Hi, Even I do have the understanding that the RP is incurable and personally I do not undergo any treatment. However,today while browsing Youtube, I came across following link where a person calling himself Dr Rishab Jain is giving assurance of RP treatment. Looks he is based out of Ujjain. But I am not sure about it's authenticity and how far this one is true. Just a curiosity, Do anyone of you have any idea on same.
https://www.youtube.com/watch?v=BDb5ZAAwh2E On 12/29/17, Tilakprasad Joshi <[email protected]> wrote: > Friend, > > Kanchan Ma'am is right currently there is no hope but in indeed there > is a hope in the future, I too face problem of Optic Nerve Attrophy > when I wanted to go for treatment two years back but doctor said "it > can take 5-10 ears to come this treatment in India or it may come > earlier also no one has when this treatment will be available in > India!" lets hope for the best as Kanchan Ma'am suggested! > > Warm Regards, > Tilak. > > > On 12/28/17, Kanchan Pamnani <[email protected]> wrote: >> Best wishes for your visit to the hospital. >> However I will reiterate what I had written yesterday. >> Have patience there is no cure or treatment right now. >> Concentrate on other issues and let the doctors and researchers do >> whatever >> they can. >> Kanchan >> -----Original Message----- >> From: AccessIndia [mailto:[email protected]] On >> Behalf >> Of Mohib Anwar Rafay >> Sent: 28 December 2017 12:42 >> To: AccessIndia: a list for discussing accessibility and issues concerning >> the disabled. >> Subject: Re: [AI] Query about the treatment of RP in Lv Prasad Eye >> Institute >> Hyderabad >> >> Thank you all, I have fixed an appointment with Dr. Subhadra Jalali in >> January 2018. Post visit, will share my experience. >> >> On 12/27/17, Arijeet Patil <[email protected]> wrote: >>> I am extremely overjoyed, extatic and delighted to be informed of >>> this. I’m blind because of RP or ROP, caused due to prematurity. I >>> would very much like to be treated and to gaze at the landscapes as >>> well as utilise my hering, and learn the print alphabet and pen >>> literally, >>> as “mostbody” do. >>> Once again, thank you. >>> >>> Sent from my iPhone >>> >>>> On 27-Dec-2017, at 12:46, Mohib Anwar Rafay <[email protected]> >>>> wrote: >>>> >>>> Hi all list members, I want to know whether visiting Dr. LV Prasad >>>> Eye Institute Hyderabad is of any help for RP patients? Is there any >>>> ray of hope for quring the gradual loss of vision due to Retinitis >>>> Pigmentosa? Has any of our members visited this eye institute for RP >>>> or Optic Nerve Attrophy? If there is any specialist doctor of this >>>> area, kindly share the details. >>>> >>>> -- >>>> Mohib Anwar Rafay >>>> >>>> Phone: +919 555 555 765 >>>> >>>> The list has now migrated to www.accessindia.inclusivehabitat.in >>>> >>>> You should now post to the id: [email protected] >>>> >>>> >>>> >>>> >>>> Search for old postings at: >>>> http://www.mail-archive.com/[email protected]/ >>>> >>>> To unsubscribe send a message to >>>> [email protected] >>>> with the subject unsubscribe. >>>> >>>> To change your subscription to digest mode or make any other changes, >>>> please visit the list home page at >>>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.or >>>> g.in >>>> >>>> >>>> Disclaimer: >>>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>>> of the person sending the mail and AI in no way relates itself to its >>>> veracity; >>>> >>>> 2. AI cannot be held liable for any commission/omission based on the >>>> mails sent through this mailing list.. >>> >>> The list has now migrated to www.accessindia.inclusivehabitat.in >>> >>> You should now post to the id: [email protected] >>> >>> >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org >>> .in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>> of the person sending the mail and AI in no way relates itself to its >>> veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails sent through this mailing list.. >>> >> >> >> -- >> Mohib Anwar Rafay >> >> Phone: +919 555 555 765 >> >> The list has now migrated to www.accessindia.inclusivehabitat.in >> >> You should now post to the id: [email protected] >> >> >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please >> visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >> the >> person sending the mail and AI in no way relates itself to its veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the mails >> sent through this mailing list.. >> >> >> --- >> This email has been checked for viruses by AVG. >> http://www.avg.com >> >> >> The list has now migrated to www.accessindia.inclusivehabitat.in >> >> You should now post to the id: [email protected] >> >> >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please >> visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >> the >> person sending the mail and AI in no way relates itself to its veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the mails >> sent through this mailing list.. >> > > The list has now migrated to www.accessindia.inclusivehabitat.in > > You should now post to the id: [email protected] > > > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > The list has now migrated to www.accessindia.inclusivehabitat.in You should now post to the id: [email protected] Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
