I have not been negative toward others and have tried to work out
solutions for everyone.
Rob
On Thu, 10 Mar 2005 08:56:16 -, hey00nanc [EMAIL PROTECTED] wrote:
_
Boy Rob.talk about someone putting their own negative spin on
things! Because this list is still
Hi Rob,
I was wondering if you could ask Yahoo for permission to assign
a new,permanent moderator for this group, so that it does not have
to disband. I'm sure that there are many here who might be
interested in the position. Is that possible?
Or, do we, as members, have a contact
The Google group has multiple owners already in place and no additional ones
will be added.
Rob
On Thu, 10 Mar 2005 09:48:40 -0500, Zavie Miller [EMAIL PROTECTED] wrote:
Rob,
Again I will ask the question ... what safeguards have you put in place to
prevent what happened to the list on
The group has moved to Google and CMLHope.Com and has not been disbanded.
The group on Yahoo is still legally my property even though Yahoo has
banned me from the site. Yahoo could not legally turn over private
property from one person to others.
Rob
On Thu, 10 Mar 2005 15:55:47 -,
It really did turn out to be unfortunate that after I refused to
turn over control of the group to Zavie's group that I then ended up
being banned from Yahoo and losing access to bank accounts, financial
records, my business groups on Yahoo, and many other things besides
the CML group which has
No one ever asked you to turn the group over to Zavie or anyone
connected to Zavie. We simply asked that you add moderators and we
even agreed that the moderators should be impartial to the various
disputes that were going on at the time. This obviously meant that
Zavie or his group could
The same questions are being asked over and over and I have already
responded to them. It is not possible to name additional moderators
because the owner account was banned.
Private property is not turned over by force. That is not a pride
issue. That is why we have laws in the United States.
Rob,
I wonder if you can get a quote on how much the legal costs would be
to find out who banned you from Yahoo. I, for one, would HAPPILY
contribute $500 (which it what I pay for a box of Gleevec) to find out
who the culprit is. Perhaps there is lawyer among us would could help?
I am so sad
Rob,
What good is it to have private Property if you are not able to
access your property(your site) without having to use a temporary
name?
No, we don't live our lives in a planned CML community with
association dues, etc. But, we, as a whole make up that group that
you so lovingly
Perhaps some attorneys in the group could suggest what they would
guess the costs might be. I would guess it would probably cost
anywhere from tens of thousands to hundreds of thousands just to bring
a suit against a company the size of Yahoo and there would not be a
very good chance to prevail
I have not bothered anyone in this group and I do not use the members
of this group as a human dartboard. After some of the things that
have been said to me and about me it is really hard to see how your
analogy would be applicable.
If the majority want me out I will start the process of finding
Oh dear, let's stop it already!! Please, MJH
[Non-text portions of this message have been removed]
Yahoo! Groups Sponsor ~--
Give the gift of life to a sick child.
Support St. Jude Children's Research Hospital's 'Thanks Giving.'
Rob,
Nothing is bulletproof and little guys can take on big corporations.
John
-- In CML@yahoogroups.com, Rob [EMAIL PROTECTED] wrote:
They could potentially be liable but it would be a very long road
to
get there. I don't know if their Terms Of Service is bulletproof or
not but any kind
It might be possible to take them on but it would take a lot of money
and years in court. Whether it would even be worth it would be a very
large question in my mind.
Rob
On Thu, 10 Mar 2005 21:16:52 -, John M [EMAIL PROTECTED] wrote:
Rob,
Nothing is bulletproof and little guys can
Rob,
This post appears to accuse me of getting you banned from Yahoo because you
wouldn't turn over control of the CML Yahoo group to me and my group.
How wrong can you possibly be. I have been spending all my energy to keep
this group going. I have even contacted Yahoo and argued on your
--- In CML@yahoogroups.com, hey00nanc [EMAIL PROTECTED] wrote:
I will post here for you Carl.and for anyone else who wants to
know..I had nothing to do with Rob being banned from Yahoo and
know nothing about it.
and I invite each of the members of that
Rob,
I have no personal issues with you, and I have never made any
attempts to destroy your name or reputation. We have never spoken by
telephone and I know very little about you. In fact, I just found
out today that you do not even have CML. It was always my assumption
that you did.
Rob,
I think that it is very important that all the moderators of the new CML
Hope group be named. If they don't want their name mentioned, then they
should not be permitted to moderate this group.
You mention that the reason you don't want to name them is that you don't
want to submit them to
Zavie,
Do you recall offering to become a moderator of the CML group?
