RE: [TMIC] Re: Attention -The TMIC List

yes Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. [http

RE: [TMIC] Reviving the List

get tired of all of the jokes being posted, etc because I have enough other FB friends that do that on a daily basis. I joined the group for information, like all of you out there. Glad to see some of the old names pop up in my email inbox again!! Take care all! Tracey L. Black Certified

RE: [TMIC] Facebook

I wonder if it has anything to do with the type of meds that are being taken? Ashlee is a straight A student and has been since before TM. She only takes Oxybutnin XL 15 mg once a day. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132

RE: [TMIC] neurologist

a sinus infection or something along those lines, she goes to the PCP or Ready Care. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours

RE: [TMIC] neurologist

the counter). Obviously, if she started to have issues with new numbness, etc, we would seek a new neuro out but it has not come to that. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone

RE: [TMIC]

of August. She is going for her Associates Degree in Business Administration/Management. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours

RE: [TMIC]

to be whatever she wanted to be. For that, I will forever be grateful! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00

RE: [TMIC] TM video Greg Sapp posted today

I watched it this morning! I recognized a lot of faces, including my daughter, Ashlee Black! Well done Greg!! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29

RE: [TMIC] Hello

Learning Center” and continue to do what you love to do. Don’t let this setback turn you against teaching. I am sure you would be a great asset for anyone that is willing to give you a chance to do what you do best. Tracey L. Black Certified Insurance Service Representative Hockley

RE: [TMIC] Is anybody there? I;m trying to find someone who remembers meeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

Judy: Of course we remember you!!! Hope you and Dave are having a great Christmas season!!! Take care!! TIAD! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m

RE: [TMIC] off topic

Jane: I am so sorry to hear that. I cannot fathom the pain that you are feeling right now. I just turned 41 yesterday so this is even more disturbing to me. Take care! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone: 717-334-6741, x

RE: [TMIC] Looking for TMr's for support groups

Tracey (mother of Ashlee), Biglerville, PA Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware

RE: [TMIC] Swine flu vaccine

/c of her having TM. I don't want my other children to get the shots either b/c I don't want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00

[TMIC] (TMIC OT) FW: YOU MUST SEE

Take a minute and just watch this video. Even if you don’t have speakers, it is worth the watch. Puts life into perspective as to what can be achieved when you put your mind to it. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717

RE: [TMIC] Friendships

an orthotic in her right shoe and a brace on her left leg from mid shin and down. She currently has a full leg brace on her left leg and a brace on her right leg from the shin down. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334

RE: [TMIC] Facebook Page

7:30 on Farmtown. It is so addicting!! What level are you guys on? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us

RE: [TMIC] Facebook Page

I am addicted to Farm Town. So is Ashlee and her brother and sister. I am up to level 26 and have over $435,000. Great way to talk to people from all over the world!! If you have a facebook, can you give me your info so that I can add you to mine??? Tracey L. Black Certified Insurance

RE: [TMIC] Transverse Myelitis Network

information and great people that are willing to answer any question that is ever asked. No one judges anyone for asking questions. As Pam would say !!TIAD!!! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency

RE: [TMIC] Embryonic Stem Cell Discussion

I would have to agree 100%. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage

RE: [TMIC] RE: tmic-digest Digest V2009 #20

after each treatment. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound

RE: [TMIC] Anybody else been there?

I responded to that email for the same reason that Sandy did. I wasn't offended by Gilly either, I just wanted to give a different perspective and hope that I didn't offend anyone. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132

RE: [TMIC] Anybody else been there?

affects us, but probably more internally (in our heart) than anything else. Every time I see my daughter suffer with not being able to get around the way she used to, it weighs heavy on my heart and soul. Just my 2 cents! Tracey L. Black Certified Insurance Service Representative Hockley

RE: [TMIC] Normal

is my greatest hero! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound

RE: [TMIC] Questions

My daughters attacked was said to have come from the upper respitory virus that she had a month prior. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414

RE: [TMIC] Re. The latest

Ken: I am so sorry to hear about your loss. Please know that everyone on this list has you in their prayers! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717

RE: [TMIC] 19 year TM Anniversary - my thanks to TMIC

into school, and things settled down a bit, then I started researching it again. I don't really even remember how I found this list but I am so glad that I did! You guys have answered so many questions and I enjoy reading the emails! Kudos to Jim for starting this list!! Tracey L. Black Certified

