Sleep apnea (was something else)

2004-09-01 Thread Nick Arnett
Julia Thompson wrote:
Will you be undergoing treatment?  That might help out on the mistake
front after awhile.  ;)  (And improve your health in general, in all
likelihood)
I have another sleep study, to titrate for CPAP, schedule in October 
(the waiting was that long for the first study, too).  I'm not happy 
about finding that our insurance only covers 80 percent of the cost of 
tests -- polysomnography (a lie detector test while you're sleeping, 
sort of) is expensive.  Cheaper than Dave's MRIs though...

But I am quite hopeful that I'll be a lot sharper if I can use CPAP. 
I'm sleepy much of the time and my memory annoys me, especially int the 
last year or so, but now that I understand all this better, I think it's 
been a life-long thing, quite probably related to ADHD.  I really 
believe that part of the reason I've had a rather exciting life is that 
I chose high-affect activities (positive and negative ones, I'll add) 
in part just to keep awake.

There's surgery that's 90 percent effective, but it involves moving 
one's upper and lower jaw forward, which means breaking various bones, 
then orthodontics to correct the bite... and adds up to being out of 
commission for a month.  It's quite expensive and insurance is very, 
very reluctant to pay for it.

CPAP compliance rates are around 40 percent -- most people can't 
tolerate it for one reason or another.  There are some in-between 
surgeries, but their success rate is not great, except for one method 
that wears off after two years or so (that one stiffens the tongue via 
radio waves).

For some people, losing weight improves things, but that's not much of 
an option in my case, since I don't have much excess.

So far treatment has meant getting to bed by 10:30, getting 30 minutes 
of sunlight within 15 minutes of waking up (not sure how I'll do that in 
the winter, but I suppose full-spectrum lights are in order), and no 
alcohol within four hours of bedtime.  We have a nice collection of 
wine, most of which came from the demise of one of the dot-coms, which 
is getting more aging than I would have expected.

Nick
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Re: Sleep apnea (was something else)

2004-09-01 Thread Dave Land
On Sep 1, 2004, at 7:52 AM, Nick Arnett wrote:
CPAP compliance rates are around 40 percent -- most people can't 
tolerate it for one reason or another.  There are some in-between 
surgeries, but their success rate is not great, except for one method 
that wears off after two years or so (that one stiffens the tongue via 
radio waves).
Having slept -- or tried to sleep -- next to a CPAP-using spouse for 
several
weeks before she joined the ranks of the 60% of non-compliant patients, 
I can
very well understand why compliance rates are so low. Think of trying to
sleep with a plastic mask over your nose (and maybe mouth), elastic 
webbing
around your head to keep it on, and a one-inch hose running to a bread
box-sized machine on your dresser, and you'll have an idea of what it's 
like
just to lay down to sleep. Now imagine trying to fall asleep during
quarter-hour or so while the pressure ramps up (if you are fortunate 
enough
to have insurance that covers one of the more recent devices that ramps 
up
to operating pressure).

At night, the ice weasels come. Or anyway, the face-farts. At least on 
my
Japanese-descended wife's face, the masks (we went through three before 
she
finally gave up) began to leak just about the time she began to actually
fall asleep and the muscle tone in her face relaxed. The result is a
continuous fart sound, which is annoying and funny enough, but then she
starts laughing, and the fart sound changes from continuous (which is 
bad)
to pulsing (which is worse, being much funnier).

Eventually, if she was lucky enough to make it past the face-farts and
fall asleep, then, her jaw went slack and the air rushing in her nose
started leaking out through her relaxed lips, which was pretty
unattractive and distracting for me, if not her.
Nick's milage may vary, of course, as he is not (to the best of my
knowledge), an Asian female.
Sincerely,
Dave
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Re: Sleep apnea (was something else)

2004-09-01 Thread Jim Burton
On Sep 1, 2004, at 8:52 AM, Nick Arnett wrote:
There's surgery that's 90 percent effective, but it involves moving 
one's upper and lower jaw forward, which means breaking various bones, 
then orthodontics to correct the bite... and adds up to being out of 
commission for a month.  It's quite expensive and insurance is very, 
very reluctant to pay for it.

Another surgical option involves a laser that sears the obstructing 
flesh. Unfortunately I tried it -- even with the codiene-based pain 
meds it was the worst pain I have ever known (and you're talking to a 
former cancer patient here) This hell went on for two weeks.

