Hi all, Thanks a lot for your inputs. I would have a conversation with the lady today evening. And then get back. Also, recommendations for disability centres/ organisations in Pune, where the girl can be taken to spiral her orientation to accessible devices etc? Thanks Turab
On 2/27/19, Amar Jain <[email protected]> wrote: > Turab, > > There is unfortunately no uniform answer to this question. > > I have known many parents who never mentioned it to their kids, and dealt > with questions / experiences as it came. Whereas on the other hand, some > parents do speak with their child as soon as they are able to establish some > maturity in the kid. > > It is not so big problem for visible disabilities. Eventually due to medical > intervention and growing maturity, the child comes to terms with it. > > In my personal opinion, this open conversation needs to happen with the > child, so that the child can deal with questions and experiences easily with > relaxed mindset. But 4 years’ child may be too young to understand. Earliest > I know is 6. But depends on the way in which the communication takes place. > > Regards, > Amar Jain > > Sent from my iPhone > >> On 27-Feb-2019, at 2:01 PM, Kriya Jain <[email protected]> wrote: >> >> As the subject suggests, more emphasis has been put on how to communicate >> to their young daughter about their disability, for the parents. >> Social and economic environment might affect the growing process and the >> facilities provided. But the basic necessities remain the same. >> And of course, rehab is the first & immediate need of the child. >> >> On Wed, Feb 27, 2019 at 1:53 PM bhawani shankar verma >> <[email protected]> >> wrote: >> >>> unfortunately, the basic braille reading, writing and the basic mobility >>> could not take place in this entire discussion. secondly, the discussion >>> started about the particular child and we don't know the financial and >>> social condition of that particular family. the growing process of a >>> child >>> is a complete effect of his/her social and economic environment. we can >>> not >>> give any general instructions without knowing her family. better their >>> parents should contact nearest centre like NAB or other organisation. >>> first we should know about their economic and social conditions later >>> advise >>> accordingly. >>> >>> >>> -----Original Message----- >>> From: Kriya Jain >>> Sent: Wednesday, February 27, 2019 12:32 PM >>> To: AccessIndia: a list for discussing accessibility and issues >>> concerning >>> the disabled. >>> Subject: Re: [AI] Suggestions needed: For Parents to communicate to their >>> young daughter about her disability >>> >>> Raise your differently abled child just how you woul raise his/her other >>> siblings!!! >>> This is the first thing I would recommend to any of the new parents. >>> We don't keep telling our sighted children about what they have and what >>> they don't (especially at a young age of 2 or 4). Similarly no need of >>> telling the VI child about what he/she has and what is not there. Any >>> special conversation around the topic will make it unnecessarily >>> important. >>> It's just that let the child grow and adapt to the atmosphere around her. >>> Just provide assistive devices wherever needed. Let the child adapt to >>> them >>> very naturally and relish her childhood just like any other child. >>> I did the same with my daughter. In fact until the age of 7-8, I guess >>> she >>> was not much aware of her disability. she would think that the world was >>> like that only, with different kinds of people where all people are >>> blessed >>> with some talent and some deficiencies. (Yes, I had always told her that >>> God has not given everything to a single person). >>> After a certain age I realised that she should now know the ground >>> reality. >>> she should know how things work in the sighted world, and how her world >>> is >>> a little different where she needs to work a little bit to make >>> everything >>> work for her. She should face the fact that there is a world out there >>> where everything is made available from the perspective of sighted >>> persons >>> and we need to correct them 😃 to fit to our own needs! >>> Slowly, I started revealing this to her with very short talks, never >>> giving >>> her disability any importance at all. >>> I remember, she once told me that she would also ride vehicles like me. >>> I >>> did not react at that time. Just diverted her attention. After that >>> whenever this talk came, I slowly inserted a few sentences to make her >>> aware of the fact that she cannot drive ( in fact I told her she can, but >>> not on roads😃). >>> I never discussed these topics as a serious issue. >>> So the result is, the disability never overpowered my daughter's mind. >>> She >>> grew up dreaming just like her sighted sibling, wanting everything in >>> the >>> world. Today I can proudly say that she has grown into a very positive >>> adult! >>> So my suggestion to these parents is: >>> 1. Don't waste time anymore. Accept the fact and start providing you >>> child >>> with assistive devices. >>> (I always wonder why in India we are still not working on giving cane to >>> our child as early as the child takes the first step. But this needs >>> detailed discussion on a different mail) >>> 2. Don't worry too much about informing the child about the disability. >>> 3. If the child is too curious to know and have any queries, DO answer >>> them. But make it a point that the answers are more factual and >>> technical. >>> Just make the child aware of the facts and talk as if it is not a big >>> deal. >>> 4. Last but very important. DO NOT BE OVER