I did not accuse you of getting me banned. I simply responded to the
unfortunate comment that was made which stated there would be no
problem if I had added other owners/moderators months ago when the
Group Of Six brought
Rob,
I am member of Zavie's Zero club. This is the only group that Zavie
has, that I am aware of. Is this the group you are referring to?
You make reference to Zavies group getting you kicked off of Yahoo,
but to the best of my knowledge your problems with Yahoo had
already happened and a
I did not say the group had me kicked off of Yahoo.
Did the Group Of Six not bring up adding moderators to the group? That
is what I recall from that time and that is what Tracey just posted
earlier.
Rob
--- In CML@yahoogroups.com, John M [EMAIL PROTECTED] wrote:
Rob,
I am member of
The group is not frequently moderated as is evident here today. I do
not have CML but my mother does which is why the group was started.
Rob
--- In CML@yahoogroups.com, snickersunny [EMAIL PROTECTED] wrote:
Rob,
I have no personal issues with you, and I have never made any
attempts to
Rob,
When did I ever bring up Dane's name? Interesting. I realize that
Dane is in the battle of his life, and thank God he is doing well. I
wish him no ill will. I'm thrilled that he is doing well and will
soon return to his family and his loved ones.
I don't belong to any group of 6
Are you saying that Tracey was wrong in her post? That is what I
recall at the time that the idea was presented to add additional
moderators to the group and I declined.
Rob
--- In CML@yahoogroups.com, John M [EMAIL PROTECTED] wrote:
The only mention of anyone offering to help moderate that
I will not provide you with the list of owners of the new group for
the reasons I have previously stated.
Rob
On Thu, 10 Mar 2005 17:04:10 -0500, Zavie Miller [EMAIL PROTECTED] wrote:
Rob,
I think that it is very important that all the moderators of the new CML
Hope group be named. If
Stop this, stop this, stop this, stop this, please for the sake of everyone's
human decency.
Please stop this. I'm not much of a prayerer but perhaps the Holy Spirit
will enlighten you all about this craziness. Thank you, Sincerely, MJH
[Non-text portions of this message have been
Carol,
When I heard that Rob was banned from the Yahoo site and could no longer
moderate this group I took it upon myself to contact Yahoo to try and
understand what happened.
It was a huge challenge to actually speak to someone at Yahoo, but I
eventually got through. I expressed my great
Nancy mentioned Dane in her post as one of the issues the Group Of
Six presented to me some months ago. It left a bad enough taste in my
mouth at that time and does so even more at the present time to even
mention it again.
Rob
--- In CML@yahoogroups.com, snickersunny [EMAIL PROTECTED] wrote:
Rob,
I didn't ask about a list of owners. I asked about a list of moderators.
Zavie
Moderators.
-Original Message-
From: Rob [mailto:[EMAIL PROTECTED]
Sent: March 10, 2005 5:21 PM
To: [EMAIL PROTECTED]; cml@yahoogroups.com
Subject: [CMLHope] Re: [CML] Re: New Moderator
I will not
Yeah ! ,, What Pat said, please lets not give up on the cml sight.
So what, theres a bunch of crappy adds that we have to sift through to
read the good messages, I kind of get a kick out of the stupid adds
anyway, ( like we can really make it bigger ) ha ha it is to laugh.
look I know I
Has anyone played Halo (X-Box) or Mortal Kombat (Game Cube)? My kids play
them, they are both blood-sport type games that have little to do with
reality.
That's what this list reminds me of today. Which may be appropriate since
CML is a blood-based disease. If this list existed within the
Ok,here is my two cents worth on all the YAHOO GROUP THINGS! I have
started a YAHOO CML GROUP. NO big deal, I clicked start group and
there it was. I am listed as group owner but I don't believe it
to be my personal property it is an internet group for anyone that
needs help with CML.
I'm not sure what post of Tracey's you refer to, please enlighten me.
John
--- In CML@yahoogroups.com, Rob [EMAIL PROTECTED] wrote:
Are you saying that Tracey was wrong in her post? That is what I
recall at the time that the idea was presented to add additional
moderators to the group and I
As I stated before the answer is No.
Rob
--- In CML@yahoogroups.com, Zavie Miller [EMAIL PROTECTED] wrote:
Rob,
I didn't ask about a list of owners. I asked about a list of moderators.
Zavie
Moderators.
-Original Message-
From: Rob [mailto:[EMAIL PROTECTED]
Sent: March
I am sorry that I have been unable to do enough to please everyone. It
has broken my heart to be attacked in the way I have in the past 2
years but that is how life goes.