It did work, though. But for only about six months.
I was told that insurance wouldn't cover it because the effects were 
often temporary, but it sounded better to me than CPAP.

Not worth it!
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Re: Sleep apnea (was something else)

2004-09-01 Thread Robert Seeberger

- Original Message - 
From: Dave Land [EMAIL PROTECTED]
To: Killer Bs Discussion [EMAIL PROTECTED]
Sent: Wednesday, September 01, 2004 12:34 PM
Subject: Re: Sleep apnea (was something else)


 On Sep 1, 2004, at 7:52 AM, Nick Arnett wrote:

  CPAP compliance rates are around 40 percent -- most people can't
  tolerate it for one reason or another.  There are some in-between
  surgeries, but their success rate is not great, except for one
method
  that wears off after two years or so (that one stiffens the tongue
via
  radio waves).

 Having slept -- or tried to sleep -- next to a CPAP-using spouse for
 several
 weeks before she joined the ranks of the 60% of non-compliant
patients,
 I can
 very well understand why compliance rates are so low. Think of
trying to
 sleep with a plastic mask over your nose (and maybe mouth), elastic
 webbing
 around your head to keep it on, and a one-inch hose running to a
bread
 box-sized machine on your dresser, and you'll have an idea of what
it's
 like
 just to lay down to sleep. Now imagine trying to fall asleep during
 quarter-hour or so while the pressure ramps up (if you are fortunate
 enough
 to have insurance that covers one of the more recent devices that
ramps
 up
 to operating pressure).

I couldn't use the C/Pap for my sleep apnea. I would go to sleep just
fine, but would wake up an hour or two later with an intense feeling
of claustrophobia. I couldn't get that mask off fast enough.
So far I just suffer through it.
Frex: It took me 10 minutes to recall the word claustrophobia.
It's frustrating.

xponent
On The Tip Of My Tongue Maru
rob


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RE: Sleep Apnea

2003-06-09 Thread Andrew Crystall
On 8 Jun 2003 at 21:10, Nick Arnett wrote:

  This is my favorite sleep apnea site: http://www.sleepnet.com/
 
 I am now learning more about somnoplasty...

Heh. I'm just plain insomniac and not only have doctors attempts to 
cure it miserably failed, most of the sleep tablets make me intensely 
nauseus. Such is life... (I'm also resistant to dental anesthetic and 
get some interesting side effects from general anesthetics - the last 
for the same reason I can't eat banannas :) )

Andy
Dawn Falcon

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RE: Sleep Apnea

2003-06-08 Thread Horn, John
 From: Nick Arnett [mailto:[EMAIL PROTECTED]

 But I definitely pay attention (no joke intended)to news about
 connections between sleep apnea and AD/HD, etc.

Since the information about that was posted, we started wondering if
something like this might be effecting my daughter.  She was showing some
signs of ADHD and other behaviour problems.  She was complaining about being
tired ALL the time.  It took a bit to convince my wife to take it seriously
but eventually we brought her to someone to be checked out.  It turns out
that she is definitely not ADHD but does have a sleep disorder of some sort.
The treatment is Benadryl!  She's been taking it every night before she goes
to bed for a couple of months now and it has done wonders for her.  She's
not complaining about being tired anymore.  Her behaviour has improved
markedly.  It's wonderful.

All because of a link posted to this list!

That's why I stay on Brin-L!

 - jmh
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RE: Sleep Apnea

2003-06-08 Thread Gary Nunn

 Benadryl!  She's been taking it every night before she goes 
 to bed for a couple of months now and it has done wonders for 
 her.  She's not complaining about being tired anymore.  Her 
 behavior has improved markedly.  It's wonderful.
 All because of a link posted to this list!
 That's why I stay on Brin-L!
 
  - jmh


I would guess that the antihistamine in the Benadryl is stopping
inflammation or swelling that was causing her to have difficulty
breathing?

My 9 year old daughter has ADHD and asthma and did a sleep study for
sleep apnea. She sleeps poorly, has big bags under her eyes and is tired
and irritable. I started watching what she was eating, put a HEPA filter
in her room and use a waterproof slip cover over her mattress to help
reduce any allergens that may be there. Her symptoms of ADHD have
decreased dramatically. Her doctor explained that the sleep problems
were greatly aggravating the ADHD.

