[CML] Angel flights, etc.

2005-06-05 Thread avisallen
Hi Rob - Thank you for your detailed list of available help on free flights and on help with housing at cancer centers. I am sure some people might not know such aid exists. Most sincerely, Avis (Hertz Nurtle) Yahoo! Groups Sponsor ~-- In low

[CML] Thank you

2005-05-28 Thread avisallen
Just wanted to thank those of you who provided me with the angel flight info. This includes a couple of private emails whose addresses somehow disappeared overnight. I was able to give this woman the info promptly and she plans to act upon it. Also, I mentioned that cousin Dona would try to get

[CML] Angel Flights

2005-05-26 Thread avisallen
Hi- Can't remember the exact name of the service that can possibly provide air transpo for patients that are in financial need. Is this only for the Leukemia/Lymphoma society patients, etc. Seemed to me had the word angel in the email address. I really need to know this! I have a neighbor whose

[CML] Warning on enlarged heart

2005-05-18 Thread avisallen
Hi to all - You who have been around a while through all the side effects of my cousin, Dona, are about to hear a new one. She is a patient of Dr. Talpaz (4 years) and in Oct. 2003, she had to have an echocardiogram as he wanted every one of his patients to do so. Monday, she had a plain chest

[CML] Subscription

2005-02-13 Thread avisallen
Hi, Ron - Thank you for fixing the mail-to- me part of all this. I did a test of thanking you via the new site, but it did not go through. At least I can read the posts. Avis Yahoo! Groups Sponsor ~-- Give the gift of life to a sick child. Support

[CML] Continued

2005-02-13 Thread avisallen
Ron - Decided to go onto the site to change to Digest, but couldn't get through at all. Could this be WebTv as John mentioned? II had no trouble getting to that site (groups-beta.google.com/group/ CMLHope) before. Is this URL still correct? Avis Yahoo! Groups Sponsor

[CML] More mammogram

2005-02-03 Thread avisallen
Hi, to MJ - Thank you for answering my Dona question. I talked with her this morning and she wanted me to ask how your dx was determined. Her primary care doc said probably a needle biopsy or a lumpectomy. She has talked this surgeon-type into seeing her Tues. the 8th rather than 10th. She gets

[CML] Mammograms

2005-02-02 Thread avisallen
Dear people - I am writing (as always) on behalf of my cousin, Dona, from Tucson. I am now in a Seattle suburb. She still has limited use of her eyes because of worsening of glaucoma, which she has had for years. The tinnitus is still so severe, she cannot lead any kind of normal life. I had been

[CML] Off to Houston

2004-09-27 Thread avisallen
Hi to all on behalf of my cousin, Dona. She has not been to Houston for one year and must report Oct. 7th of she will be off her clinical trial. Dx'd Dec. 2000 and finally on a trial April 2001. Has been in CCR since Oct. 2001,but as of her last PCR (also one ago in Houston) she had not reached

[CML] MRI/xray on CML patients

2004-09-19 Thread avisallen
Hi to all - Know I have sent this info a few times, but just in case Adrienne didn't see it. When a CML patient has an MRI or xray for any reason, a marking can appear that can be diagnosed by a radiologist as a solid tumor. My cousin, Dona Dunn, had this appear in one shoulder and her

[CML] Giant size blood blister

2004-08-30 Thread avisallen
Hi to all - Cousin Dona has a different problem following her last two Aranesp shots. She has been through (since April 2001) various rashes, and the bright red dots that look exactly like blood (and do not itch). She notices small raised blood blisters after Aranesp but last time had a large one