Rob
--- In CML@yahoogroups.com, Amy B. [EMAIL PROTECTED] wrote:
Ok,here is my two cents worth on all the YAHOO GROUP
So you would rather read the spam that preceded our dialogue with
Rob?
John
-- In CML@yahoogroups.com, Allen Gail Lefebvre [EMAIL PROTECTED]
wrote:
Has anyone played Halo (X-Box) or Mortal Kombat (Game Cube)? My
kids play
them, they are both blood-sport type games that have little to do
It is interesting that you have never ever mentioned to me that you
have been calling Yahoo.
Did you ask them to reinstate me? Did you or your group offer to
become moderators of
the CML group?
Rob
- Original Message -
From: Zavie Miller [EMAIL PROTECTED]
Carol,
When I
--- In CML@yahoogroups.com, [EMAIL PROTECTED] wrote:
Stop this, stop this, stop this, stop this, please for the sake of
everyone's
human decency.
Please stop this. I'm not much of a prayerer but perhaps the Holy
Spirit
will enlighten you all about this craziness. Thank you,
I found it distasteful enough when the arguments were made about Dane
the first time. Now is not the time or place to bring it up again.
This is not a debate group and is not a forum for people to push their
personal agendas and vendettas against others.
Rob
--- In CML@yahoogroups.com,
http://health.groups.yahoo.com/group/CML/message/92967
On Thu, 10 Mar 2005 22:36:38 -, John M [EMAIL PROTECTED] wrote:
I'm not sure what post of Tracey's you refer to, please enlighten me.
John
--- In CML@yahoogroups.com, Rob [EMAIL PROTECTED] wrote:
Are you saying that Tracey
Zavie called yahoo to see what it took to get kicked off of yahoo. I
was online with Zavie when he called yahoo, in fact I found the
number to get into yahoo and talk to a human. He did not ask for
your reinstatement as you had specificaly asked him to not do
anything about getting you
Oh Nancy,
[Non-text portions of this message have been removed]
Yahoo! Groups Sponsor ~--
Give the gift of life to a sick child.
Support St. Jude Children's Research Hospital's 'Thanks Giving.'
Dear Everyone,
This has been an interesting discussion in that we are finding out what goes
on behind the scenes with this list and probably what we can expect to
happen on any other list.
If I am understanding this all correctly, we have people writing to Rob
asking him to put better rules
--- In CML@yahoogroups.com, Rob [EMAIL PROTECTED] wrote:
This is not a debate group and is not a forum for people to push
their
personal agendas and vendettas against others.
Rob
___
I'm not sure what you mean by personal agenda but
I have had enough of the petty bickering. I am a fairly new member, I
don't care what happened in the past...the issue is: the deed is done about
Rob's
situationno amount of arguing is going to fix him being banned unless
yahoo will talk to him. We cannot intercede, and why do you
--- In CML@yahoogroups.com, hey00nanc [EMAIL PROTECTED] wrote:
Then Rob turned the discussion to him being harassed for 2 years,
with
calls in the middle of the night, etc..and revealed who that
person was/is..and she is not a major poster on the CML list,
but
her identity is
Fellow CML patients and caregivers,
I had an excellent report from my Doctor at
my Friday appointment. I am still in remission
based on the BMB that he performed at the
previous appointment. He keeps me in suspense
from the time he does the BMB until the next
scheduled appointment time.
I felt that Rob
should have stepped in when Dane made his ugly remark to me.
Still at it, eh Nancy? I go off for a bone marrow transplant and
come back to find this list in shambles, and you are still griping
about our little online spat? You force me to remind you that it
was
--- In CML@yahoogroups.com, Rob [EMAIL PROTECTED] wrote:
I am sorry for the number of posts I have been made today but I do
feel I have a right to defend myself against those who are
unwilling
to stop.
Rob
I know the feeling. ;o)
Yahoo! Groups Sponsor
Dear Lynne,
I apologized to you for the newbie comment, with the explanation
that the comment did not translate well in email form. The apology
was sincere and immediate. Again, I was simply rejoicing in the fact
the here in the Gleevec era, we have to worry about things like
Dear FriendsI'm thinking as I type this, who
cares what I have to say? But it's America, and I'm
going to express myself while I canmay lose that
right too before it's all over...BUT people, PLEASE!
This is crazy! This has totally gotten out of hand. We
forget what someone did for us
Dear Dane,
It was not my intention to bring this all back up again. I accepted
your apology and I truely thought that we had all this behind us
too.
