<<http://www.nationalreview.com/comment/comment-smith010603.asp>>
January 6, 2003, 9:00 a.m.
"Doc Knows Best"
It'll be too late for you, if he's wrong.
By Wesley J. Smith
Who should have the right to decide whether you receive life-sustaining
medical treatment during a critical or terminal illness? Most would say
with great confidence, "Me. Or, if I am unable to decide, then my family."
That should be true. Indeed, it used to be true. But in a growing number of
hospitals, your right-to-decide is being taken away from you (or your
family) by bioethicists and members of the medical intelligentsia who
believe that their values and priorities should count more than yours when
determining whether you shall receive wanted medical treatment. To put it
bluntly, even if you want to live, even if you want medical treatment to
enable you to fight for your life, you may be told that the hospital
reserves the right to refuse service.
Welcome to the world of "futile-care theory," one of the hottest and
most-dangerous topics in contemporary bioethics. While you may never have
heard of it, stories about the spread of futile-care theory are rife
throughout medical and bioethics literature, reported and argued about in
such influential publications as The Journal of the American Medical
Association, The New England Journal of Medicine, and The Hastings Center
Report.
Unfortunately, few people read these highbrow publications. Worse, despite
being a bombshell story, this growing threat has mostly been ignored by the
popular media.
This better change fast. As you read these words, quietly, slowly,
inexorably, mostly behind the closed doors of hospital ethics committees,
"futile care" or "inappropriate care" protocols are being put into place in
hospitals throughout the country. The first time most patients and their
families become aware that doctors are being given the right to say "no" to
wanted medical treatment (other than comfort care) is during a medical
crisis when they are at their most defenseless and vulnerable.
Hospitals in Des Moines, Iowa, appear to be the latest institutions to
stealthily adopt futile-care policies. As reported by the January 2, 2003,
Cedar Calls Courier, some area hospitals now have rules in place that
permit "medical staff to withdraw treatment over a family's objection."
True, when there is a dispute, families and patients have a right to a
hearing in front of a hospital ethics committee. But that isn't much
solace. Such committees could easily become more stacked decks than
dispassionate decision makers, mostly comprised of well-meaning people who
either are part of the institutional culture or who have been trained to
believe that futile-care theory is the right thing to do.
According to the Courier report, if patients lose the right to receive
treatment in the ethics committee, they have two choices. First, they can
find another hospital. But this would be no easy task given that patients
refused treatment are likely to be the most expensive to care for. With the
coming of HMOs, and the Medicare Diagnosis Related Group (DRG) capitated
payment system, hospitals now generally lose money on patients requiring
intensive or extended care. Thus, getting another hospital to accept a
patient that a current hospital doesn't want to treat anymore may be a near
impossible task.
That leaves the courts and filing a lawsuit to force the hospital to
sustain the patient's life. That could work, but it is no sure bet. There
have been lawsuits filed in various parts of the country over refused
treatment, but the results have gone both ways. Moreover, no definitive
case has yet been litigated to the appeals court stage. Thus, there are no
legal precedents governing the legality or permissible scope of these
quickly spreading futile-care policies.
But even though a lawsuit could be successful in theory, it might very well
prove utterly impracticable to pursue. These are not the kind of cases that
lawyers accept on a contingency basis. This means that if you try to
legally force a hospital to continue treatment, you would probably have to
pay your lawyer by the hour. Lawyers often charge hundreds of dollars an
hour, meaning that a fully litigated case, even without appeals, could cost
literally tens, if not hundreds of thousands of dollars.
On the other hand, having very deep pockets, the hospital administration
would not be concerned in the least about the cost of their lawyers. If
fully unleashed, the hospital's corporate lawyers could file enough
motions, take enough depositions, and pursue every possible appeal, to the
point that you, quite literally, could litigate yourself into bankruptcy.
Beyond the financial impracticalities of suing a hospital, one of the
primary reasons for crafting futile-care protocols has been to improve the
chance that the hospital would prevail in court. Indeed, an article in the
Fall 2000 Cambridge Quarterly of Health Care Ethics explicitly advised
hospital bioethicists to put these protocols in place as a way to prepare
for the litigation bioethicists presume would be filed by people furious at
having wanted medical treatment refused. As the authors of The Cambridge
Quarterly article opined, "Hospitals are likely to find the legal system
willing (and even eager) to defer to well-defined and procedurally
scrupulous processes for internal resolution of futility disputes."
Nobody knows just how many hospitals have adopted these protocols, or where
they have been put in place. But if the professional literature is to be
believed, futile-care theory is spreading quickly. The Cambridge Quarterly
article cited above found that 24 out of 26 surveyed hospitals in
California had such policies in place and that of these; only seven left
the final decision to the patient or family. I have read about policies
being adopted by some hospitals in Houston, Philadelphia, and Detroit, just
to mention a few.
It used to be that people were afraid of being hooked up to machines when
they wanted nothing more than to go home and die a peaceful, natural death.
The early bioethics movement deserves great thanks for helping do away with
that form of abuse by pointing out that patient autonomy means the right to
say no to unwanted interventions.
But that was before the bioethics movement largely abandoned the sanctity
of life ethic for an express or implicit utilitarianism that views the
value of human life through a distorting prism of "quality." That was
before most bioethicists came to believe that health-care rationing should
be imposed.
Now, a new medical hegemony is arising, one that proclaims the right to
declare which of us have lives worth living and therefore worth treating
medically, and which of us do not. In essence, what is being created in
front of our very eyes (if we would only see) is a duty to die. Unless
people object strongly and legislatures take active steps to intervene,
this new and deadly game of "Doctor Knows Best" will be coming soon to a
hospital near you.
--Wesley J. Smith is a senior fellow at the Discovery Institute and an
attorney for the International Task Force on Euthanasia and Assisted
Suicide. He is the author of Culture of Death: The Assault on Medical
Ethics in America.
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