulder down, but
strangely enough I do feel the sweating.
Re: pressure sores, occasionally I do have superficial pressure sores at the
ischial tuberosity location, but nothing serious since 2004-2005 when I had a
bad one that required surgery and sidelined me for almost 2 years. Since 2004 I
have slept on an Invacare air mattress, and for the past 5 years it's been the
Invacare MA600 system. Today my butt (and sides, hips, knees) looks good, and
at 60 I don't spend a lot of time in my chair for fear of developing a pressure
sore. My caregiver has been with me the entire time and knows as much about
decubitus ulcers as I do. The sweating does not appear to be caused by pressure
on my skin. Of course it could be something under the skin but I don't know.
Another problem I have dealt with for the past 30+ years is kidney stones.
Kidney stones have their own set of warning signs but sweating has never been
one of them for me. I mention this because it's possible I do have kidney
stones as I pretty much live with them all the time. Several times over the
years I have had lithotripsy to remove large stubborn kidney stones that caused
persistent UTIs, but it's not surprising for me to pass several kidney stones,
sometimes quite large, over the course of a few weeks and I can usually tell
when it's about to happen. Headaches, chills, and muscle spasms in certain
areas of my side and lower back, almost always accompany kidney stones, and I
am not experiencing any of these at the moment. No UTI symptoms at the moment
either.
So, my question is what could be causing these cold clammy sweats? Have any of
you old timers experienced this and figured it out? Is it always a pressure
situation? I do remember sweating profusely on my head and face whenever I was
up in my chair right before finding the bad open pressure sore on my butt back
in 2004, But back then neither of us knew what a pressure sore was so we didn't
know to look for something like that. We do now but again my caregiver sees no
evidence of pressure on my skin anywhere.
Any suggestions or help would be very much appreciated. Thanks to all of you
who contribute here on the quad-list, and especially Jim Lubin for providing us
with this forum all these years.
Best, Greg
