Dear Shilpa Very little studies have been done in this topic in general and in particular with reference to parenting or upbringing of a blind child. I'm thinking of writing a paper on this topic, but not purely from an academic perspective but from the perspective of a disability activist and personal experience of myself being a blind and counseling parents of blind children.
Warmly Leikhu (Laishram Leingakpa) On 6/8/17, Shilpaa Anand <[email protected]> wrote: > Glad to hear this Rajesh. Looking forward to receiving entries that will > reflect on the complexity of care issues. > warm regards, > Shilpaa > > On 7 June 2017 at 12:14, Asudani, Rajesh <[email protected]> wrote: > >> A very good topic, Shilpaa. >> >> Many a times, receiving care degenerates into receiving life secondhand. >> >> >> -----Original Message----- >> From: AccessIndia [mailto:[email protected]] On >> Behalf Of Shilpaa Anand >> Sent: Wednesday, June 07, 2017 8:44 AM >> To: AccessIndia: a list for discussing accessibility and issues concerning >> the disabled. >> Subject: [AI] Fwd: {Disability Studies India} Call for Contributions: Cafe >> Dissensus September 2017, 'Narrating Care' >> >> Call for essays: >> >> ---------- Forwarded message ---------- >> From: *Shilpaa Anand* <[email protected]> >> Date: Tuesday, 6 June 2017 >> Subject: {Disability Studies India} Call for Contributions: Cafe Dissensus >> September 2017, 'Narrating Care' >> To: "[email protected]" < >> [email protected]> >> >> >> *Issue 39: September 2017: **Narrating Care: Disability and >> Interdependence >> in the Indian Context [Last date for submission: 20 July, 2017; Date of >> publication: 15 September, 2017]* >> >> *Guest-Editors:* Dr. Nandini Ghosh, IDSK & Dr. Shilpaa Anand, MANUU >> >> *Concept Note: *Care-giving and care-receiving are complex experiences >> that >> are only beginning to draw the attention of scholars and researchers >> working in the fields of social medicine, disability studies and medical >> anthropology. Care-giving, however, has appropriately been recognized as >> an >> important theme of research by the women’s studies discourse, focusing >> primarily on women as care-givers in contexts where care-giving becomes >> invisible or is considered part of traditional gendered roles. What has >> remained relatively unfamiliar, so also unknown, is the epistemic >> perspective of recipients of care. The concept of care has, in the last >> few >> decades, been problematized as ‘taking responsibility for’ people, who are >> assumed to need caring as they are unable to exert choice and/or control. >> Scholars have questioned the emphasis on independence and choice, for many >> persons with disabilities for whom both cognitive function as well as >> physical abilities may be highly circumscribed. While care highlights the >> concept of dependency, it also points to power dynamics within the >> carer-cared relationship. Care recipients are assumed to be subordinate to >> the caregiver, as s/he cannot perform daily activities for her/himself and >> that, as a result, makes the person become dependent on the caregiver. The >> risk of losing one’s human (and civil) rights has remained higher for >> those >> requiring greater levels of care, given that economic security, safety and >> dignity are threatened when individuals find themselves increasingly >> dependent on others (as many people with disabilities do) for personal >> care >> and formal as well as informal decision-making. >> >> ‘Interdependence’, consequently, has emerged as a key concept. It has >> become significant to recognize that, for disabled people independence is >> not so much about self-sufficiency as it is about equity, empowerment, >> choice, and control over their own lives. Defining care as an >> interdependent relationship also enables us to consider the >> vulnerabilities >> of the care-giver whose role may be devalued or dominated in certain >> contexts. Focusing on interdependence additionally animates reflections on >> mutually affective bonds that connect, knot, fasten, embrace, or fetter >> two >> people simultaneously. >> >> Given that, in the Indian context, notions of care are subsumed within >> familial and communitarian ethics rather than in institutionalized >> settings, questions of care-giving and receiving require greater and >> closer >> examination. The paradoxes of such relationships become more complicated >> when we consider the intersection of multiple identities. Shared as well >> as >> normative understandings of caste rules, religious and cultural practices >> shape and govern the everydayness of care practices. In India, the family >> emerges as the primary site for not only care but also management of >> impairment. In such a context, caring and receiving care become >> conflicting >> experiences located at the cusps of in enabling/constraining >> relationships, >> often crafted by, love/duty curiously unaware of agency/dependence. >> >> The proposed issue of *Café Dissensus* invites narratives of care from >> receivers and givers in the form of written and graphic texts, photo >> essays >> as well as video and audio entries. We are interested in descriptions that >> give primacy to receivers of care while also not making invisible >> experiences of care givers. Your entries may be of 1500 words in length >> (in >> case of written entries) and emailed to Nandini Ghosh (* >> [email protected] >> <javascript:_e(%7B%7D,'cvml','[email protected]');>*) or Shilpaa >> Anand >> (*[email protected] >> <javascript:_e(%7B%7D,'cvml','[email protected]');>*) by 20 July >> 2017. Submission of entries must include a brief bio-note of the >> author/artist in about 150 words. >> -- >> Shilpaa Anand >> Assistant Professor, Department of English >> Convener, Committee for Cell for Persons with Disabilities >> Maulana Azad National Urdu University >> Hyderabad 500 032. >> >> -- >> You received this message because you are subscribed to the Google Groups >> "Disability Studies India" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] >> <javascript:_e(%7B%7D,'cvml','disability-studies-india% >> [email protected]');> >> . >> To post to this group, send email to disability-studies-india@ >> googlegroups.com >> <javascript:_e(%7B%7D,'cvml','[email protected] >> ');>. >> Visit this group at https://groups.google.com/ >> group/disability-studies-india >> . >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> Shilpaa Anand >> Assistant Professor, Department of English >> Convener, Committee for Cell for Persons with Disabilities >> Maulana Azad National Urdu University >> Hyderabad 500 032. >> The list has now migrated to www.accessindia.inclusivehabitat.in >> >> You should now post to the id: [email protected] >> >> >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. 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AI cannot be held liable for any commission/omission based on the mails >> sent through this mailing list.. >> > > > > -- > Shilpaa Anand > Assistant Professor, Department of English > Convener, Committee for Cell for Persons with Disabilities > Maulana Azad National Urdu University > Hyderabad 500 032. > The list has now migrated to www.accessindia.inclusivehabitat.in > > You should now post to the id: [email protected] > > > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > The list has now migrated to www.accessindia.inclusivehabitat.in You should now post to the id: [email protected] Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
