Re: [TMIC] TM and the brain

2012-01-15 Thread pat cooley
John no need to apologize. Questioning is how we learn. Patti On Sat, Jan 14, 2012 at 9:18 PM, john snodgrass jcs...@yahoo.com wrote: I apologize for any inconvenience I have caused in the questioning of anything concerning TM and the brain. it really doesn't matter if I am right or wrong

[TMIC] Is it really so important to know?

2012-01-15 Thread Robert Pall
I have had TM for more than 14 years and I have gone to the best Doctors (Dr. Kerr). In this group as well as some of the other facebook groups there seems to be a preoccupation with trying to find the cause that brought TM into our lives. I certainly understand the importance of medical

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Dalton Garis
I have been saying this same thing since I got DX-ed two years ago. My only concern is that there are medications or treatments available to me to reduce the pain and give me some time each day during which I can be useful to others. I never bothered worrying even about what I had! The Drs

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Janice Nichols
Rob, I agree with you 100%. I admit I am really curious as to the “why” of it, but am getting used to my new life and am adjusting to most of it. All we can do, at this point, is treat the symptoms and share successes with the other TM’ers.Who knows, it just might help someone else -

Re: [TMIC] is there a connection between low potassium and TM?

2012-01-15 Thread Janice Nichols
Dalton, I hate that this is a part of your TM.It seems that most of us have a problem that seems separate from TM, but I wonder if it is really.Doctors will give you the symptoms of TM, then tell you what you can expect as time passes.You can feel you are making progress, then

RE: [TMIC] Is it really so important to know?

2012-01-15 Thread Elizabeth Clark
While I agree, for the most part, about getting on with our lives with what we have, I also have a desire to know 'the cause' for the following reasons. Since contracting TM almost 6 years ago and discovering it is an auto-immune condition, my sister has been diagnosed with two different

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Tracy Lea Bell
I realize that I am not the one that has TM but joined this support group because of my mom, you all have been amazing for me! Mom was just diagnosed with sleep apnea and myanethia gravis as well! These auto immune diseases are so devastating and very devastating to to me to watch my mom go

[TMIC] please take me off mailing list....too many emails/

2012-01-15 Thread vernon
Vernon

Re: [TMIC] is there a connection between low potassium and TM?

2012-01-15 Thread john snodgrass
I reckon thats why the neuro has us fill out the medicle history of sorts each time we visit,,to see what if anything that they may do that would give us some relief. From: Janice Nichols jan...@centurytel.net To: Dalton Garis malugss...@gmail.com; john

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread john snodgrass
thats is a good case to wonder. in a way I wonder if we minded our mitochondria like the Dr lady done in the video with MS, would it make any difference at all because it seams as if our immune system was more of a bandit,,,not having good instructions,when we were attacked. then again it may

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread john snodgrass
if i were to advise i would say help when you can, be patient when you can't,,and be very prone to listen. love is the most important thing in this mess. From: Tracy Lea Bell tracyleab...@yahoo.com To: Elizabeth Clark xbeecla...@gmail.com Cc: Janice Nichols

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Celrods
I was told I had TM on April 26, 1998 although I had been feeling numb and tingly in my leg and trunk since October. It was a slow onset. It is almost 14 years! Don't know why my immune system attacked me, but it did. I have had 6 episodes where I felt numb and tingly and the doctor put

RE: [TMIC] Is it really so important to know?

2012-01-15 Thread Odile Connor
Remove me from mailing list..too many emailsOdile Connor From: celr...@aol.com [mailto:celr...@aol.com] Sent: Sunday, January 15, 2012 2:19 PM To: robthe...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Is it really so important to know? I was told I had TM on April 26,

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Susan Kleinz
i am one handed, recovering nicely from carpal tunnel surgery. i am strongly considering the mitochondria diet.. fascinating i,too.believe our immuine systems are the bandits. susan,phx,az On Jan 15, 2012, at 1:12 PM, john snodgrass wrote: thats is a good case to wonder. in a way I wonder

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Janice Nichols
I have had TM for 5 years and one of the first questions I asked my doctors was the possibility of our daughter “inheriting” this disease.I was told that they think it is not inherited, but I know they don’t know a lot about TM.I do think the majority of us have not had it passed on to

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Janice Nichols
Jane, This is really new to me - the fact that you have had so many episodes/attacks of TM, and then you are back to normal.I don’t know anything about your other disease, but I am sure you have checked it out. Hope someone will pop up here to talk to you about it and can empathize.

Re: [TMIC] Is it really so important to know?

2012-01-15 Thread Janice Nichols
Susan, tell me about this diet and why it would be good for us. janice From: Susan Kleinz Sent: Sunday, January 15, 2012 6:02 PM To: john snodgrass Cc: Elizabeth Clark ; 'Janice Nichols' ; tmic-list@eskimo.com ; 'Robert Pall' Subject: Re: [TMIC] Is it really so important to know? i am