Is there anyway that the Fed. government could allow us chronic pain suffers
allowed to by-pass state laws and get weed for pain?
He is !00% behind medical cannabis already
Dear fellow TMers,
I have been asked by Barack Obama to give input to Tom Daschle concerning
Health Care Reform. I in-turn am asking the smartest of my family, friends and
acquaintances to give me input.
If you have time, please email me your thoughts. There is no rush. I realize
that this
Talking about looking pregnant and I'm a male. My belly bloated up
so bad, that people said I looked like I was pregnant with twins.
Many gain abdominal girth while on cortisone/prednisone, or soon after. The
bloat is secondary to the cortisone which causes increases in the lipoid
The Benefactor of the Ball
Va. Man Spends $1 Million on Inaugural Package for Disadvantaged
By Michael E. Ruane
Washington Post Staff Writer
Thursday, December 4, 2008; A01
It was billed as the biggest, most eye-popping of the inauguration hotel
packages: the JW Marriott's $1 million
I also will ask her about cattywhompus. Is this a disease that medicine
can fix or do I have to go to Frank for the cure for it? I'm not too
sure about going to him...
Dear Jude,
my temperature system is cattywhompus too. my left side ( hand, arm, thorax,
leg and foot) go from too
i have a question, has anyone else been told that they don't have
lesions on their spine? my neuro says mine is just swelling from c6-t3 and
t9-t10., so what does that mean?
What does swelling from c6-t3 and t9-t10 mean??
Did you have an MRI with and with out gadolium
Ya know why men don't marry sheep, because they flatulate in bed, then try to
direct the smell out from under the sheets- or is that why sheep don't marry
men??
pH
What a horrible thing to happen!!
My Caretaker is my girlfriend/ companion. I give her hours Off during the
day- today she's off with the lady's club, taking crab salad sandwiches for
after the meeting and lecturer. She goes out with other ladies, shopping,
museums, etc. When her internet
Frank, you take it, don't you?
I tried Neurontin in 2001. It made me too sleepy so it was stopped. In August
2001 I saw Dr. Kerr who started me on Marinol, Phenobarbital and Nortriptyline.
If anyone is thinking of stopping Neurontin, tell your doctor before, AND TAPER
DOWN slowly
Good
Greetings from Maine,
Never forget the fundamental principle of Physician/Patient/Placebo/hypnotic
effect.
Let's say that I'm the Doctor. You have waited 20 plus minutes, dressed only
in your socks and a cold paper Smock. I enter the room in my dressed like
marcus welby MD. I tell you
More bad news from Big Pharma.
Dear TMers,
This email is true!
Take care
F
Yes, I get this infusion every 3 months, 1G/day for 3 days. It's
prednisone. For me, I get a bit sick after the fourth day, but my neuro
says that that is not the norm - just me. After that I feel pretty good,
stronger.
Bernie,
That'sa lot of medication!!
For what disease do you get that
I have the same bee stinging feelings from head to toe, especially at night.
That feeling is central neuropathic pain. Try Dextromethorphan 60 mg twice a
day, or cannabinoids (MARINOL 5 mg every 6 hours).
The Fentanyl and Vicodan will turn you into an addict
Good Luck
F
I am so sorry I sent the email about social security to the list.I meant to
send it to a friend,and checked the wrong contact in my address book.
Cheryl in MA.
Good Morning from Montreal,
I agree with Sally!!
We need to develop code which will be put in the subject line:
We use OT for off topic.
We need to come up with an abbreviation for blessings, and other religious
stuff. How about PTL (praise the lord)? GBY (God Bless You)??
And Mature
Well said Rob.
Cheryl
--- On Tue, 10/28/08, Robert Pall [EMAIL PROTECTED] wrote:
From: Robert Pall [EMAIL PROTECTED]
Subject: RE: [TMIC] truth in labeling
To: [EMAIL PROTECTED], Sally Wilkinson [EMAIL PROTECTED],
tmic-list@eskimo.com
Date: Tuesday, October 28, 2008, 9:58 AM
I cannot
--- On Sun, 10/26/08, CANDIS KALLEY [EMAIL PROTECTED] wrote:
From: CANDIS KALLEY [EMAIL PROTECTED]
Subject: Re: [TMIC] question about post
To: TMIC tmic-list@eskimo.com
Cc: Jenna [EMAIL PROTECTED]
Date: Sunday, October 26, 2008, 3:03 PM
#yiv963255076 {font-family:'Times New Roman';font
..this list is not to be used to discuss
politics,religion,race etc
I am very sorry for my outburst. I have been very involved in both the
Canadian and U.S. election campaigns.