I have severe obstructive sleep apnea. I have been using a bi-pap for
over a year now and my life has changed dramatically. Aside from not
feeling like a truck hit me every morning, my memory has started to
return and my cognitive abilities have dramatically improved. My short
term memory was to the point that I often could not remember where I
parked or sometimes even my phone number without making a serious effort
to concentrate on remembering it.  Other changes I am experiencing -  I
stopped falling asleep at my desk and at stop lights, my blood pressure
has returned to normal and I have been taken off of blood pressure meds
and the most dramatic, and my favorite, is that I have started to lose
weight. 

My family doctor has suspected for years that I had sleep apnea, but he
didn't send me to the neurologist because he was not that familiar with
the causes and treatments. His solution was to lose weight. But the
irony is, that it was impossible to lose weight with the sleep apnea. My
metabolism was slowed to the point that weight loss was nearly
impossible.  The metabolism slows to compensate for the lack of oxygen
at night. My blood 02 content was below 47% at night during my sleep
study. The neurologist said that, untreated, I had a 100% chance of
having a heart attack or stroke in the next 5 years - that is if I
didn't kill myself falling asleep in traffic.

So needless to say, I chose the treatment.

Nick, if you suspect that you have any degree of sleep apnea, ask your
family doctor to send you to a neurologist that specializes in sleep
disorders. You won't be sorry.

Since I have responded so well to the treatment, and I have started to
lose weight, I have recently found out that once I lose a bit more
weight, I can have a minor throat surgery and likely be completely cured
of the apnea.  The neurologist said that I would have had sleep apnea
even had I not gained weight and aggravated the condition.

The symptoms that originally took me to the doctor were rapid and
unexplained weight gain, snoring (of course), severe heartburn at night
(also vomiting in my sleep) , waking up gasping for breath, waking up
exhausted, and the morning headaches. There is nothing like a headache
induced by lack of oxygen. I would choose a migraine ANY day over that.
Of course, there were the weird things like not being able to breathe in
my dreams. Gheeze, and I thought it was all because my ex-wife was
putting the pillow over my face at night :-)

I finally decided in March 2002 to seek treatment when a former
co-worker, who also had sleep apnea, vomited in his sleep and aspirated
it into his lungs as he gasped for breath. His wife watched him die on
their bedroom floor before the ambulance got to him. 

This is my favorite sleep apnea site: http://www.sleepnet.com/

Gary

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Re: Sleep Apnea

2003-06-08 Thread Han Tacoma
Hey John,

I hope Debbi can add something to this.
Diphenhydramine is an antihistamine, they are for allergies!

One can get pneumonia due to dehydration (and aggravate asthma).
This is true of all antihistamines.

Maybe ask Dr. about Valerian root tea for the sleep condition?
Camomille tea also helps but I guess those would be hard to
get a child to accept.

I don't mean to alarm you, it's just that I feel strongly about
Doctors freely Rx'ing drugs as a quick fix (pardon the pun)
or the solution to a problem.

Also check:
http://www.allergy-cold.com/conaffairs/benadryldecongestant.shtml
http://www.dermnetnz.org/index.html

Cheers!
--
Han Tacoma

~ Artificial Intelligence is better than none! ~

- Original Message - 
From: Horn, John [EMAIL PROTECTED]
To: Killer Bs Discussion [EMAIL PROTECTED]
Sent: Sunday, June 08, 2003 1:40 PM
Subject: RE: Sleep Apnea


  From: Nick Arnett [mailto:[EMAIL PROTECTED]
 
  But I definitely pay attention (no joke intended)to news about
  connections between sleep apnea and AD/HD, etc.
 
 Since the information about that was posted, we started wondering if
 something like this might be effecting my daughter.  She was showing some
 signs of ADHD and other behaviour problems.  She was complaining about being
 tired ALL the time.  It took a bit to convince my wife to take it seriously
 but eventually we brought her to someone to be checked out.  It turns out
 that she is definitely not ADHD but does have a sleep disorder of some sort.
 The treatment is Benadryl!  She's been taking it every night before she goes
 to bed for a couple of months now and it has done wonders for her.  She's
 not complaining about being tired anymore.  Her behaviour has improved
 markedly.  It's wonderful.
 
 All because of a link posted to this list!
 
 That's why I stay on Brin-L!
 
