Actually my friend is looking to know about some promissing treatment to RP, I am also looking a good hospital to assist me in retaining my remaining sight already been lost due to mecular degeneration and optic attrophy, according to doctor.
On 12/27/17, Kanchan Pamnani <[email protected]> wrote: > > All > There is currently no cure or treatment for RP anywhere in the world. > One form ofRP is LCA and for LCA there is some promising news but not for > other forms of RP. > All who are looking for a treatment should follow the research going on > internationally on stem cells, gene therapy and bionic eye. > You will have to wait about 3 years for any cure or treatment. > Please do not run from hospital to hospital, doctor to doctor, quack to > quack and healer to healer. > It is better that you run between computer classes, skilling > centres,motivational classes and anything else that will help you now. > Kanchan > -----Original Message----- > From: AccessIndia [mailto:[email protected]] On Behalf > Of Umesh > Sent: 27 December 2017 17:55 > To: AccessIndia: a list for discussing accessibility and issues concerning > the disabled. > Subject: Re: [AI] Query about the treatment of RP in Lv Prasad Eye > Institute > Hyderabad > > Hello members, > Mr/MRs. chimthanawala, please say something more on this- what did the > doctor said, what is the convenient way to get into his contact, and more. > Thank you > > > On 12/27/17, turab chimthanawala <[email protected]> wrote: >> Hello, >> I had visited LV Prasad in 2011 and 2012. At that time there was no >> real treatment available. But, If I can correctly recall, my mom had >> interacted with a Doctor named Subhadra Jalali who seemed to have an >> idea of treatments available elsewhere. >> Best >> Turab >> >> >> On 12/27/17, Mohib Anwar Rafay <[email protected]> wrote: >>> Hi all list members, I want to know whether visiting Dr. LV Prasad >>> Eye Institute Hyderabad is of any help for RP patients? Is there any >>> ray of hope for quring the gradual loss of vision due to Retinitis >>> Pigmentosa? Has any of our members visited this eye institute for RP >>> or Optic Nerve Attrophy? If there is any specialist doctor of this >>> area, kindly share the details. >>> >>> -- >>> Mohib Anwar Rafay >>> >>> Phone: +919 555 555 765 >>> >>> The list has now migrated to www.accessindia.inclusivehabitat.in >>> >>> You should now post to the id: [email protected] >>> >>> >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.or >>> g.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>> of the person sending the mail and AI in no way relates itself to its >>> veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails sent through this mailing list.. >>> >> >> The list has now migrated to www.accessindia.inclusivehabitat.in >> >> You should now post to the id: [email protected] >> >> >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, > please >> visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of > the >> person sending the mail and AI in no way relates itself to its veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the >> mails >> sent through this mailing list.. >> > > > -- > Umesh Kumar > M.Phil Research Scholar, CPS, JNU. > Mobile: +91 88-946 54-469 > 9868606199 > > The list has now migrated to www.accessindia.inclusivehabitat.in > > You should now post to the id: [email protected] > > > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, > please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of > the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > > > --- > This email has been checked for viruses by AVG. > http://www.avg.com > > > The list has now migrated to www.accessindia.inclusivehabitat.in > > You should now post to the id: [email protected] > > > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > -- Mohib Anwar Rafay Phone: +919 555 555 765 The list has now migrated to www.accessindia.inclusivehabitat.in You should now post to the id: [email protected] Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