I find politics takes my mind off my constant central (neuropathic) pain.
humbly,
f
Dear All TMers,
I would disagree with the original e-mail.
Barack Obama will be a great president. He has an IQ of 140. He is physically
fit. I would direct ypu to Google Colin Powell's endorsement of Obama.
I have already voted for Obama, as I'll be here in Montreal through election
day.
A Liberal Socialist Cat
Promises to lower the cost of litter
Promises to check ALL food for melamine
Promises to provide mice in all homes...
pH
(I'm Back)
Yes, I was told my TM was caused by a virus, but I have never had a cold
sore in my life.
T.M. is caused by viruses that don't cause cold sores. My TM virus was probably
a Coxackie (sp?) virus
Hope that helps
F
There is a recent medical report that shows that using cannabis every day
prevents colds and the flu.
F
Trudy,
You need to have an evaluation by a Physiotherapist. I'm just a patient
following orders.
F
Is there something else I can take instead? I know I n eed to get back to
exercising
You already know the cure.
Daily excersise and physiotherapy is so important
Daily, every day, make it a habit
F
Hi,
Well,I guess the tm has finally taken over my mind.I was 49,not 39 when I
got tm.
Cheryl,who is now 62(I can say I don't feel that old!)
is cut
off,the area swells and damage occurs.I wonder if they try prednisone for the
swelling?This wasn't mentioned.
Cheryl
--- On Wed, 8/13/08, Todd Tarno [EMAIL PROTECTED] wrote:
From: Todd Tarno [EMAIL PROTECTED]
Subject: [TMIC] surfer's neuropathy / Primetime: Medical Mysteries
What did you mean in your comment on Marinol when you say Marinol did
decrease my central pain.
Well, what I meant was, Marinol decreased the amount of my central pain.
Instead of being a 10 out 10, the pain deceased to lets say 4 out of 10. All
other pains decreased too, but Alodynia
Marinal had none of the benefits of potand to make matters
worse...
Marinol did decrease my central pain, and it lasts longer that smoking weed. It
also is much more controlled- less euphoria.
Sativex, from Canada, is a spray that is better than anything else.
f
I was 39.I will be 62 on 6/17.
Cheryl
Greetings from Montreal where I saw my pain Doctor, Mark Ware, on Monday. I
was the first person in Canada to get a prescription for Sativex. I take one
spritz, under my tongue twice a day. It works for about eight hours, and it's
better than Marinol or The Killer Weed.
It comes in a box
On Sept 1, 2007 you typed, sounds like a pyramid scam to me.
I also found posts between Jude and Michelle about this subject. Jude felt
the tmic was not the place for Michelle's recruiting.
frank, I quoated you, because I admire your smarts.
Patty, et al,
My memory is failing,
What
I am a curious person so I checked into YOUR way to make a very good livin
g on the internet. You condemned Frank, because he called it a pyramid. Y
et, many of us think Frank is a very smart man.
]
]Did I hear someone typing my name???
I didn't call anything a pyramid. I've sold
-Original message-
From: jrushton [EMAIL PROTECTED]
Date: Thu, 24 Apr 2008 12:01:47 -0400
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] Misunderstood
Name: unknown.
Type: multipart/alternative
Encoding:
Length: 3.59 kB
My feet seem to be getting bigger. The bruising remained.
Then I saw a very good foot specialist who said it was probably the
prednisone.
REgina,
Prednisone is a nasty medication.
1 MG. IS JUST ENOUGH TO CAUSE BAD SIDE-EFFECTS WITHOUT HELPING YOU.
I'd recommend getting a real
Robert,
Try finding a new profession.
Before I finished being a Family Practitioner in 1999, I was learning how to
be a writer, then started submitting articles to magazines, then was befriended
by a woman who hardly knew me- She turned out to my editor. She'd been reading
my articles. I
If I were you, I'd ask about the possibility of SS Disability . In my
opinion, there's no
sense in working until what health you have is gone!!
I get about $13,000 a year from SSDisability.
How does one live on that amount? Are there people who live on that income?
They must
Rob,
I was afflicted with TM in 2000. Recently I began having new symptoms and
increased pain during the Medication Valleys. I went for an MRI which showed
a cinching in at the level of my lesion (C5). The demyelination was followed
by scarring, and the scarring contracted causing the
I'd be so light-headed after hanging upside down I'd have to lay down the
rest of the day. Are you harnessed in or what? How the heck do you hang
upside down??
I get in this Tilt machine, close an ankle lock around my ankles (foam lined
steel; then I raise my arms to my chest and my
I also start the day out with thin ankles and end
up with fat ones.