RE: [TMIC] Questions

The answers below are for my daughter Ashlee. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your

RE: [TMIC] Thanks to the list/understanding TM

A's!!! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until

RE: [TMIC] sores

I called the Dr. office yesterday and they called in an antibiotic ointment to be applied 2 times a day. I looked a little better this morning. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank

RE: [TMIC] sores

there protrudes some so I guess that is what really made that area more susceptible to getting a sore. What should I be putting on it to get it healed quickly? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334

[TMIC] (TMIC) UNBELIEVABLE

to get over that! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed

RE: [TMIC] UNBELIEVABLE! Thanks, everyone!! jr

, but it was Feb 1. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until

RE: [TMIC] UNBELIEVABLE!

. For the longest time, I wouldn't even pray. The only thing that kept going through my head was be careful what you wish for. I have since started back up but still am very careful for what I pray for. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone

RE: [TMIC] time has passed but....this is for Every1 on the TMA list

(probably a few years, I don't have the records on hand). The ER Dr. who treated her immediately after she was inflicted stated that he thought that it came from the infection that she had.. Has anyone else recd the GBS and TM diagnosis instead of just one or the other?? Tracey L. Black

RE: [TMIC] Another unidentified becomes identified!

and will answer whatever questions you have. Again, Welcome! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change

RE: [TMIC] Listening, attention, and solitude

to be around people but she also likes her own space. Is that TM or is that just her being a teenager? Good question. P.S. I get what you are saying about someone reiterating and reiterating a point that was figured out the first time they mentioned it. That is SO annoying! Tracey L. Black Certified

RE: [TMIC] question

, since she started walking again. Now that I am reading up on it again, I am really concerned. Any insight would be greatly appreciated! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you

RE: [TMIC] gel cushion

My daughter had a honey comb type cushion that she used. Luckily the insurance company paid for it because it was over $500 but well worth it. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank

RE: [TMIC] OT Politics

. No one should have to apologize for making a statement on what they believe. Everyone should stand up for what they believe in. Isn't that what we all try to teach our children and their children? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency

RE: [TMIC] OT Politics

, I have the ability to hit the delete button and go on about my day, just as we all have that same option. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us

[TMIC] TMIC

://www.bioenergyassociates.com/raindroptherapy.htm Apparently one of the therapists that she works with has used these techniques on a patient that had TM and she responded really well. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29

RE: [TMIC] parker video

I just heard this morning that one of the TV stations is putting together a program that will be like The View but will be a panel of Doctors discussing medical conditions, etc. You guys may want to be on the look out for that to see if TM can be one of their topics. Tracey L. Black Certified

[TMIC] TIMIC Unsubscribe

Unsubscribe Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed

RE: [TMIC] Re: TM Reflexes

I believe that is one of the reasons that my daughter got the Guillain Barre dx as well/ because of her lack of reflexes. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing

RE: [TMIC] no mail??

Now that you mention it, I didn't have any TMIC emails today and I usually have about 6-7 every morning when I come to work. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing

RE: [TMIC] TM Reflexes

a great day! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until

RE: [TMIC] transverse myelitis

We haven't had to pay for anything, other than a few deductibles and co-pays b/c the secondary insurance that we have for her doesn't work with the rehab that we took her to in Baltimore. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717

RE: [TMIC] FW: Info for reimbursement for IVIG

and final treatment she had was between the week of Christmas and New Years, 2005. That was a 5 day treatment and they put a pic line in to administer it through that. She regained alot more control and was able to do much more therapy. Tracey L. Black Certified Insurance Service Representative

RE: [TMIC] FW: Info for reimbursement for IVIG

Oh, and also, The 1st treatment was about $13,000. The 2nd treatment was about $16,000 and I think the 3rd treatment was over $20,000. Fortunately, our insurance paid it all. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29

[TMIC] TMIC - Stem Cell research

/2455821/detail.html . All rights reserved. This material may not be published, broadcast, rewritten or redistributed. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information

RE: [TMIC] Rectal problems

around after graduation tonight, he is coming home (on his own free will) to celebrate with the rest of us and our neighbors. He would much rather be at home with us and hanging out with our neighbor friends than be out running the streets. Have a great day! Tracey L. Black Certified Insurance

RE: [TMIC] ot

I have been told that if anyone is on Ditropan XL, they should be very careful in hot weather so that they don't dehydrate. Has anyone else heard that? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414

