Re: [CML] Continue posting here

2005-02-26 Thread Neddo Family
Nancy, I was having trouble with the new site too. So I went there and requested a new password. Now I am good to go. I hope this works for you. You will be emailed a new password. Barb hey00nanc wrote: Well, I guess this site is going to continue to function, so for those of us

Re: [CML] Notify about your e-mail account utilization.

2005-02-14 Thread Neddo Family
Don't open the attachement. This looks like a virus. [EMAIL PROTECTED] wrote: Dear user, the management of YAHOOGROUPS.COM mailing system wants to let you know that, Your e-mail account has been temporary disabled because of unauthorized access. Please, read the attach for

Re: [CML] Re: Richard/3 log reduction ?

2005-02-08 Thread Neddo Family
This is the southeastern blood bank of Wisconsin. Dr. D. or his nurse, Carolyn, looked at the testing and explained that it is out of a million cells so the testing is good. hey00nanc wrote: --- In CML@yahoogroups.com, Neddo Family [EMAIL PROTECTED] wrote: Oops - he is now at .033

Re: [CML] Re: Richard/3 log reduction ?

2005-02-08 Thread Neddo Family
: --- In CML@yahoogroups.com, Neddo Family [EMAIL PROTECTED] wrote: Nancy C. and all, Tommy started out at 2.0 and is now at .0033 pcr. Barb, Mom to Tom, 16, dx 8/04, BMT pending _ Hi Barb, So, Tom has close to a 3 log reduction, which is a very

Re: [CML] Mozilla Firefox

2005-02-04 Thread Neddo Family
Kristin Jennifer, Thanks for the info on Firefox and the link for download! Barb Neddo, Mom to Tom, 16, dx 8/04, BMT pending Kristin Lieberman wrote: --- In CML@yahoogroups.com, "jennifer g" [EMAIL PROTECTED] wrote: You're right that IE is the most vulnerable. A new browser

Re: [CML] Re: Important notify - hoax

2005-02-03 Thread Neddo Family
Good point, Jennifer. We have done a couple things in our house to avoid these computer problems (spyware, viruses, etc.) - I have a Macintosh computer and I don't have to deal with any of those problems. My husband has a PC running Windows XP. He had spyware so bad that he brought his

Re: [CML] Psychosocial Function After Hematopoietic Stem Cell Transplantation

2005-01-14 Thread Neddo Family
Cheryl-Anne, I would like the full article here or you could email it to me privately. Thanks, Barb Cheryl-Anne Simoneau wrote: I will be happy to get the full article and put it here if anyone would like it. Please let me know. Cheers, Cheryl-Anne

Re: [CML] Re: consultation with Dr. Druker - update - Barb

2005-01-04 Thread Neddo Family
Mark, I am composing a list of questions right now for the transplant doctor and will include a question about the pediatric gvhd. I hadn't thought about asking for this information. Thanks again for the help, thoughts and input. I wish you well on your CML journey. Happy New Year! Barb

[CML] consultation with Dr. Druker - update

2004-12-31 Thread Neddo Family
For an update - I wrote that I have a 16 year old son with CML. My husband, son, Tommy, and I are weighing our options for transplant vs. staying on Gleevec. We saw Dr. Druker on Dec. 16 in Portland (a beautiful city). I just got around to posting because we enjoyed a vacation in warmer

Re: [CML] Re: consultation with Dr. Druker - update

2004-12-31 Thread Neddo Family
for your email address to respond personally, but can't for the life of me find out what I did with it. Guess it's that post 40 thing. Barb hey00nanc wrote: --- In CML@yahoogroups.com, Neddo Family [EMAIL PROTECTED] wrote: Right now we are leaning towards transplant (given the higher

Re: [CML] I did not know ....... Plastic is bad???

2004-12-22 Thread Neddo Family
This is a hoax. See: http://urbanlegends.about.com/library/bl_frozen_plastic_dioxin.htm Halff Phast wrote: Subject: CANCER ALERT To all FYI A Johns Hopkins Hospital! Report Johns Hopkins has recently sent this out in their Newsletters. This information is being

Re: [CML] iron supplements--multivitamins

2004-10-31 Thread Neddo Family
Trisha, My son is on 600 mg Gleevec and takes 325 mg of ferrous sulfate (iron supplement) twice a day. This was recommended by his oncologist and his iron count has gone up. Barb [EMAIL PROTECTED] wrote: Is it okay to take iron supps and or multivitamins with gleevec? T

Re: [CML] Treatment of CML in pediatric patients: Should imatinib mesylate (STI-571, Gleevec) or allogeneic hematopoietic cell transplant be front-line therapy?

2004-10-23 Thread Neddo Family
Rob, This is the article I referenced in my post of 10/11/04 - Transplant vs. Gleevec in a pediatric patient. After reading this article and other articles and getting some info. from Tommy's oncologist and members of this group, we (my husband I) decided to look into the transplant option.

Re: [CML] Treatment of CML in pediatric patients: Should imatinib mesylate (STI-571, Gleevec) or allogeneic hematopoietic cell transplant be front-line therapy?

2004-10-23 Thread Neddo Family
Rob, You left off the conclusion part of the abstract: CONCLUSIONS: Studies with imatinib are underway in pediatrics, but whether pediatric dosing schemes will lead to outcomes similar to adults is unknown. Because HLA-matched myeloablative transplantation offers a high rate of cure in the

Re: [CML] Re: Flu Shots and Interferon

2004-09-28 Thread Neddo Family
I asked my son's oncologist last week about getting a flu shot. She said to get one. The flu shot isn't a "live" vaccine. Barb snickersunny wrote: Good question! May I add to the question.. Should people with CML have a flu shot, regardless of age? Hopefully, someone can shed some