  - jmh


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RE: Sleep Apnea

2003-06-08 Thread Andrew Crystall
On 8 Jun 2003 at 14:52, Gary Nunn wrote:

 waking up exhausted, and the morning headaches. There is nothing like
 a headache induced by lack of oxygen. I would choose a migraine ANY
 day over that. Of course, there were the weird things like not being

Agree totally. Of course, it's only happened a few times to me (if I 
try and sleep on aircraft, basically), but it's certainly memorable. 
Worse than mild concussion IMO.

Andy
Dawn Falcon

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RE: Sleep Apnea

2003-06-08 Thread Horn, John
 From: Han Tacoma [mailto:[EMAIL PROTECTED]

 I hope Debbi can add something to this.
 Diphenhydramine is an antihistamine, they are for allergies!

Diphenhydramine also makes you very sleepy.  Very, very sleepy.  That's the
PM part of Tylenol PM.  It's just Tylenol with Benadryl.

So it is helping her sleep.

 - jmh
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RE: Sleep Apnea

2003-06-08 Thread Ronn!Blankenship
At 02:52 PM 6/8/03 -0400, Gary Nunn wrote:

 Benadryl!  She's been taking it every night before she goes
 to bed for a couple of months now and it has done wonders for
 her.  She's not complaining about being tired anymore.  Her
 behavior has improved markedly.  It's wonderful.
 All because of a link posted to this list!
 That's why I stay on Brin-L!

  - jmh
I would guess that the antihistamine in the Benadryl is stopping
inflammation or swelling that was causing her to have difficulty
breathing?


The same substance (diphenhydramine hydrochloride) is the active ingredient 
in many OTC sleeping pills because it causes drowsiness in many people.



-- Ronn! :)

God bless America,
Land that I love!
Stand beside her, and guide her
Thru the night with a light from above.
From the mountains, to the prairies,
To the oceans, white with foam…
God bless America!
My home, sweet home.
-- Irving Berlin (1888-1989)

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Sleep Apnea

2003-06-07 Thread Gary Nunn


Anyone here have, or known someone who has, sleep apnea?  I am curious
about the before and after comparisons after beginning treatment. Not
the obvious of sleeping better, but the more subjective things like
cognitive ability, memory, physical health (including weight), etc.

Just curious.

Gary

Slept good last night Maru.

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Re: Sleep Apnea

2003-06-07 Thread Kevin Tarr
At 02:38 PM 6/7/2003 -0400, you wrote:


Anyone here have, or known someone who has, sleep apnea?  I am curious
about the before and after comparisons after beginning treatment. Not
the obvious of sleeping better, but the more subjective things like
cognitive ability, memory, physical health (including weight), etc.
Just curious.

Gary

Slept good last night Maru.


I know four people with it. Three have had treatments, one had surgery, 
another needed his nose adjusted, the third uses a sleeping device like a 
mask the provides positive pressure while sleeping. The fourth finally is 
seeing a doctor in a few weeks. What treatment are you talking about?

Of the three things you mention, only weight has not improved. All were 
told to lose weight first anyway and none did. Three of them were told to 
not drink alcohol as much especially drinking then going right to bed. None 
of them stopped that.

So it does improve your life, as far as being awake during the day.

Kevin Tarr
Good luck
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RE: Sleep Apnea

2003-06-07 Thread Nick Arnett
 -Original Message-
 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
 Behalf Of Gary Nunn
 Sent: Saturday, June 07, 2003 11:38 AM
 To: Brin Mail List
 Subject: Sleep Apnea




 Anyone here have, or known someone who has, sleep apnea?  I am curious
 about the before and after comparisons after beginning treatment. Not
 the obvious of sleeping better, but the more subjective things like
 cognitive ability, memory, physical health (including weight), etc.

I have borderline sleep apnea, but since it's just borderline, Kaiser won't
treat it.  But I definitely pay attention (no joke intended) to news about
connections between sleep apnea and AD/HD, etc.

Nick

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RE: add, snoring, sleep apnea

2003-03-04 Thread Nick Arnett
 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
 Behalf Of Gary L. Nunn

...

 My daughter actually had a sleep study done to determine if her ADHD was
 caused or aggravated by lack of sleep due to sleep apnea. After three
 years of chronic sleep depravation, it was determined that it was caused
 by the Ritalin she was taking.She was switched to Strattera (a
 non-narcotic, non-stimulant) and now it is a whole new world. She sleeps
 now, she doesn't have the highs and lows that she had with Ritalin and
 her appetite is back and she is gaining weight (she was chronically
 underweight).