RE: [TMIC] Renal problems

Actually my daughter has experience the complete opposite. She seems to have bouts of diarrhea quite often. She is on a bowel program and it works most of the time, but she seems to get diarrhea more often than I think she should, unless it is hormonal, she is 13.. Tracey L. Black Certified

RE: [TMIC] Getting Humble

more visible when you deal with a disabled person. Alright, there were my two cents. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware

RE: [TMIC] Reason for TM

One of the first questions we were asked was if my daughter had been sick within a month prior to this episode. She had been sick almost 1 month to the day as to when she went down. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334

RE: [TMIC] OT OT: RANT WARNING

it may be a pain, but check to see if it would be legal if you had it covered up.. Sometimes if it just has a cover on it, it is legal. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you

RE: [TMIC] SSDI

. Is it too late? Is it worth my time? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance

RE: [TMIC] Re: Handicap Parking

of the people who are causing the issue and try to get it straightened out. It would be worth a try. Does your local paper have a letter to the editor section. I would try that too. You may find more disabled people that are getting the same type of run around. Tracey L. Black Certified Insurance

RE: [TMIC] Re: Who's got what?

. It took him a few weeks to get his sight back and then one morning he woke up and had issues with his legs. He now gives himself a shot every day to keep the symptoms under control and to my knowledge he hasn't had any worse symptoms. Tracey L. Black Certified Insurance Service Representative

RE: [TMIC] TM and Chemical Sensitivity

My daughter has no issues with smell sensitivity. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change

RE: [TMIC] Thank you... OT

I would love for my daughter to get to meet all of you. Unfortunately, I am the one that emails you guys and not her b/c she is in school all day. I would love her to meet various people, from all walks of life, with the same type of issues that she has. Tracey L. Black Certified Insurance

RE: [TMIC] Another Symptom

. If I need a new Rx for her Ditropan or her suppositories, I just call in and they fax it to the pharmacy for me. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information

RE: [TMIC] allodynia

term effects, that just about everyone on here has talked about. She had some creepy crawlies in her right leg the other night but after a little while, it went away by itself. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x

RE: [TMIC] TM question- fungal infection

At this point I am willing to try just about anything to help her. She has come so far in her recovery and I don't want her to have to deal with a nuisance like this. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax

[TMIC] TM question

thinks but thought I would check on here first. The Orthotist took the brace from her and is sending away to have the straps and padding replaced in hopes that he can rid the fungus that way. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717

RE: Fw: [TMIC] News And Results!

They have my daughter taking an extra 5 mg of Ditropan XL when she goes to bed and it seems to have helped greatly. She takes 10 mg in the morning when she is getting ready to go to school. I also try to limit her drinking before bedtime. Tracey, in PA, mother of 13 year old Ashlee, TM class of

RE: [TMIC] Zap - sudden paralysis

my daughter was within 5 minutes, from the waist down. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change

RE: [TMIC] Zap - sudden paralysis

My daughter never had pain either, just the tingly feeling up and down her legs. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware

[TMIC] RE: [TMIC] Re:  multiple vitamins

and they said that instead of taking the full 3 capsules per day, she should only take one but during her time of the month, she could take the 2nd just so she would have the extra iron, etc. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334

[TMIC] FW: Penny Post Cards

Bring back some of the good memories.. see the link below. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound

[TMIC] WONDERFUL NEWS

My daughter, Ashlee, has just permanently given up her wheelchair. She is now using an up n go walker and her forearm crutches as her only form of transportation!!! She is coming up on her 2 year anniversary with TM, on Feb 1, 2007. Tracey L. Black Certified Insurance Service Representative

RE: [TMIC] medications and supplements

experience, even though she hasn't been getting a lot of warm responses. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound

RE: [TMIC] TM Spasms

was burning and kind of sore but Tylenol helped it quite a bit and she has been fine since. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware

[TMIC] FW: 4 Candles/this one is so very good

Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified

[TMIC] Kennedy Krieger

Can any of you give me any information on Kennedy Krieger? I am in the midst of getting my soon to be 13, daughter's medical records to them and possibly put her in their 2 week inpatient rehab. I need some guidance on this. HELP PLEASE Tracey L. Black Certified Insurance Service

RE: [TMIC] Use GoodSearch to Benefit TMA!

I have just forwarded this email to everyone in my contact list. Hopefully my co-workers and friends will start using it to help generate more money for the Association!!! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741