My solution for the dependent edema- swelling caused by gravity and the lack of
nerve control of the arteries and veins- is
hanging upside down. I put in my ear-buds, turn on my ipod, and flip myself
upside down for 30
I was told stress was maybe part of what caused my tm.That was a terrible
year for me.My son had a mental breakdown,my youngest daughter was getting a
divorce,and I was working 4 12 hr (7p-7:30a) shifts as an RN in an acute care
hospital's respiratory care unit.
I was exhausted from work
UNBELIEVABLE!
I'm really sorry to tell you that I had no stress in my life, no antibiotics,
no root canals, etc.,etc, before TM hit. I did have a summer cold. summer
colds can be coxaki (?) related and that has been directly related to TM, I
believe.
Almost everyone has stress...
I
Hi Everyone,
Today's mail shows just what the list is all about.Someone vents,others
respond and a warm feeling is generated throughout.
I've had tm since 8/13/95 and this group has helped so much.I don't post
often,but I read all the letters and get strength from them.
Hey all,
TM affects the spinal cord which is full of nerves. Some of the nerves carry
sensation, some carry motor signals that make the muscles contract, bones to
move, aim my finger at the keyboard and make sure that my finger lands on the
right key. There are also nerves that control the
I get relief by taking 4mg of the steroid Prednizone (sp?) to reduce the
swelling of my spinal cord.
Hi,
My name is Frank. I was afflicted with TM in 2000. I was given Predisone when
I was first treated- They started with a big dose (120 mg) then tapered down to
0mg over three weeks, and
Hi,
I am affected a the T4-T5 level also,but I don't sweat on one side of my
face since getting tm. I also only blush on one side. No one has ever been able
to explain it.
Cheryl in cold,cloudy Easthampton,Mass.
-
Be a better friend,
Wondering if everyone's computer got stolen!! Everytime I log on nobody has
anything to say. Everybody ok?
I'm getting ready for the spring festival. The equinox will be here on
Thursday, so we're busy making the traditional meals. Here in Maine, we
celetrate Fertility and Renewal. We
Can't stand the soreness in my throat. I hate handling cigarettes.
Brownies are easy, just add a tsp. of cannabis- start with a tsp then slowly
increase. Orally does not work as fast as inhaling, expect an hours wait!
Good Luck,
F
Janet,
The relief lasts up to 4 weeks for me. It seems to work better if I get the
next infusion before the relief is totally gone.
F
Neil,
Very interesting!
I get no High from either the IV Lidocaine, or the 60 mg of Dextromethorphan
twice a day. I function very well till my energy runs out about noon, then I
retreat to listen to music or watch the cooking channel on TV.
Dr Sang may have given you higher doses of the
Did I mention that I've been getting Lidocaine infusions every 4 to 6 weeks for
the past year?
The infusions are done as an outpatient. I go in take off the shirt and they
put EKG leads on me and start an IV, then drip in 2 to 3 mg per Kg of a dilute
solution of Lidocaine- the whole procedure
Can you tell us why you made the switch from the Marinol to the Sativex,
considering the cost? Are either covered by your insurance?
Sativex works faster, longer, less euphoria and just a better experience over
all.
Maninol is covered medicare drug plan. Sativex is not covered anywhere
Just seeing if anybody knows of a medication that works better than neurotine
for the burning. (nerve pain) Thanks
Cannabinoids !!
Rita,
I,too, have c4-c5 trouble caused by demyelination on the right side of my
spinal cord following a summer viral episode. My symptoms came on slowly over
two weeks.
I have severe central pain from my shoulders down, left foot drop...I could go
on. I'm so happy that I still get around
Gaylon,
My local neurologist, in Portland, Maine, prescribed Marinol for me. There is
a peak in the middle of the six hours where you have euphoria. I am now on
SATIVEX that is prescribed by my pain doctor in Montreal, Canada.Sativex is
sprayed under the tongue, starts to work in 15 minutes,
Mindy,
I have exactly the same affliction as you do !!
C4-C5, right side of spinal cord, pain from shoulders down, Left side worse
(secondary to Brown- Sequard Syndrome- Google if need be)., handa have the
worst pain. Poor balance, decreased proprioception (I can't type as fast as
before).
..I am hoping to increase my mobility.
Does anyone else with TM do regular exercises?
Odile,
I exercise every day!! If I didn't I'd totally fall apart. I have latent left
foot drop, so I have to stretch my left Achilles tendon, strengthen and
stretch leg muscles, arm and abdominal
And having TM does not reduce your life span.
There are articles dealing with MS that show that the side effects can and do
shorten the patients life.