I was in the clinical trial for Strattera (atomoxetine).  Any idea what it
costs to buy it?  Lilly is giving it to me for free for another five months,
then I'll have to convince Kaiser to carry it, if they haven't already done
so.  But I would think that since it's the first non-stimulant for ADD/ADHD,
parents in particular will be demanding it instead of Ritalin, etc.

But I seem to do better with a combination of Concerta (sustain-release
Ritalin) and Strattera.

Nick

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add, snoring, sleep apnea

2003-03-03 Thread The Fool
CHICAGO (Reuters) - Some hyperactive children thought to be suffering
from attention deficit disorder may just be overtired because they are
bad sleepers or heavy snorers, researchers said on Monday. 
  
To the parent, the message is if you have a kid who is hyperactive and
snores, think about the possibility that the two may be connected, study
author David Gozal of the University of Louisville said. 
  
In his study published in the journal Pediatrics, Gozal found roughly
one-quarter of 5- to 7-year-old children with mild symptoms of attention
deficit/hyperactivity disorder (ADHD) also snored. In some cases, the
breathing problems reached the level of sleep apnea, where breathing is
blocked repeatedly through the night and sleep is disturbed. 
  
Over the years, we have observed many of those cases who came off their
ADHD medications once they were treated for their sleep apnea, Gozal
said. 
  
As many as 5 percent of American children, a majority of them boys, are
believed to be affected by ADHD, which is characterized by inattention,
impulsiveness and overactive behavior. 
  
Gozal said some candidates for the disorder are prescribed drugs without
a very thorough evaluation as recommended by the American Academy of
Pediatrics, the pediatricians' group that publishes the journal. 
  
  
  
Pediatricians and parents should be aware that in a proportion of these
kids, their hyperactive symptoms may be due to the presence of snoring
and sleep apnea. Therefore, in this subset of 'hyperactive' children who
have sleep apnea, treatment of the sleep apnea should lead to marked
improvement if not complete disappearance of their hyperactivity
symptoms, Gozal said. 
Copyright © 2003 Reuters Limited
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RE: add, snoring, sleep apnea

2003-03-03 Thread Gary L. Nunn

 Subject: add, snoring, sleep apnea
 CHICAGO (Reuters) - Some hyperactive children thought to be
 suffering from attention deficit disorder may just be 
 overtired because they are bad sleepers or heavy snorers, 
 researchers said on Monday. 


My daughter actually had a sleep study done to determine if her ADHD was
caused or aggravated by lack of sleep due to sleep apnea. After three
years of chronic sleep depravation, it was determined that it was caused
by the Ritalin she was taking.She was switched to Strattera (a
non-narcotic, non-stimulant) and now it is a whole new world. She sleeps
now, she doesn't have the highs and lows that she had with Ritalin and
her appetite is back and she is gaining weight (she was chronically
underweight).

Gary


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RE: add, snoring, sleep apnea

2003-03-03 Thread Nick Arnett
 -Original Message-
 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
 Behalf Of The Fool
 Sent: Monday, March 03, 2003 5:23 PM
 To: Brin-L
 Subject: add, snoring, sleep apnea


 CHICAGO (Reuters) - Some hyperactive children thought to be suffering
 from attention deficit disorder may just be overtired because they are
 bad sleepers or heavy snorers, researchers said on Monday.

I've seen this correlation documented more than once before.  And I have
borderline sleep apnea, so I fit the picture...  There are those who think
that people with ADHD are just trying to stay awake!  I'm fighting
sleepiness right now after a long day of coding.

Nick

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Re: add, snoring, sleep apnea

2003-03-03 Thread Julia Thompson
The Fool wrote:
 
 CHICAGO (Reuters) - Some hyperactive children thought to be suffering
 from attention deficit disorder may just be overtired because they are
 bad sleepers or heavy snorers, researchers said on Monday.

I'd seen something about this before.  It would certainly be something I'd
look into before putting my own child on medication.

plug

And Breathe-Rite strips are OK for use by children as young as 6, IIRC,
maybe even younger.  :)  (I was looking at the docs that fell out of the box
last night as Dan was desperately trying to find one.  He ended up using one
that was a bit small (bought for me originally) because *anything* was
better than nothing.  He's slept significantly better since he started using
them.)

/plug

Then again, I think I may be more gung-ho than average on correlating
quality  quantity of sleep with quality of life.

Julia
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