You and I had no ill will go back and forth with each other, and it
was a big misunderstanding on how words chosen don't always translate
Lynn, thanks for the clarification. I am so glad that we are on the
same page.
A rose for you
http://www.fototime.com/67243DB274A27B2/orig.jpg
--- In CML@yahoogroups.com, snickersunny [EMAIL PROTECTED] wrote:
Dear Dane,
It was not my intention to bring this all back up again. I
Right back at you Dane! :-) Lynn
--- In CML@yahoogroups.com, [EMAIL PROTECTED] wrote:
Lynn, thanks for the clarification. I am so glad that we are on
the
same page.
A rose for you
http://www.fototime.com/67243DB274A27B2/orig.jpg
--- In CML@yahoogroups.com, snickersunny
In a message dated 3/10/2005 4:22:11 P.M. Pacific Standard Time,
[EMAIL PROTECTED] writes:
I'm sitting here at my computer remembering that some of the people who were
most negative and controlling about Sandra Landels political issues are
the very same ones in the group of six. You
Cynthia you have my vote also, you should run for President.
David G.
[Non-text portions of this message have been removed]
Yahoo! Groups Sponsor ~--
Help save the life of a child. Support St. Jude Children's Research Hospital's
John:
No, I don't want to read the spam either. But the spam exists because Rob
no longer can control it, for reasons beyond our control (and his). BUT, he
has done what he can and created an alternative, the Google site, which he
can control and doesn't suffer this problem. We just need to
Hi all,
Hope you all don't mind if I tell you about the past few weeks of Bob's life!
I realize that this is not what has been going on here, but I feel that you all
will be interested anyway.
One important thing that I want to tell you about is his essential
thrombocytosis, high platelets.
Allen,
Thank you for your response. My agenda, if I have one, has, is, and
will always be the betterment of the group. Never have I been for
political statements unless they concerned CML or those dealing
medical issues. I do not condone censorship of any kind and feel any
thing that deals
We would like to request that all members of this group
participate in some way when they are able to do so.
We would suggest that as a guideline each member post
at least one message each month. If a member cannot
post for lengthy periods, or for other reasons, email
me at [EMAIL PROTECTED]
Whew!
Just finished reading todays posts. I'm exhausted. I came on with
something to share but heck I can't even remember now what it was!
Think I'll hit the hay and hope everything will look better in the
morning!
Lisa Perry
Yahoo! Groups Sponsor
I joined this group in 2001 when I returned to Israel after being part of Dr.
Druker's trials. It was so fantastic and we were able to get so much
information I was able to share with my doctor. Bob did a most fantastic job
with so many well informed individuals participating.
To disagree
I have reviewed all of the posts that were made and it is unfortunate
that circumstances have come to the point where they are today.
Posting privileges for a small number of people who are members of
CML@yahoogroups.com have now been removed. They can continue to read
the messages in the group
The pack rides during the fourth stage of the 63th edition of the
Paris-Nice cycling race between Saint-Peray and Montelimar.
http://cmlsupport.blogspot.com/2005/03/pic-of-day_11.html
Yahoo! Groups Sponsor ~--
Give the gift of life to a sick child.
-- Forwarded message --
From: Rob
Date: Fri, 11 Mar 2005 01:04:24 -0600
Subject: [CMLHope] Immune therapy of chronic myelogenous leukemia.
To: [EMAIL PROTECTED]
Gale RP, Horowitz MM, Talpaz M, Scheinberg DA, Molldrem J, Li Z,
Baccarani M, Goldman JM, Tura S
Leuk Res. 2005 May ;
-- Forwarded message --
From: Rob
Date: Fri, 11 Mar 2005 01:06:07 -0600
Subject: [CMLHope] Lovastatin alters the isoprenoid biosynthetic
pathway in acute myelogenous leukemia cells in vivo
To: [EMAIL PROTECTED]
Lovastatin, a competitive inhibitor of hydroxymethylglutaryl
-- Forwarded message --
From: Rob Date: Fri, 11 Mar 2005 01:07:37 -0600
Subject: [CMLHope] Heterogeneous Patterns of CEBP{alpha} Mutation
Status in the Progression of Myelodysplastic Syndrome and Chronic
Myelomonocytic Leukemia to Acute Myelogenous Leukemia.
To: [EMAIL PROTECTED]
March 11, 2005
The only good idea is an implemented idea...that stays implemented!
William C. Byham, Ph.D.
Heroz
Yahoo! Groups Sponsor ~--
Give the gift of life to a sick child.
Support St. Jude Children's Research Hospital's 'Thanks
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