For instance, my TM, in and of itself, will not shorten my life, but the
chronic pain will. Many people who have chronic pain commit
Try Tempur-pedic !
Expensive but worth it!
F
You missed the weather
Regina [I love your name- very regal !],
That's why we went away- to get better weather. I'd never been to Costa Rica.
Warm, dry, sunny, great food, ecotourism!
The TMA should have a yearly Symposium in February, some place sunny and warm-
University of Miami ??
The pillows come in several different shaped, and firmness of foam.
F
I don't want to be judgmental.
So lets keep this subject line OT Politics. that way those who are into
presidential politics may have a space within the T.M. Clubhouse to discuss,
chat, roll around in the muck, really get down dirty
I myself am starting a write -in campaign for Clint
... we can praise God on here
for the miracles that he has given and thank God for the prayers that
have been answered and everyone seems ok with that(regardless of their
religious background)
New Subject heading:
I can get down and dirty on this!!
First: It is the belief of my church that
Dear tm list,
Gillian Clark ([EMAIL PROTECTED]) has sent you a Jacquie Lawson electronic
greeting card.
Please click on the following link to see your card. If your e-mail program
has not displayed this as a link, then please copy the following into the
Address or Location bar of your
Is it really Christmas??
I had no idea...
I kept hearing those kind of songs on the radio, but didn't pay much attention.
That would explain all the lights, ribbons, and wreaths across the street.
it would explain all those quasi-religious TV shows, too.
My God, it is Dec 25th
K, so
Dear tm list,
Gillian Clark ([EMAIL PROTECTED]) has sent you a Jacquie Lawson electronic
greeting card.
Please click on the following link to see your card. If your e-mail program
has not displayed this as a link, then please copy the following into the
Address or Location bar of your
Grace,
Thanks for letting us know. Can you give me the name, address, phone number
for the hospital she's in?
Thanks,
Sally
_
Free information on hiring a Business Consulting Service. Click here.
okay. I must not have done this right! Please tell me again how to
'unsubscribe'.
Thanks, Sally
Yes, Larry and Jenna, moving from Hawaii to the mainland does seem backwards.
But isn't that kinda what TM does to our whole life - everything that used to
work, now seems upside down and backwards? :)
(Just kidding - it seems that way, but at the same time I'd be the first to
admit that
A few months ago I installed grab bars on the wall on each side of
the toilet. When they are not being used, they fold up against the
wall. Each bar is a loop with the bottom offset inward and below the
top - I use the lower level initially and switch to the upper to
I ran into this
has anybody tried a wobble board
I used to be able to use a wobble, but can't any more.
I wish there was a cure for the balance, loss of proprioception.
Take care
F
Larwence,
I am on Lisinopril for BP. I need only 10 mg for good control. no side effects
either.
Now the question is, Do you have central pain (Numb, squeezing, tingly, sharp,
spastic) ??
I use Nortriptyline for both pain and depression. A Tricyclic antideppressant
has few side effects if
interested, his name is Jonathon Healy;
you can email him at [EMAIL PROTECTED]
Thanks everyone, for all your input that has helped me in 'surviving' this
challenge, as well as for information that helped to make my case, etc.
Love,
Sally
Okay. NOW we all need to see a picture of you Frank. :)
O.K., but how do I do that? Do I send the jpg in an e-mail to the list server?
I think not!!
Tell me great computer wizzes.
F
I'd buy it in a heartbeat if I knew where to find it.
Grace,
Try the white pages, under Amway.
Or try the Amway Web Site
F
hello,
I'm here...
I think.
I think everyone has gone to the beach or
has gone school shopping...
Maybe food shopping for their big Labor Day cookout.
Don't be afraid, they'll all be back soon.
pH
Valium (Diazepam) taken would eventually stops the spasms so Ican go to
sleep or at least sit comfortably.Now it seems as if I need to take one
more often than I have been.
My prescription calls for one tablet twice a day--should I try to get my
doctor to prescribe them more
Someone sent me a video tape about getting SSDI and said to keep it until my
hearing. I no longer need it (I'm awaiting a decision) and am not sure who to
send it back too. There's a return address on the box: MSersLIfe Library%
Rosa LYnn Cass in Indiana, but I just want to be sure that's
FRANK, I HAVE BEEN TOLD 2 LESIONS DOES NOT HAVE TO MEAN MS.
Interesting?
I have read and been told... Another he said, she said
Let me think
T.M. by definition is a single episode affliction...
So, I guess, if both lesions are from the same episode, you could have 2
lesions with
They drew CSF and blood to send to the Mayo and I
tested positive for NMO. (Totally different from MS. MS requires
immunomodulation. NMO requires immunosuprression.