PROTECTIVE!! >>> And yes, not all children are alike. What works for one might not work >>> for >>> other. We just need to try and learn. >>> >>> Wish the child a great future!!! >>> >>> Regards, >>> Kanchan Jain. >>> >>>> On Tue, Feb 26, 2019 at 3:28 PM Soni Jo <[email protected]> wrote: >>>> >>>> Truly said Sir. >>>> Over parenting makes the children too smart and too weak, both at the >>>> same time. Though, my own 2 ad half year old is over parented. She is >>>> such a clingy. >>>> Now, about this small girl, she should not be protected ortreaed in >>>> any special way. At least, that is what I think. I lost my eyesight >>>> suddenly and completely almost at the same age. Nobody told me, or at >>>> least, I do not remember. >>>> I knew what was happening when my parents took me to doctors and >>>> operated on my eyes. Only sad thing was the needles and operation. >>>> Oherwise, I had more o less fine childhood. I ran around on the road, >>>> nobody look out for me that I will be ran over, smiles. >>>> Enough of me, what I feel is, she should be treated as her other >>>> sibblings, except or reading and writing. She should be taught braille >>>> and other ways to read and write. Otherwise, she is fine.. The parents >>>> should answer all her questions regarding her eyesight. They should >>>> not be over protective. Childhood is bliss. >>>> Thank you >>>> >>>> >>>> >>>>> On 2/25/19, turab chimthanawala <[email protected]> wrote: >>>>> Hi all, >>>>> Today while leaving from the BMC canteen after lunch, I was stopped by >>>>> an old lady. Her grand daughter about 4 has no sight in 1 eye from >>>>> birth. Per the lady, the baby has considerable sight in the other eye. >>>>> The lady was concerned that she and her children have not yet been >>>>> able to communicate with the baby girl about her disability. They have >>>>> been apprehensive of admitting to a school as also allow her to run >>>>> and play with other kids. >>>>> This has caused a major road block as the kid as also relatives and >>>>> people around are confused at their strange behaviour. >>>>> Eagerly await inputs on >>>>> 1. How to sensitise the kid about her disability. >>>>> 2. The way forward. >>>>> (They have consulted opthamologists about plausible treatment, to no >>>>> avail and now are interested in rehab) >>>>> Thanking you >>>>> Best >>>>> Turab >>>>> >>>>> >>>>> Search for old postings at: >>>>> http://www.mail-archive.com/[email protected]/ >>>>> >>>>> To unsubscribe send a message to >>>>> [email protected] >>>>> with the subject unsubscribe. >>>>> >>>>> To change your subscription to digest mode or make any other changes, >>>> please >>>>> visit the list home page at >>>>> >>>> >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>>>> >>>>> >>>>> Disclaimer: >>>>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>> of >>>> the >>>>> person sending the mail and AI in no way relates itself to its >>> veracity; >>>>> >>>>> 2. AI cannot be held liable for any commission/omission based on the >>>> mails >>>>> sent through this mailing list.. >>>>> >>>>> >>>> >>>> >>>> Search for old postings at: >>>> http://www.mail-archive.com/[email protected]/ >>>> >>>> To unsubscribe send a message to >>>> [email protected] >>>> with the subject unsubscribe. >>>> >>>> To change your subscription to digest mode or make any other changes, >>>> please visit the list home page at >>>> >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>>> >>>> >>>> Disclaimer: >>>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>>> the person sending the mail and AI in no way relates itself to its >>>> veracity; >>>> >>>> 2. AI cannot be held liable for any commission/omission based on the >>> mails >>>> sent through this mailing list.. >>>> >>>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please >>> visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>> the >>> person sending the mail and AI in no way relates itself to its veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails >>> sent through this mailing list.. >>> >>> >>> >>> Search for old postings at: >>> http://www.mail-archive.com/[email protected]/ >>> >>> To unsubscribe send a message to >>> [email protected] >>> with the subject unsubscribe. >>> >>> To change your subscription to digest mode or make any other changes, >>> please visit the list home page at >>> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >>> >>> >>> Disclaimer: >>> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >>> the person sending the mail and AI in no way relates itself to its >>> veracity; >>> >>> 2. AI cannot be held liable for any commission/omission based on the >>> mails >>> sent through this mailing list.. >>> >>> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> >> To unsubscribe send a message to >> [email protected] >> with the subject unsubscribe. >> >> To change your subscription to digest mode or make any other changes, >> please visit the list home page at >> http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in >> >> >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >> the person sending the mail and AI in no way relates itself to its >> veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the mails >> sent through this mailing list.. >> > > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > > To unsubscribe send a message to > [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, please > visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in > > > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > > Search for old postings at: http://www.mail-archive.com/[email protected]/ To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list..