Grace,
What does NMO stand for?
F
You mention that TM may be starting in your neck area. Where was the
initial lesion?
I thought that if new lesions form, the diagnosis changes. Anyone?
Kevin,
you are right- two lesions means M.S.
F
I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg
caps of Lyrica. I was told to take one Lyrica for a week with no change in
anything. Then if successful, I can take away 400mg Neurontin and add 50
more
Lyrica once per day.
Sounnds good to me to decrease
Tona-A-Metrics: by Brian Heir. The Bedroom Body Shape-Up. Amazon.com carries
it - I got it, used, from them for a couple of dollars. But I got it first
from the local library, if you want to check it out before buying.
Sally
I have to share this: I found a book at the library, and since have ordered it
(used, for about $3) from Amazon.com. It's called 'Tone-A-Metrics: The Bedroom
Body Shape-Up', by Brian Heir. It's all exercises you can do lying on your
bed. He originally designed most of the exercises for his
Yes, those are from the book. However, that's only the 'Warm-Up' section.
There's over 70 exercises, in all: Stretches, Motion Potion, Calisthenics,
Isometrics, Stomach, Tush, and Cool-Down are the additional sections.
Sally
I have noticed that my legs are bothering me
more. Have any of you had this problem and if so what did you do?
Yes.
I do physical therapy to stretch and strengthen my leg muscles. If you don't
you may wind up with a foot drop.
I tried it My way for several months with little relief,
Welcome,
I know how you must feel. I had retired from medicine and was doing a little
writing, living the good life when TM hit me in Aug 2000. When I'm down I
dig up all those activities I'd seen myself doing in my retirement at 53 y.o..
It could be a lot worse!!
Count your blessings!!
F
The Ibot is on sale,
Only $23,000 plus!!
pH
She explained to me that during her neurology rotation, they only took a
cursory look at it---the professor told them that they would never see a case
in their practice.
Grace,
I wonder where your PCP went to Medical School. The better schools, McGill
Included, educate you concerning
What is Lammas Day??
Heather Pieter,
You should have been taking notes.
I gave the answer last HALLOWEEN (Hint, hint),
Or was it on GROUNDHOGS DAY?
Half way between the solstice and equinox.
Now, it's time to have an extra brew, or a double gin and tonic, how about a
bluebelly
To one and all,
Happy Lammas Day !
If you wish, pass this on to at least one other person.
If this message goes all around the world twice,
Tinkerbell will be saved from death,
there will be dancing in Russia,
and my 94 year old mother, will smile and say,
Bless you all, everyone of you!!
She had a chin control, but due to her disease was unable
to use it...
What is a chin control?
And, how does one use it??
F
Background Multiple sclerosis has a clinically significant heritable component.
We conducted a genomewide association study to identify alleles associated with
the risk of multiple sclerosis.
Methods We used DNA microarray technology to identify common DNA sequence
variants in 931 family trios
Do you take the regular dose aspirin or the smaller dose some recommend for
heart prevention.
I take the small dose.
F
You say you take the small aspirin dosage. I take 81 mg.
I guess so.
F
Maybe you already know, but FYI: While B6 is an important vitamin, taking too
much has been known to cause numbness in the feet, hands, and mouth, and
instability in walking. Also, nervousness, insomnia, frequent urination. But
last I heard, 100 mg/day is considered safe.
But no, I've never
Has anyone taken vitamin B6 and noticed any difference in their numbness
tingling or with anything?
Carol,
I take B6 during the summer. It keeps the mosquitos away. I also take folic
acid which may be needed to keep the bugs away. I take Folic acid to lower my
homocystine level and
What are they looking for?
Janet,
They are looking for evidence of a muscular disease, as opposed to a
neurological disease like TM.
Good Luck
F
Thanks for e-mailing me,
BUT,
I have been on vacation since July 1st., and will remain on vacation till
August 2nd.
I'm now linked to the internet by a dial-up, 56K, modem.
The tide comes in twice a day.
It's been a rainy July, but not as bad as 1967.
I've finished all the New Yorker
Thanks to everyone who shared their testimony - I really appreciated it.
I too believe that my TM has been a blessing to me (though I don't always think
of it that way on a day to day basis! :) But I truly believe that good has
come from it, in many ways.
So yes, it's frustrating, and
Thanks Alton! A great example of how we can all contribute. I guess we just
need to learn to recognize our 'seasons' (To everything there is a season . .
. Eccl. 3:1) But I, for one, tend to forget and sometimes focus more on what
I can't do; I have to keep reminding myself what I can do at
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